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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Latest guidance on COVID-19 / Corona Virus

For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

A Tribute to John Hungerford

A Tribute to John Hungerford

We are extremely sad to inform our members of the passing of Consultant Ophthalmologist John Hungerford, who not only helped many people who had retinoblastoma (Rb), but was also key in the development of new approaches in the treatment of Rb. Libby Halford, a former...

Jack’s sleepover antics

Jack’s sleepover antics

Jack Gwyther, 11, recalls a story which shows how his confidence with his prosthetic eye has grown. It was a Saturday night when I went round my best friend's 11th birthday party and there were 4 of us. We were all messing about in the living room playing on the...

InFocus Winter 2021 – Plain Text Version

InFocus Winter 2021 – Plain Text Version

View the plain text version of our Winter InFocus magazine: INFOCUS WINTER 2021 - HMTL If you would like to receive InFocus in a different format, please email info@chect.org.uk.

Love Your Eyes: Olivia’s Story

Love Your Eyes: Olivia’s Story

World Sight Day takes place on the 14th October this year, with a theme that you should #LoveYourEyes. Loving your eyes can come in many forms – for instance – attending all your eye appointments or looking after your eyes by wearing sunglasses. At CHECT, we also want...

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