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For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
One third of parents say a squint is NOT a symptom of childhood eye cancer
A squint is actually the second most common symptom.
“A photo saved my daughter’s life”
A four-year-old was diagnosed with the rare eye cancer retinoblastoma after her mum saw her tumour ‘glowing’ in a flash photo.
“I’m so grateful our GP didn’t let us miss our appointment.”
When Stacey Declerk was given a camera for Christmas, she had no idea it would lead to the discovery that her son Brody had eye cancer. She shares her story:
“A photo saved my daughter’s life”
A four-year-old was diagnosed with the rare eye cancer retinoblastoma after her mum saw her tumour ‘glowing’ in a flash photo.
“I’m so grateful our GP didn’t let us miss our appointment.”
When Stacey Declerk was given a camera for Christmas, she had no idea it would lead to the discovery that her son Brody had eye cancer. She shares her story:
22 years after Rb, medical student returns to make a difference
Angharad was diagnosed with Rb at nine months and had her eye enucleated at St Bartholomew’s Hospital. 22 years on, she’s back and now studying at Barts and the London Medical School.