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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Read the latest Covid guidance

Read the latest guidance for children and young people with cancer undergoing treatment, issued by Children’s Cancer and Leukemia Group (CCLG).

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Meet Marvin the Mole, Vision Express’ New Fundraiser!

Meet Marvin the Mole, Vision Express’ New Fundraiser!

As you may have seen in stores and on social media, the lovable Vision Express mascot Marvin the Mole is now raising vital funds for both CHECT and the Macular Society. After joining the Vision Express team in 2021, Marvin has proved to be a hit with the public,...

Pathways to Diagnosis

Pathways to Diagnosis

In 2012, as part of our aim to reduce the delays in diagnosis of retinoblastoma (Rb) experienced by some families in the UK CHECT began to collect information from parents we called ‘Pathways to Diagnosis’. This information was gathered by support workers during the...

Mohamed’s Posed for Poetry Success!

Mohamed’s Posed for Poetry Success!

Mohamed Abukhzaam, who had his eye enucleated aged three after being diagnosed with retinoblastoma, is now aged eight and has a strong love for poetry. Mum discusses his achievements and shares a poem that inspires him: Mohamed has a poetry competition every year...

Eliza’s Equestrian Enjoyment

Eliza’s Equestrian Enjoyment

Eliza, who had bilateral retinoblastoma and had an enucleation, has written about her love for horse riding and how she protects her eyes: My name is Eliza and I am eight years old. I have a special eye since I was 1 years old. I do like participating in a lot of...

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