Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
My Beautiful Socket
Our member Katie sent us a poem about her eye that was removed due to having retinoblastoma. My Beautiful Socket and Me 💗 My beautiful socket, Behind my Prosthetic, My beautiful socket I see. I see it often, Daily, weekly, Or at times when my Prosthetic eye needs a...
Tobias’ Crazy Glasses Event
Raising awareness about important health conditions can be both educational and fun, as Tobias’ preschool recently demonstrated. In an effort to support Tobias and spread awareness of retinoblastoma, a rare form of eye cancer, the school organised a special Crazy...
Sam’s Mascot Day!
A huge thank you to the Free Kicks Foundation for providing a great day out for our member, Sam! Mum Nicky says, "The official pictures from Sam's day as a mascot at PNE v Luton came today! It was a fantastic day, one he'll always remember. Especially meeting the...
Imogen’s update!
In 2021 we shared Imogen's retinoblastoma story. We spoke to her mum Lorna to see how she is doing now. "Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months went through intensive treatment including...
Jaxon shines in sports!
Hi! My name is Jaxon.I am eight-years-old. I am from Dublin, Ireland. I travel over to Birmingham Children's Hospital for my appointments. I was diagnosed with bilateral retinoblastoma when I was two-years-old. I have had many different types of treatments.Ten days...
“My daughter lost her eye to cancer after we spotted her iris changed colour”
A mum from Birmingham is urging other parents to look out for the tell-tale signs of eye cancer this Childhood Cancer Awareness Month, after her three-year-old daughter Esmae was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under...