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Practical advice for the cost of living challenges

Practical advice for the cost of living challenges

Families across the UK are facing a cost of living crisis as a result of the rising cost of goods and energy and high inflation. People with disabilities often have higher additional costs from using extra heating, water, personal care or needed specialist equipment...
It’s all change in the genetics service!

It’s all change in the genetics service!

We have been sad to say goodbye to Dr Trevor Cole and Dr Elisabeth Rosser who have given their invaluable genetics support to so many families over the years. Here Dr Cole and Dr Rosser reflect on their time with the UK Rb services, and we welcome their successors, Dr...
Meet our new support worker Lena!

Meet our new support worker Lena!

Hi everyone! I am Lena and have recently joined the CHECT team as a Support Worker at the Royal London Hospital. For the past 15 years my working life has been spent in the charities sector, beginning with Save the Children then Living Earth Foundation and most...
My hearing test experience at GOSH

My hearing test experience at GOSH

Young CHECT member Suri (age 10) was born with bilateral Rb. As a result of having chemotherapy as a very young child, he has had to visit Great Ormond Street (GOSH) for a hearing test. He kindly shares his blog with us about the experience. I have been through many...