Families across the UK are facing a cost of living crisis as a result of the rising cost of goods and energy and high inflation. People with disabilities often have higher additional costs from using extra heating, water, personal care or needed specialist equipment...
We have been sad to say goodbye to Dr Trevor Cole and Dr Elisabeth Rosser who have given their invaluable genetics support to so many families over the years. Here Dr Cole and Dr Rosser reflect on their time with the UK Rb services, and we welcome their successors, Dr...
A new type of in-pregnancy testing called Non-Invasive Prenatal Diagnosis (NIPD) is now available for families affected by the heritable (genetic) form of retinoblastoma. This article explains more about the process, the benefits it can provide, and who is eligible....
Hi everyone! I am Lena and have recently joined the CHECT team as a Support Worker at the Royal London Hospital. For the past 15 years my working life has been spent in the charities sector, beginning with Save the Children then Living Earth Foundation and most...
Young CHECT member Suri (age 10) was born with bilateral Rb. As a result of having chemotherapy as a very young child, he has had to visit Great Ormond Street (GOSH) for a hearing test. He kindly shares his blog with us about the experience. I have been through many...
Louise shares how her retinoblastoma has not held her back, but also how important it is to be aware of the risks of adult second cancers. My Rb journey started back in November 1973. I was eight months old when my Mum noticed my eyes were watering a lot and that I...