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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Read the latest Covid guidance

Read the latest guidance for children and young people with cancer undergoing treatment, issued by Children’s Cancer and Leukemia Group (CCLG).

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Megan’s Golden Eye

Megan’s Golden Eye

Megan shares with us her Rb story, and how why she decided she wanted to have a golden prosthetic eye. I was diagnosed with Retinoblastoma at three-months-old, by the time I was one I had gone through six rounds of chemotherapy and cryotherapy, two blood transfusions...

John Hungerford’s Memorial

John Hungerford’s Memorial

The Hungerford family would like to extend a warm thank you to everybody who sent in memoirs and left kind messages in regards to the late John Hungerford - you can read our tribute here. A memorial service celebrating the professional life and legacy of John...

InFocus – Summer 2022 Plain Text Version

InFocus – Summer 2022 Plain Text Version

 We’re pleased to present the latest edition of our CHECT InFocus Magazine –  full of your stories as well as what we’ve been up to as a charity over the last few months.  This Summer edition of InFocus has been produced in both a digital and print format. View the...

Megan’s Golden Eye

Megan’s Golden Eye

Megan shares with us her Rb story, and how why she decided she wanted to have a golden prosthetic eye. I was diagnosed with Retinoblastoma at three-months-old, by the time I was one I had gone through six rounds of chemotherapy and cryotherapy, two blood transfusions...

Meet Finn the buddy dog!

Meet Finn the buddy dog!

Harvey, who was diagnosed with retinoblastoma just as he turned 4, has written about his buddy dog, Finn. This is Finn he is 2 years old, he is a labradoodle, I am Harvey and I am 7. I wanted a guide dog because of my eyes, but we ended up with Finn who is a buddy...

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