Teens and young adults
Bringing together teens and young adults affected by retinoblastoma
Because retinoblastoma is rare, it can be difficult to get to meet-up with other young people who have been affected by it. Each year we hold a mixture of in-person and online events for our teen and young adult (TYA) members to meet in informal and relaxed settings, to get to know others who have been through similar experiences. Friends and siblings are very welcome too!
We have a dedicated website called CHECT TYA providing support and information to anyone aged 13-24 who had retinoblastoma when they were younger. It’s a place to read stories from other young people and find out the latest news about retinoblastoma and the work of CHECT, as well as help with mental health, body image, relationships and talking about your retinoblastoma.
We also have a WhatsApp group for TYA members aged 16 and over – ask your support worker for details.
You may also find it helpful to read other young people’s experiences in the ‘Stories & News’ section on the website.
Useful links
British Blind Sport – National charity for children and adults with sight loss.
Children’s & Young People’s Cancer Association (CCLG) – Funds and supports research into childhood cancers, and helps young patients and their families with their information resources.
Changing Faces – Visual difference charity.
Ellen MacArthur Cancer Trust – A national charity that rebuilds confidence after cancer, using sailing to support, empower and inspire young people between the ages of 8-24.
Guide Dogs – Provide support for children with visual impairments, not just guide dogs.
LOOK – Supports children and young people with visual impairments
RNIB – National sight loss charity
King’s Trust (formerly Prince’s Trust) – Helps people aged 11 to 30 to develop essential life skills, get ready for work and access job opportunities.
SCOPE – Here to create an equal future with disabled people.
Sight Scotland – Scotland’s charity for blind and visually impaired people.
Teenage Cancer Trust – Supporting 13-24 year olds with cancer.
Thomas Pocklington Trust – Supporting blind and partially sighted people, particularly around education, training and employment.
VICTA – Provides support to children and young adults from 0 to 29 who are blind or partially sighted and their families.
Visibility Scotland – Supports visually impaired people across Scotland.
Young Lives vs Cancer – The UK’s largest children’s cancer charity provides specialist nurses, doctors, play specialists, Homes from Home, social care, family support, youth services, holidays and grants.
Youth Employment UK – Experts on youth employment and unemployment.
For some people, retinoblastoma can have a lifelong impact. We offer support to our members throughout their lives and we can help with any retinoblastoma-related concerns you may have.
If you’d like to talk to a CHECT support worker, click below or call us on 020 7377 5578