Financial help

Grants for families affected by retinoblastoma

We know that ongoing treatment and post-treatment check-ups for a child with retinoblastoma can put an immense strain on family budgets and there is help that may be available to you. There are several organisations that offer financial support to families affected by cancer, and the CHECT support fund also provides grants to families.

Below is some information about the help which may be available to you from either CHECT or other organisations. If you have any questions at all, please don’t hesitate to speak to your CHECT support worker who will be very happy to help.

CHECT support fund

The Childhood Eye Cancer Trust (CHECT) support fund provides a small grant to families in need of financial help as a result of their child’s diagnosis, treatment or screening for retinoblastoma.

The fund is available to UK members of CHECT receiving treatment under the NHS in one of the UK retinoblastoma centres – Royal London Hospital or Birmingham Children’s Hospital. 

To find out more, speak with your Support Worker about the CHECT Support fund. Your Support Worker may be able to suggest other external organisations for further financial support, including Young Lives vs Cancer and the Hospital Travel Scheme at Royal London Hospital, Great Ormond Street and Birmingham Children’s Hospital.

 Applying for benefits

If your child has been affected by retinoblastoma, they may be eligible for benefits, including the Disability Living Allowance (DLA). Support is available to ensure families are receiving all the benefits they are entitled to and there are several organisations that can help you with your application. To find out more, CHECT support worker who will be very happy to help.