It’s World Retinoblastoma Awareness Week from 12th May – 18th May 2024 – read our awareness story on Arlo.

There are a few different ways that you can help raise awareness and funds to support families affected by retinoblastoma during this important week. Whether you’re organising an event or simply sharing one of our social media posts, we are incredibly grateful to each and every one of you for your support – thank you.

world retinoblastoma awareness week - 12th May - 18th May 2024

Spreading the word

examples of social media posters for world retinoblastoma awareness week

We’ll be posting via our Facebook, Instagram and Twitter channels throughout World Retinoblastoma Awareness Week. Please help us to spread the word by liking and sharing our posts, photos and videos.

Our hashtag for the week is #RbWeek so if you decide to share your own story or post anything about retinoblastoma, or what you’re up to during the week, please use this.

You can also help us to spread awareness by handing out our signs and symptoms leaflets – please request yours today! Thank you.


Crazy Glasses Day

a girl in a CHECT top with crazy glasses on

Crazy Glasses Day is a really fun and easy way to get involved and help raise funds. Simply make or buy a pair of wacky specs and get your family, friends, schoolmates or colleagues to do the same for a £2 donation.

You can find out more about this event and get free resources, including downloadable glasses templates, on our Crazy Glasses page.

If you can’t hold a #CrazyGlasses event during World Retinoblastoma Awareness Week don’t worry, we’ll be running this event throughout the year so any time that works for you is great with us.

If you’d like some merchandise – such as collection tins, T.shirts or balloons – click on our merchandise page.

Or why not contact our fundraising team to discuss more ideas by calling 020 7377 5578 or email the team, at fundraising@chect.org.uk.


World Retinoblastoma Awareness Week Resource Kit

Please help us to raise awareness by sharing our prewritten content on your social media channels during World Retinoblastoma Awareness Week – be sure to tag us on Facebook, Twitter, Instagram, LinkedIn and TikTok and use our hashtag #RbWeek. 

To use our images, either right click and save them, screenshot them, or if you are having difficulties – email isabella.greenwood@chect.org.uk who will send them via email. Thank you for your support!

Remember to let us know what you’re up to with the hashtag #RbWeek – we’d love to share it on our social media channels!

Please help us spread awareness of retinoblastoma by sharing the images and text below.

Sunday 12th May 2024

Today marks the start of World Retinoblastoma Awareness Week! Would you know the signs and symptoms of retinoblastoma (childhood eye cancer)? Learn more at chect.org.uk #RbWeek

Text reads: do you know the signs and symptoms of retinoblastoma, childhood eye cancer?

Monday 13th May 2024

If you see a white glow in the eye, a white pupil or white reflection in a photo where a flash has been used, or when your child is in artificial light or a darkish room, visit a GP or optometrist ASAP as this is the most common sign of retinoblastoma (childhood eye cancer) #RbWeek

the text reads A white glow in the eye can be a sign of childhood eye cancer

Tuesday 14th May 2024

A squint, where the eyes do not look in the same direction, can sometimes be a symptom of retinoblastoma. In many cases, it’s nothing more than a squint but all children should be checked out just in case, as it’s the second most common sign of retinoblastoma (childhood eye cancer) #RbWeek

text reads 'a squint can be a sign of childhood eye cancer'

Wednesday 15th May 2024

The iris – the coloured part of the eye – can change colour in one eye, sometimes only in one area, when a child has retinoblastoma (childhood eye cancer). If you notice a change in the colour of your baby or child’s iris, let a GP or optometrist know #RbWeek

text reads a change in iris colour can be a sign of childhood eye cancer

Thursday 16th May 2024

Your child’s vision may begin to deteriorate, or they may have had poor vision from birth. You may notice that they don’t focus, fix and follow as well as other children of the same age. You should visit a GP or optometrist and request a fundal (red) reflex test #RbWeek

text reads a deterioration in sight can be a sign of childhood eye cancer

Friday 17th May 2024

In a photo where one eye has “red eye” (which is normal), the other eye may look black. This can be a sign of retinoblastoma (childhood eye cancer). A fundal (red) reflex test can help to show if further examination is required – so request this test is done by an optometrist or GP #RbWeek

the text reads The absence of a red eye in a photo (where flash has been used and one eye has red eye) can be a sign of childhood eye cancer

Saturday 18th May 2024

If you spot a sign or symptom of childhood eye cancer (known as retinoblastoma), have your child’s eyes checked out by a GP or optometrist as soon as possible. The most common signs include a white glow in the pupil of the eye or a squint, where the eyes do not look in the same direction. Visit chect.org.uk for more information #RbWeek

If you spot a sign or symptom of retinoblastoma, request a fundal (red) reflex test from your GP or optometrist

Thank you for helping us to spread awareness of retinoblastoma!

Pathways to Diagnosis Information

Head over to our blog to read the 2023 Pathways to Diagnosis results.