We are the UK’s only charity dedicated to supporting children, families and adults affected by retinoblastoma (Rb).
Retinoblastoma is a rare form of eye cancer that typically affects children under six, the impacts of which can last a lifetime.
For over 35 years we’ve been making a real difference to people’s lives by providing lifelong support, raising awareness and funding vital research.
2500+
hours of one-to-one care provided across the year.
1300+
face-to-face sessions provided every year.
200+
children receiving treatment or aftercare at any one time.
Join us at Lambeth Palace on Friday the 29th of August!
Step inside history, connect with the Childhood Eye Cancer Trust, and experience the heart of Lambeth Palace.
To mark 10 years of opening Lambeth Gardens to the public, join the Childhood Eye Cancer Trust and explore the history of the home of the Archbishops of Canterbury.
Signs and symptoms
Are you worried that your child is showing a symptom of retinoblastoma?
Take them to your GP, a local optician / optometrist or an ophthalmology (eye specialist) department and have their eyes examined as soon as possible.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying.
Find out what causes white eye and what to do if you see it.
Childhood Cancer Awareness Month – Going for Gold!
Retinoblastoma stories & news
InFocus Winter 2025 – Plain Text Version
We’re pleased to present the latest edition of...
Junior’s Judo Journey: Confidence, Courage, and Kicks
We spoke to Junior’s mum Courtney about Junior’s love for judo.
Our CHECT Champion Dads 2025
For Father’s Day, we recognise those amazing dads out there who go above and beyond to support their families and those affected by Rb.
Donate today
to help us achieve our goals to raise awareness, fund research and supporting those affected by retinoblastoma.
Fund a Pip the Penguin toy for a child who has had their eye removed to help them come to terms with their artificial eye.
Support travel expenses for hospital visits, helping families manage the additional financial burden associated with cancer.
Fund five support sessions with a dedicated CHECT support worker to help lessen the impact of a retinoblastoma cancer diagnosis.
Fund an event to bring together those affected by retinoblastoma so that they feel supported and less isolated.
Become a member of Childhood Eye Cancer Trust
It is easy and FREE to become a member of the Childhood Eye Cancer Trust. We have options for parents, teenagers, adults and grandparents. This will gain you access to our support, grants, events, regular updates and much more.