Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Opportunity for a parent to join our committee
We’re looking for a parent of a child who has had retinoblastoma to join us as a lay representative on our Scientific Advisory Committee.
Parents shocked after unusual ‘white glow’ in child’s eye turned out to be cancer
Parents began to notice a strange ‘white glow’ in the right eye of their two-year-old son Oliver, although it only appeared in certain light.
Raising Awareness of Rb in Parliament
We hosted a Parliamentary Drop-In event, as part of World Retinoblastoma Awareness Week 2019, to engage MPs in raising awareness of Rb.
Having had Rb, I hope my academic work will help others
Nicole Beddard undertook a project which explored the experiences of parents with children who have had Rb.
“I make my loved ones proud no matter how difficult things may get.”
17-year-old Beth Holman shares her experiences of growing up with a visual impairment having been treated for bilateral Rb as a baby.
Starting a new school
As we near the end of one school year, many are already looking to the new start in August or September. Whether starting nursery for the first time, moving up to primary or transitioning to secondary, the new school year can bring new challenges. Will other students...