Adults after Retinoblastoma

Three adults are charring at one of CHECT's support events

Beyond Rb – adults after retinoblastoma

For some people, retinoblastoma can have a lifelong impact. We offer support to our members throughout their lives – through school, teenage years and into adulthood – and we can help with any retinoblastoma -related concerns you may have.

We hold regular social events specifically for adults who had retinoblastoma as a child as well as general events and conferences. You can get more information and find out what support is available to you by emailing us at support@chect.org.uk.


Along with the above information leaflets we also have My retinoblastoma summary: an interactive document where you can record your retinoblastoma history to share with healthcare professionals at medical appointments

Would you like us to send you hard copies of the above leaflets?

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Need help understanding a few of the medical terms?
We’re created a glossary for you below!