Do you remember little Eliza Thomas? She was the face of our #InTheDark Retinoblastoma Awareness Week campaign back in 2016. Eliza was three years old when she was diagnosed with retinoblastoma after a routine eye test and she had her left eye removed to save her...
Recent investigations of hospital and other historical records by member Iain Riddell show how cases, treatment and discussion of retinoblastoma, then known as ‘glioma of the Retina’, can be traced back to Victorian times… “The earliest likely patient recorded as...
It’s World Retinoblastoma Awareness Week from 13-19 May 2018 and we’ve launched our latest media campaign to raise awareness of retinoblastoma among parents and healthcare professionals. The campaign features little Harley Shevill, from Motherwell, North...
One in ten babies and children in the UK with an aggressive type of eye cancer have to wait more than six months to be diagnosed, according to new figures. The Childhood Eye Cancer Trust (CHECT) found that 11% of children diagnosed with retinoblastoma in 2017 had a...
Erin Gentry was two years old when she was diagnosed with retinoblastoma (Rb), she needed lifesaving surgery to remove her left eye and stop the cancer spreading, followed by chemotherapy. Fast forward five years and Erin has been featured as part of BBC 3’s Amazing...
Zoe Hanscombe was diagnosed with retinoblastoma when she was 5 months old. She shares her experience of using the OrCam My Reader… I was born in summer of 1976 and at 5 months old it was discovered I had bilateral retinoblastoma. I had my left eye removed and external...
