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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Get involved in Childhood Cancer Awareness Month

Help us raise awareness and funds during September.

50km Your Way!

Complete 50 kilometres in any way you choose throughout the month
of September to represent approximately 50 children diagnosed a year
with the childhood eye cancer retinoblastoma

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Become a member of the Childhood Eye Cancer Trust

Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.

InFocus Summer 2024 – Plain Text Version

InFocus Summer 2024 – Plain Text Version

We’re pleased to present the latest edition of our CHECT InFocus Summer 2024 Magazine –  full of your stories as well as what we’ve been up to as a charity over the last few months.  This Summer edition of InFocus has been produced in both a digital and print format....

Protective eyewear for children with monocular vision

Protective eyewear for children with monocular vision

When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem, Lead Orthoptist for Retinoblastoma Services at The Royal...

Scarlet’s sailing experience

Scarlet’s sailing experience

The Ellen MacArthur Cancer Trust is a national charity that takes young people aged 8-24 on sailing and outdoor adventures to inspire them to believe in a brighter future living through and beyond cancer. When a young person gets the ‘all clear’, their whole world has...

Ethan’s CHECT Champion award

Ethan’s CHECT Champion award

A five-year-old boy from Rhyl has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Ethan was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly...

Siblings win a CHECT Champion award!

Siblings win a CHECT Champion award!

Two brothers have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled against an extremely rare form of cancer. In March 2022 Harry Hanlon from Sutton Coldfield was diagnosed with retinoblastoma, a cancer...

Samuel’s CHECT Champion Award success!

Samuel’s CHECT Champion Award success!

A 10-year-old boy from Leyland in Lancashire has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Samuel was diagnosed with retinoblastoma, a cancer which affects the retina of children...

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