Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Latest guidance on COVID-19 / Corona Virus
For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
“It was only when my daughter was born, that I felt my mother’s pain.”
Diagnosed with bilateral retinoblastoma 33 years ago, Aazmeen shares her story of how inheriting the Rb gene has had an impact on her life.
2021 Squats thank you and fundraising total revealed
Whilst there are still challenging times ahead, this event has really helped make up for lost funds, ensuring that we can continue to offer support to families.
“It was only later in life that I felt that I could finally show the world who I was.”
Nicole shares her retinoblastoma story – from her lengthy treatment and struggles with being self-conscious, to finally embracing her artificial eye and becoming the confident woman she is today.
Celebrating our CHECT women of science
For International Women’s Day we’ve highlight some of the brilliant women involved in our CHECT research into the prevention and treatment of retinoblastoma.
“Second cancers have always been in the back of my mind.”
Louise shares how her retinoblastoma has not held her back, but also how important it is to be aware of the risks of adult second cancers.
“It was only when my daughter was born, that I felt my mother’s pain.”
Diagnosed with bilateral retinoblastoma 33 years ago, Aazmeen shares her story of how inheriting the Rb gene has had an impact on her life.