Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Raising Awareness of Rb in Parliament
We hosted a Parliamentary Drop-In event, as part of World Retinoblastoma Awareness Week 2019, to engage MPs in raising awareness of Rb.
Rare sign of cancer spotted in baby by vigilant parents
“I expected the doctor to say that I was another worried over-bearing mother, panicking over nothing” – the words of a mother who found out the devastating news that her baby boy had cancer.
BBC Lifeline Appeal for CHECT
This short programme, presented by Shane Richie, gives an insight into the journeys of some of our families affected by retinoblastoma, the work that we do and why supporting CHECT is incredibly important.
Celebrating Champion Dads
We feel it’s important to recognise those amazing dads out there who go above and beyond to support their families. Here’s just a few of our hero dads!
“Your life isn’t defined by your artificial eye – what matters is your own personality”
Dom Bielby shares how having an artificial eye has not held him back, instead how embracing uniqueness can be used as an advantage when making new friends.
Life After Childhood Cancer
Being diagnosed with retinoblastoma back in 1950, Greg Ovens recalls his life experiences including fond memories of his ‘days out’ at Moorfields Eye Hospital with his father