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For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Meet the marathon team
The cancellation of the London Marathon back in March has not stopped our fundraisers from doing their bit for CHECT.
One third of parents say a squint is NOT a symptom of childhood eye cancer
A squint is actually the second most common symptom.
“I’m so grateful our GP didn’t let us miss our appointment.”
When Stacey Declerk was given a camera for Christmas, she had no idea it would lead to the discovery that her son Brody had eye cancer. She shares her story:
“The Rb journey is one of twists and turns and ups and downs” – mum shares her family’s story
Mum Pippa tells us about her daughter’s chemo treatment and retinoblastoma journey.
“I was gently reminded, ‘You have saved his life’. ” – mum shares her family’s story
Mum Charlie tells us about her son’s retinoblastoma journey including how his eye was removed (enucleated) to save his life.
“Chemotherapy wasn’t what I was expecting” – mum shares her family’s story
Mum Michelle tells us about her son’s retinoblastoma journey – including his chemotherapy treatment.