fbpx

What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Read the latest Covid guidance

Read the latest guidance for children and young people with cancer undergoing treatment, issued by Children’s Cancer and Leukemia Group (CCLG).

Join in with Childhood Cancer Awareness Month!

September is Childhood Cancer Awareness Month! The internationally recognised symbol of childhood cancer is the gold ribbon, which is why this September CHECT is ‘going for gold’! Here are just some of the ways you can get involved.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Would you like to join us for a fun day out in Regent’s Park?

Would you like to join us for a fun day out in Regent’s Park?

Would you like to join us for a fun day out in Regent’s Park?  We had such an amazing Sunday morning earlier in the month, at this year’s RunThrough event, that we are already starting to plan for next year! On a very hot 10th July, 33 CHECT runners, their friends,...

New pregnancy testing technology now available

New pregnancy testing technology now available

A new type of in-pregnancy testing called Non-Invasive Prenatal Diagnosis (NIPD) is now available for families affected by the heritable (genetic) form of retinoblastoma. This article explains more about the process, the benefits it can provide, and who is eligible....

The Ocularist: How the journey began

The Ocularist: How the journey began

Ocularist John Pacey-Lowrie talks us through his 45-year experience working with prosthetic eyes in this blog series, starting right from the beginning of his journey. An unusual profession, a demanding profession and above all a caring profession...45 years as an...

Megan’s Golden Eye

Megan’s Golden Eye

Megan shares with us her Rb story, and how why she decided she wanted to have a golden prosthetic eye. I was diagnosed with Retinoblastoma at three-months-old, by the time I was one I had gone through six rounds of chemotherapy and cryotherapy, two blood transfusions...

Meet Finn the buddy dog!

Meet Finn the buddy dog!

Harvey, who was diagnosed with retinoblastoma just as he turned 4, has written about his buddy dog, Finn. This is Finn he is 2 years old, he is a labradoodle, I am Harvey and I am 7. I wanted a guide dog because of my eyes, but we ended up with Finn who is a buddy...

Join our newsletter