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A step back in time

A step back in time

Recent investigations of hospital and other historical records by member Iain Riddell show how cases, treatment and discussion of retinoblastoma, then known as ‘glioma of the Retina’, can be traced back to Victorian times… “The earliest likely patient recorded as...
Rb Week 2018

Rb Week 2018

It’s World Retinoblastoma Awareness Week from 13-19 May 2018 and we’ve launched our latest media campaign to raise awareness of retinoblastoma among parents and healthcare professionals. The campaign features little Harley Shevill, from Motherwell, North...
Amazing humans

Amazing humans

Erin Gentry was two years old when she was diagnosed with retinoblastoma (Rb), she needed lifesaving surgery to remove her left eye and stop the cancer spreading, followed by chemotherapy. Fast forward five years and Erin has been featured as part of BBC 3’s Amazing...
See for yourself

See for yourself

Zoe Hanscombe was diagnosed with retinoblastoma when she was 5 months old. She shares her experience of using the OrCam My Reader… I was born in summer of 1976 and at 5 months old it was discovered I had bilateral retinoblastoma. I had my left eye removed and external...
Champion siblings

Champion siblings

Two children from the same family have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled against an extremely rare form of cancer. On Christmas Eve 2014 Tyraah Bell-Lama from Tilehurst, Reading, was...