Early years and visual impairment
A diagnosis of bilateral retinoblastoma can sometimes mean that your child may have some problems with their eyesight. This may result in the need for additional help and support as your child is growing up. We hope you will find the information here helpful and...
Sisters are doing it for themselves
Barretstown offers free, specially designed camps for families affected by illness – including siblings. Here Megan Deakin, big sister of Eliza who was diagnosed with Rb as a baby, gives us the lowdown on what makes this holiday camp so great… My name is Megan and I...
Educational support after Rb
Educational support for children affected by Rb Marie Lloyd is a Qualified Teacher of Children and Young People with Visual Impairment, and mum to Daisy who had retinoblastoma. She outlines the educational support available to families affected by Rb and recent...
My eye? What about it?
Mum Melanie Cassidy reveals how, with the help of some cuddly friends, her son Edward took to his new eye like a duck to water… Edward was 19 months old when he was diagnosed with unilateral retinoblastoma. A week before the operation to remove his right eye, I was...