It’s World Retinoblastoma Awareness Week from 13-19 May 2018 and we’ve launched our latest media campaign to raise awareness of retinoblastoma among parents and healthcare professionals.
The campaign features little Harley Shevill, from Motherwell, North Lanarkshire, who was diagnosed with retinoblastoma when she was 10 months old. The only signs that anything was wrong were a squint and a white reflection.
There are a few different ways that you can help raise awareness and funds to support families affected by Rb during this important week, which we’ve shared below. Whether you’re organising an event or simply sharing one of our social media posts, we are incredibly grateful to each and every one of you for your support – thank you.
Spreading the word
We’ll be posting on our Facebook and Twitter pages throughout Rb week. Please help us to spread the word by liking and sharing our posts, photos and videos.
Our hashtag for the week will be #RbWeek so if you decide to share your own story or post anything about retinoblastoma, or what you’re up to during the week, please use this.
Crazy Glasses Day
Crazy Glasses Day is a really fun and easy way to get involved and help raise funds. Simply make or buy a pair of wacky specs and get your family, friends, schoolmates or colleagues to do the same for a £2 donation.
You can find out more about this event and get free resources, including downloadable glasses templates, on our Crazy Glasses page.
If you can’t hold a #CrazyGlasses event during Rb week don’t worry, we’ll be running this event throughout the year so any time that works for you is great with us.
Thanks so very much to all of you who are taking part in, or holding your own, events throughout Rb week. They include:
• Eight people taking part in the Superhero Run
• CHECT stands at Barber UK
• Two runners in the Leeds Half Marathon
• A sponsored walk for CHECT
We are really looking forward to hearing what you’ll be up to, so please make sure you send us your stories and tag us in your social media posts.