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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Become a member of CHECT

Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.

CHECT’s Stafford Family Day

CHECT’s Stafford Family Day

On Saturday 21 October, eleven families struggled through the flooded roads caused by Storm Babet to reach Lower Drayton Farm in Stafford for the CHECT family day. Thanks to a kind donation from Tescos in Shirley (having been nominated by Harry Hanlon’s auntie...

InFocus Winter 2023 – Plain Text Version

InFocus Winter 2023 – Plain Text Version

We’re pleased to present the latest edition of our CHECT InFocus Winter 2023 Magazine –  full of your stories as well as what we’ve been up to as a charity over the last few months.  This Winter edition of InFocus has been produced in both a digital and print format....

Evie’s retinoblastoma story: From diagnosis to now

Evie’s retinoblastoma story: From diagnosis to now

Mum Danielle shares Evie’s retinoblastoma diagnosis story with CHECT for World Sight Day. It was 11th January 2023 and a day like any other day. I was feeding Evie lunch whilst she was watching her favourite presenter 'Miss Rachel' at the time when I noticed a haze or...

Violet’s life outside of Rb

Violet’s life outside of Rb

Mum Annalise discusses what life is like for Violet after having her eye enucleated (removed) following her retinoblastoma diagnosis. Violet (aka Queen V) is a very busy, confident and happy seven-year-old girl. Being diagnosed with retinoblastoma (Rb) at the age of...

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