Latest guidance on COVID-19 / Corona Virus
For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
A day in the life of a CHECT support worker
Sarah Turley is based in Birmingham Children’s Hospital. She shares with us what it’s like to be a CHECT Support Worker during these unusual times.
22 years after Rb, medical student returns to make a difference
Angharad was diagnosed with Rb at nine months and had her eye enucleated at St Bartholomew’s Hospital. 22 years on, she’s back and now studying at Barts and the London Medical School.
Our Champion Dads!
All our nominated CHECT dads received a special CHECT Champion certificate this Father’s Day.
22 years after Rb, medical student returns to make a difference
Angharad was diagnosed with Rb at nine months and had her eye enucleated at St Bartholomew’s Hospital. 22 years on, she’s back and now studying at Barts and the London Medical School.
When they said I was going to lose my eye, I was almost relieved – I thought it was going to be so much worse.”
Unlike so many children, Eloise is able to remember her Rb diagnosis and journey through treatment. Now aged 16, she tells us her story.
“Finally we can have the Christmas we’ve been waiting for”
Christmas is a time of joy and celebration, but for Laila Ollie, it was the moment they discovered that their little boy had to have his eye removed.