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Protective eyewear for children with monocular vision

Protective eyewear for children with monocular vision

When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem, Lead Orthoptist for Retinoblastoma Services at The Royal...
Sisters are doing it for themselves

Sisters are doing it for themselves

Barretstown offers free, specially designed camps for families affected by illness – including siblings. Here Megan Deakin, big sister of Eliza who was diagnosed with Rb as a baby, gives us the lowdown on what makes this holiday camp so great…  My name is Megan and I...
Educational support after Rb

Educational support after Rb

Educational support for children affected by Rb Marie Lloyd is a Qualified Teacher of Children and Young People with Visual Impairment, and mum to Daisy who had retinoblastoma. She outlines the educational support available to families affected by Rb and recent...
My eye? What about it?

My eye? What about it?

Mum Melanie Cassidy reveals how, with the help of some cuddly friends, her son Edward took to his new eye like a duck to water… Edward was 19 months old when he was diagnosed with unilateral retinoblastoma. A week before the operation to remove his right eye, I was...
After retinoblastoma – what happens next?

After retinoblastoma – what happens next?

Dr Helen Jenkinson, a Consultant Paediatric Oncologist at Birmingham Children’s Hospital, highlights what retinoblastoma survivors and their families can expect from their long term follow up team… Every year in the UK around 40-50 children are diagnosed with...
Retinoblastoma survivor needs help with new research project

Retinoblastoma survivor needs help with new research project

Nicole Beddard, a master’s student who had bilateral retinoblastoma as a child, has set up a research project which she hopes will help families affected by Rb in the future. She’s looking for parents to get involved… Hello, my name is Nicole Monique Beddard and when...