Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Latest guidance on COVID-19 / Corona Virus
For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
InFocus Digital Edition: Summer 2021
We’re pleased to present the latest edition of our CHECT InFocus Magazine – chock full of your stories as well as what we’ve been up to as a charity over the last few months.
An interview with rugby star Will Jubb
Will Jubb was diagnosed with Rb as a baby and had his right eye enucleated. However, playing with one eye has not held him back from a successful rugby career.
Our CHECT Champion Dads 2021
For Father’s Day, we recognise those amazing dads out there who go above and beyond to support their families and those affected by Rb.
“My cancer does not define me, nor is it an excuse to not try.”
Whilst retinoblastoma has affected her life, Monica has not let the disease hold her back from success or from chasing her dreams. Now age 30, she recalls her story.
My hearing test experience at GOSH
Suri (age 10) was born with bilateral Rb which was treated with chemotherapy. He kindly shared a blog with us about his experience of getting his hearing tested at GOSH.
“Second cancers have always been in the back of my mind.”
Louise shares how her retinoblastoma has not held her back, but also how important it is to be aware of the risks of adult second cancers.