Childhood Cancer Awareness Month – Going for Gold!

Childhood Cancer Awareness Month logo

September is Childhood Cancer Awareness Month! The internationally recognised symbol of childhood cancer is the gold ribbon, which is why this September CHECT is ‘going for gold’! Here are just some of the ways you can get involved.

About retinoblastoma

One child a week in the UK is diagnosed with retinoblastoma, a rare form of eye cancer found in children under the age of six.

Although UK survival rates are 98%, just under half of children diagnosed will lose an eye and many more are left with reduced vision. Many children and adults live with the consequences of a delayed diagnosis or the late effects of treatment received. Being affected by a rare childhood cancer also carries a huge emotional impact for everyone concerned.

Childhood Cancer Awareness Month logo
CHECT is marking Childhood Cancer Awareness Month to continue our important work across four areas:
Raising awareness with parents and healthcare professionals so that every child is diagnosed and treated ASAP.

Providing one-to-one support to every family diagnosed with Rb in the UK, as well as to adults affected by Rb.

Funding research into the prevention and treatment of retinoblastoma to produce real changes.

Influencing policy to improve services for patients.

Get involved – raise awareness for Childhood Cancer Awareness Month

Share your story

If you would like to share your retinoblastoma story with other CHECT supporters on our blog, or maybe feature in a media article such as a magazine, newspaper or TV news, please get in touch by emailing isabella.greenwood@chect.org.uk

Spread awareness on social media

We will be posting videos, stories and statistics throughout September, so please like and share our content so that as many people see it as possible. Our hashtag is #TeamCHECT.

Childhood Cancer Awareness Month Facebook frame example

Create awareness videos

We would love to see your TikToks, Instagram reels and YouTube videos which help to spread awareness around retinoblastoma and the signs and symptoms! Please tag us and use the hashtag #TeamCHECT.

Help us spread the word

You can help us to raise awareness in your local community by distributing leaflets and posters in local libraries, health centres, nurseries or anywhere you see fit! You can also request a retinoblastoma pack for professionals to give to GP practices and opticians in your area. Please contact info@chect.org.uk to request packs, leaflets and posters.

you can order leaflets

Get involved – Events

Hold a Crazy Glasses Day at your home, nursery, school or workplace

It’s a quick, easy and fun way to support CHECT and raise funds for babies, children and their families affected by retinoblastoma. Just create your own or purchase a pair of novelty glasses to wear for the day in exchange for a donation – encourage others to do the same. We’ve even created free downloadable glasses templates to get you started.

Find out more about Crazy Glasses Day.



Run for CHECT!                                                                                                     

We have hundreds of local events around the UK you can sign up to – why not make the most of the last days of summer, take on a run and raise sponsorship for CHECT during September? Whether it is a run around Newbury racecourse, a 10K in Sheffield or an Inflatable Obstacle course in Glasgow, we have something to suit you! Check out our events guide for local runs and larger events – and get on your running shoes…

If a longer run is your thing, we have three places left in the Virtual London Marathon. You don’t need to be of marathon fitness to apply – you have 24 hours to complete 26.2 miles – so you can walk it if you like! All participants receive the coveted official T shirt and medal as well, of course, as a CHECT running vest.




Do it yourself                                                                                                         

Of course, you don’t need us to tell you what to do – if you are brimming with fundraising ideas and plans, do give free rein to your creativity and let your imagination take over… Order a fundraising pack and get in touch with us at fundraising@chect.org.uk – we will help you as much as we can, provide you with fundraising resources, and chat you through any issues you may need to consider.


Help us raise vital funds

We’re a small charity that plays a big role in the lives of people affected by Rb. We receive no government funding and rely entirely on voluntary donations to continue our work supporting families, raising awareness of this little-known disease and funding research into prevention and treatment. But we can’t do it without the generosity of our wonderful CHECT members and supporters. Please help in any way you can during Childhood Cancer Awareness Month.

Whether it is buying CHECT merchandise, running a Marathon, getting your employer involved, or donating directly to our work, you will be helping in the fight against retinoblastoma. And if you would like to encourage others to donate, you can order one of our collecting tins or boxes or simply share our special Childhood Cancer Awareness Month QR code with your friends and family by social media, WhatsApp or email – it only takes a minute to give a gift to CHECT.

If you would like to set up a regular gift to help us in our work you can do this on our Donate page.

Ernie Holt in hospital with an eye bandage over his right eye. Still smiling though!

Visit our brand new CHECT merchandise page

We have added a selection of T shirts, running vests and other fundraising merchandise to our page devoted to CHECT branded materials. We even have specially priced Christmas cards for those of you who are super organised…

100% of profits go directly towards our work offering support to every family in the UK with a diagnosis of retinoblastoma, so you can be sure that each item you order will help us to fight Rb. Show your support for CHECT and wear it with pride!

T.shirts are now available on our shop
pin badge
Front view of the CHECT running vest
Collection tin. White with three pictures of CHECT members on and text reading Thank You as well as the CHECT website

There are lots of ways to donate

Get your employer involved!                

If your employer has a Charity of the Year initiative, do find out when they invite suggestions of charities to support – we would love you to nominate CHECT! Find out more, and other ways in which your workplace could support us or email our Fundraising Manager at diane.emery@chect.org.uk.

Donate via our QR code
text to donate
Donate via our website

Simply scan the QR code on your smartphone and follow the instructions to make a donation (you may need to enable QR codes in your camera settings) or click for the pay link. Your gift will come straight to CHECT, without having to download an app. You see exactly who you are paying and give your consent to your bank, via your own banking app – please rest assured that we do not receive your bank details.

Or visit our Donate page to donate online, by bank transfer, set up a regular gift and for details on how to pay in funds collected for CHECT. Thank you!