Retinoblastoma and me – for children and young people
Welcome to our area for children and young people (and their parents and guardians!) to find out a bit more about retinoblastoma, treatment and life at school. If you or your child has/had retinoblastoma, please click on one of the links below to take you to a section written specially for different age groups.
- Age 1-6
- Age 7-11
- Age 12-18
- If you are a teenager or young adult who has had retinoblastoma, head over to our new website, CHECT TYA.
Pip the Penguin
Thanks to a generous donor, CHECT were able to design and produce a soft toy to enhance and support children’s understanding of an enucleation. Named by our members – Pip the Penguin is available to be gifted to children who have undergone or who will undergo an enucleation. Pip has one removable eye, and can be used by clinicians or family members to help explain and normalise an enucleation to a child, siblings and friends.
Contact our support team for more information on Pip!
If there’s anything you’d like to talk about, please remember that we’re here to help. You can call us on 020 7377 5578 or email us at firstname.lastname@example.org.