Who We Are

CHECT support worker Sarah is talking to a child and mum

About The Childhood Eye Cancer Trust

The Childhood Eye Cancer Trust (CHECT) is a UK charity dedicated to helping people affected by retinoblastoma, a rare form of eye cancer. We:

• Provide support and information to families and individuals.
• Fund research into the prevention and treatment of retinoblastoma.
• Raise awareness among health professionals and the public.
• Influence policy to improve services for patients.

We know that when a child is diagnosed, it can be a distressing and frightening time for everyone, and we are here to help. We also understand that for some people retinoblastoma can have a long term impact and we offer lifelong support for anyone affected – from diagnosis to adulthood. We’ve been helping families for more than 30 years but we don’t receive any money from the government and we rely on public support to fund our vital work.

CHECT’s impact

We’re a small charity which plays a big role in the lives of people affected by retinoblastoma. In the last three years:

• 100% of families in the UK were offered support following a diagnosis of retinoblastoma and throughout their child’s treatment.
• We provided over 2,000 hours of support to around 525 families each year.
• More than £8,500 was given in grants for 40 families facing financial difficulty because of the expenses related to their child’s treatment.
• In feedback 100% of people who responded said CHECT support helped them in their experience of dealing with eye cancer.

For more information about CHECT and the work we do, please have a look at our impact report, annual report and InFocus newsletter on our publications page.