UPDATE: Shortly after this story was published, Laila, Ollie and Noah were featured on BBC South East Today. The BBC kindly sent a recording of the piece to us to share with everyone: Christmas is supposed to be a time of joy and celebration, but for Laila Gaudry and...
Kyle Bonanno’s family travelled from Malta to the UK for his Rb treatment when he was two years old. Now aged 20, he shares his experience of growing up with an artificial eye. It all started when my mum was bathing two-year-old me and noticed an unusual glow in...
US-born Eve Smyth is a 62-year-old second-generation Rb survivor living in Scotland. She shares her advice, as well as her fascinating story of growing up blind and how she managed to find the strength to adopt after tragically losing her son to trilateral...
Josh Schlanker’s family moved across to the other side of the world to the UK after he was diagnosed with unilateral Rb. Now 17 years old, his Rb experience certainly has not held him back especially when it comes to succeeding in sports and academia. My Rb has...
We previously caught up with Nicole Beddard in 2016 when she undertook a project which explored the experiences of parents with children who have had retinoblastoma. Having had Rb herself, Nicole was particularly passionate about this project. With her MSc Health...
17-year-old Beth Holman shares her experiences of growing up with a visual impairment having been treated for bilateral Rb as a baby. I don’t remember my retinoblastoma treatment. I remember the check-ups – long days, the anaesthetic and the McDonald’s I always...