By Dr Deanna Gibbs, Research Consultant for Nursing, Midwifery and Allied Health Professionals at Barts Health NHS Trust and Principle Investigator of the research project. From reports and feedback from parents, we recognised that there was a gap in the support and...
Friendships forged out of shared experiences, particularly those which involve hardship, are often the ones which endure the test of time. Retinoblastoma was the catalyst for one such alliance when, in 1977, three families found themselves brought together to undergo...
Recent investigations of hospital and other historical records by member Iain Riddell show how cases, treatment and discussion of retinoblastoma, then known as ‘glioma of the Retina’, can be traced back to Victorian times… “The earliest likely patient recorded as...
The Ellen MacArthur Cancer Trust, which runs sailing trips for children and young people who have, or have had, cancer has reserved two places for the Childhood Eye Cancer Trust in 2018. CHECT Champion Ernie Brown, 10, who has taken part in two trips, tells us what...
It’s World Retinoblastoma Awareness Week from 13-19 May 2018 and we’ve launched our latest media campaign to raise awareness of retinoblastoma among parents and healthcare professionals. The campaign features little Harley Shevill, from Motherwell, North...
Two top barber and hairdressing trainers who have both been affected by retinoblastoma have joined forces to help raise awareness of the little known condition. Mike Taylor’s daughter Alice was diagnosed in May last year, when she was just two years old, and nearly a...
