Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
CHECT ambassadors at Vision Express in Lincoln
Two youngsters from Lincoln who battled retinoblastoma were guests of honour to officially open a new Vision Express store.
Q&A with NAES
The National Artificial Eye Service, part of the NHS, makes up to 5,000 bespoke artificial eyes a year for people of all ages, from babies to pensioners.
CHECT research – Rb registry
Establishing an enhanced retinoblastoma registry to improve the services and care provided to children in the UK.
‘All I wanted was to be a mum’
All her life, Angie Campbell had dreamed of being a mum and having a large family. She takes us on her remarkable journey over the last 18 years to realise her dream.
‘I can’t imagine my life without goalball’
Kelsey Trevett, 16, was introduced to goalball during the 2012 London Paralympic Games. Since then, the sport has had a huge impact on his life.
‘Pirate game revealed my toddler’s eye cancer’
Alice had been going blind in one eye for months without anyone realising. She was diagnosed with Rb when she was two years old.