We are the UK’s only charity dedicated to supporting children, families and adults affected by retinoblastoma (Rb).
Retinoblastoma is a rare form of eye cancer that typically affects children under six, the impacts of which can last a lifetime.
For over 35 years we’ve been making a real difference to people’s lives by providing lifelong support, raising awareness and funding vital research.
2500+
hours of one-to-one care provided across the year.
1300+
face-to-face sessions provided every year.
200+
children receiving treatment or aftercare at any one time.
It’s World Retinoblastoma Awareness Week from 11th May – 17th May 2025.
There are a few different ways that you can help raise awareness and funds to support families affected by retinoblastoma during this important week. Whether you’re organising an event or simply sharing one of our social media posts, we are incredibly grateful to each and every one of you for your support – thank you.
Signs and symptoms
Are you worried that your child is showing a symptom of retinoblastoma?
Take them to your GP, a local optician / optometrist or an ophthalmology (eye specialist) department and have their eyes examined as soon as possible.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying.
Find out what causes white eye and what to do if you see it.
Retinoblastoma stories & news
Natalie’s retinoblastoma story
Natalie, who had retinoblastoma when she was...
Mosaicism
Genes are instructions that control the way we...
Meet Footballer Adam Lione
From being diagnosed with retinoblastoma to...
Donate today
to help us achieve our goals to raise awareness, fund research and supporting those affected by retinoblastoma.
Fund a Pip the Penguin toy for a child who has had their eye removed to help them come to terms with their artificial eye.
Support travel expenses for hospital visits, helping families manage the additional financial burden associated with cancer.
Fund five support sessions with a dedicated CHECT support worker to help lessen the impact of a retinoblastoma cancer diagnosis.
Fund an event to bring together those affected by retinoblastoma so that they feel supported and less isolated.
Become a member of Childhood Eye Cancer Trust
It is easy and FREE to become a member of the Childhood Eye Cancer Trust. We have options for parents, teenagers, adults and grandparents. This will gain you access to our support, grants, events, regular updates and much more.