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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Latest guidance on COVID-19 / Corona Virus

For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Give new life to old stock!

Give new life to old stock!

Inspired by our Trusts & Foundations Fundraising Manager Lizzie, who made these fab cushions for our office, will you join us in giving old stock new (and a different) life! 1. Buy an old CHECT T-shirt (take pot luck with the size) for £2 2. Upcycle/repurpose it -...

Meet our new support worker Lena!

Meet our new support worker Lena!

Hi everyone! I am Lena and have recently joined the CHECT team as a Support Worker at the Royal London Hospital. For the past 15 years my working life has been spent in the charities sector, beginning with Save the Children then Living Earth Foundation and most...

Love Your Eyes: Olivia’s Story

Love Your Eyes: Olivia’s Story

World Sight Day takes place on the 14th October this year, with a theme that you should #LoveYourEyes. Loving your eyes can come in many forms – for instance – attending all your eye appointments or looking after your eyes by wearing sunglasses. At CHECT, we also want...

Love Your Eyes: Olivia’s Story

Love Your Eyes: Olivia’s Story

World Sight Day takes place on the 14th October this year, with a theme that you should #LoveYourEyes. Loving your eyes can come in many forms – for instance – attending all your eye appointments or looking after your eyes by wearing sunglasses. At CHECT, we also want...

My hearing test experience at GOSH

My hearing test experience at GOSH

Suri (age 10) was born with bilateral Rb which was treated with chemotherapy. He kindly shared a blog with us about his experience of getting his hearing tested at GOSH.

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