Mum Pippa talks about her daughter Amber’s chemotherapy treatment and Rb journey. This blog may be helpful to other parents whose child is, or will be, going through something similar to treat their retinoblastoma. Amber was diagnosed at 21 months, after a...
Charlie’s son James was diagnosed with unilateral retinoblastoma at two years old. As a result, his left eye was removed (enucleated) to stop the cancer from spreading. This blog may be helpful to other parents who are facing the prospect of having their...
Mum Michelle tells us about her son Matthew’s retinoblastoma journey – from his diagnosis, to having his eye removed (enucleated) and later treated with chemotherapy to combat the remaining cancerous cells. This article may be useful for parents also facing a...
We were visited by the brilliant Ellen MacArthur Cancer Trust last week, who shared this lovely video of Isaac with us.Isaac was diagnosed with retinoblastoma and is living with a visual impairment. He explains how the Ellen MacArthur Cancer Trust has helped him to...
As we near the end of one school year, many are already looking to the new start in August or September. Whether starting nursery for the first time, moving up to primary or transitioning to secondary, the new school year can bring new challenges. Will other students...
When your child is diagnosed with retinoblastoma, so much energy goes into looking after them and the rest of the family that it can be easy to forget to take care of yourself. But, as Lesley Geen, CHECT support worker, explains, this is important too…Finding out that...
