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Early years and visual impairment

Early years and visual impairment

A diagnosis of bilateral retinoblastoma can sometimes mean that your child may have some problems with their eyesight. This may result in the need for additional help and support as your child is growing up. We hope you will find the information here helpful and...
Monocular vision

Monocular vision

Monocular vision means ‘sight in one eye only’. This information outlines some of the challenges that some children with monocular vision may face… Many children learn to cope very well with sight in one eye only and, in general, the earlier the child loses their eye...
Protective eyewear for children with monocular vision

Protective eyewear for children with monocular vision

When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem, Lead Orthoptist for Retinoblastoma Services at The Royal...
Sisters are doing it for themselves

Sisters are doing it for themselves

Barretstown offers free, specially designed camps for families affected by illness – including siblings. Here Megan Deakin, big sister of Eliza who was diagnosed with Rb as a baby, gives us the lowdown on what makes this holiday camp so great…  My name is Megan and I...
Educational support after Rb

Educational support after Rb

Educational support for children affected by Rb Marie Lloyd is a Qualified Teacher of Children and Young People with Visual Impairment, and mum to Daisy who had retinoblastoma. She outlines the educational support available to families affected by Rb and recent...
My eye? What about it?

My eye? What about it?

Mum Melanie Cassidy reveals how, with the help of some cuddly friends, her son Edward took to his new eye like a duck to water… Edward was 19 months old when he was diagnosed with unilateral retinoblastoma. A week before the operation to remove his right eye, I was...