Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Latest guidance on COVID-19 / Corona Virus
For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
What are your child’s priorities for future research?
The Children’s Cancer Priority Setting Partnership wants to know what children who have experienced childhood cancer think should be priorities for future research… If your child (aged 15 or under) has had cancer, or has a sibling or friend who has cancer, they are...
Charlie meets his ‘rugby twin’
In the latest issue of InFocus magazine and for a video for our social media channels, we interviewed rugby star Will Jubb, who was diagnosed with retinoblastoma (Rb) at two years old and had his right eye enucleated. However, playing with one eye has not held him...
Can you spare some time to help research into developing resources for adults affected by Rb?
Can you spare some time to help research into developing resources for adults affected by Rb? Nicole Beddard, who has had bilateral retinoblastoma (Rb), is looking for your help. An open letter from Nicole: For those of you who don’t know me I am Nicole Beddard, I...
“My cancer does not define me, nor is it an excuse to not try.”
Whilst retinoblastoma has affected her life, Monica has not let the disease hold her back from success or from chasing her dreams. Now age 30, she recalls her story.
My hearing test experience at GOSH
Suri (age 10) was born with bilateral Rb which was treated with chemotherapy. He kindly shared a blog with us about his experience of getting his hearing tested at GOSH.
“Second cancers have always been in the back of my mind.”
Louise shares how her retinoblastoma has not held her back, but also how important it is to be aware of the risks of adult second cancers.