Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
New retinoblastoma research confirmed
We are delighted to confirm that CHECT will be funding the next stage of “Developing an evidence-based psycho-educational intervention for teenagers and young adults who have had retinoblastoma”. Having spent three years understanding the psychosocial experiences of...
History of the Childhood Eye Cancer Trust
1984 In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into retinoblastoma and raised...
World Retinoblastoma Awareness Week 2025
Find out how you can get involved during World Retinoblastoma Awareness Week, from 8-14 May 2021.
Meet Fotballer Adam Lione
From being diagnosed with retinoblastoma to representing England on the international stage, Adam Lione's shares his story with us. Can you tell us about your retinoblastoma diagnosis? I was diagnosed at 16 weeks old, and early symptoms were that I could not be laid...
“A flash of light in a photo uncovered my daughter’s cancer”
A dad from London is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day after his two-year-old daughter, Shuhd, was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...
Flynn appears on BBC News
A huge thank you to Flynn and his mum Katie for helping us to raise awareness of retinoblastoma across the media, radio and TV. Flynn Fairhurst was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six-years-old, in 2023...