Latest guidance on COVID-19 / Corona Virus
For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Where to find financial help during COVID-19
Some CHECT families will be finding life particularly difficult at the moment. Here are some resources from the government which we hope will help.
Brave Boy Seb Scoops Award
A four-year old boy from Fair Oak has received a prestigious award in recognition of the courage he has shown while battling against retinoblastoma.
Ideas for children’s activities
Stuck indoors? Here’s a list of ‘digital’ activity ideas to help keep the little ones entertained!
“Finally we can have the Christmas we’ve been waiting for”
Christmas is a time of joy and celebration, but for Laila Ollie, it was the moment they discovered that their little boy had to have his eye removed.
Living Life Past Rb
Kyle’s family travelled from Malta to the UK for his Rb treatment when he was two years old. Now aged 20, he shares his experience of growing up with an artificial eye.
“Rb isn’t something to be afraid of – I grew up thinking it was”
Eve Smyth is a 62-year-old second-generation Rb survivor. She shares her advice, as well as her fascinating story of growing up blind and how she managed to find the strength to adopt after tragically losing her son to trilateral Rb.