Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
“We spotted our son’s eye cancer the day he took his first steps”
A mum and dad from Bolton are urging other parents to look out for the tell-tale signs of eye cancer for World Retinoblastoma Awareness Week, after their 11-month-old son lost his eye through retinoblastoma, a rare eye cancer that typically affects children under the...
Meet Marvin the Mole, Vision Express’ New Fundraiser!
As you may have seen in stores and on social media, the lovable Vision Express mascot Marvin the Mole is now raising vital funds for both CHECT and the Macular Society. After joining the Vision Express team in 2021, Marvin has proved to be a hit with the public,...
Pathways to Diagnosis
In 2012, as part of our aim to reduce the delays in diagnosis of retinoblastoma (Rb) experienced by some families in the UK CHECT began to collect information from parents we called ‘Pathways to Diagnosis’. This information was gathered by support workers during the...
“We spotted our son’s eye cancer the day he took his first steps”
A mum and dad from Bolton are urging other parents to look out for the tell-tale signs of eye cancer for World Retinoblastoma Awareness Week, after their 11-month-old son lost his eye through retinoblastoma, a rare eye cancer that typically affects children under the...
Mohamed’s Posed for Poetry Success!
Mohamed Abukhzaam, who had his eye enucleated aged three after being diagnosed with retinoblastoma, is now aged eight and has a strong love for poetry. Mum discusses his achievements and shares a poem that inspires him: Mohamed has a poetry competition every year...
Eliza’s Equestrian Enjoyment
Eliza, who had bilateral retinoblastoma and had an enucleation, has written about her love for horse riding and how she protects her eyes: My name is Eliza and I am eight years old. I have a special eye since I was 1 years old. I do like participating in a lot of...