Diagnosed with bilateral retinoblastoma 33 years ago, Aazmeen shares her story of how inheriting the Rb gene has had an impact on her life. It was March 1987, I was eight months old when my parents took me to the GP who then referred me to an eye clinic based in...
Nicole shares her retinoblastoma story, from her lengthy treatment and struggles with being self-conscious at school, to finally embracing her artificial eye and becoming the confident woman she is today. In February 1992, two months after I was born, my mum took me...
Mum Pippa talks about her daughter Amber’s chemotherapy treatment and Rb journey. This blog may be helpful to other parents whose child is, or will be, going through something similar to treat their retinoblastoma. Amber was diagnosed at 21 months, after a...
Charlie’s son James was diagnosed with unilateral retinoblastoma at two years old. As a result, his left eye was removed (enucleated) to stop the cancer from spreading. This blog may be helpful to other parents who are facing the prospect of having their...
Mum Michelle tells us about her son Matthew’s retinoblastoma journey – from his diagnosis, to having his eye removed (enucleated) and later treated with chemotherapy to combat the remaining cancerous cells. This article may be useful for parents also facing a...
A four-year-old was diagnosed with the rare eye cancer retinoblastoma after her mum saw her tumour ‘glowing’ in a flash photo. It was a family member who first noticed that Nancy Smith’s eye would sometimes look towards her nose and then suddenly appear fine again....
