Adults after Rb
Beyond Rb – adults after retinoblastoma
For some people, retinoblastoma can have a lifelong impact. We offer support to our members throughout their lives – through school, teenage years and into adulthood – and we can help with any Rb-related concerns you may have.
We hold regular social events specifically for adults who had Rb as a child as well as general events and conferences. You can get more information and find out what support is available to you by emailing us at support@chect.org.uk.
Resources
- After retinoblastoma: what happens next? – what families can expect from their long term follow up team
- Genetics of retinoblastoma – learn more about the genetics of Rb
- Second primary tumours – risk factors and looking after yourself
- Rb into adulthood – this article explains the life-long aftercare you can expect to receive
- Planning a family – information about having a family after Rb and the options available
Support
Find out what support is available to you and how to get in touch.
Meeting others
Get in touch with other adults affected by Rb and find out about upcoming events.
Planning a family
Information about having a family after Rb and the options available.