Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Leicester and Scotland Members’ Days in pictures
See the latest photos from our 2019 CHECT family days out in Leicester and Scotland.
Targeted Antibody-Drug Conjugates for Retinoblastoma Therapy
A research group at the University at Buffalo outlines their work on new and improved drug therapies for retinoblastoma.
Hair today, gone tomorrow!
A CHECT Ambassador was recently the guest of honour at a Vision Express store – cutting off the Store Manager’s long locks to raise money for CHECT.
“Finally we can have the Christmas we’ve been waiting for”
Christmas is a time of joy and celebration, but for Laila Ollie, it was the moment they discovered that their little boy had to have his eye removed.
Living Life Past Rb
Kyle’s family travelled from Malta to the UK for his Rb treatment when he was two years old. Now aged 20, he shares his experience of growing up with an artificial eye.
“Rb isn’t something to be afraid of – I grew up thinking it was”
Eve Smyth is a 62-year-old second-generation Rb survivor. She shares her advice, as well as her fascinating story of growing up blind and how she managed to find the strength to adopt after tragically losing her son to trilateral Rb.