Dear supporter, This World Retinoblastoma Awareness Week 2019 (12th-18th May), the Childhood Eye Cancer Trust is holding a drop-in event at Westminster on Wednesday 15th May. We are inviting MPs to come along to meet parents of children and adults affected by Rb, to...
Being diagnosed with retinoblastoma back in 1950, Greg Ovens recalls his life experiences including fond memories of his ‘days out’ at Moorfields Eye Hospital with his father. As I approach my 70th Birthday, I have been reflecting on the highs, lows, ups,...
A moving and inspirational TED Talk from James Morley-Smith, one of our CHECT supporters, whose son lost his sight after being diagnosed with retinoblastoma. You can watch the full video below: Taken from the TED website: After his son lost his sight, design...
A mother of identical twins was shocked to learn that a strange ‘glow’ in one of her daughter’s eyes was actually retinoblastoma. Identical twin Indiana was diagnosed with retinoblastoma (Rb) when she was just under four months old. After a visit to a health visitor,...
Diagnosed with retinoblastoma (Rb) at 14 months old, Alex tells us about the “roller coaster ride” that is his life, but ultimately how losing your sight is not the end of life’s wonderful experiences. Having been diagnosed with Rb as a baby, it’s impossible to say if...