The next World Retinoblastoma Awareness Week will be 10th May – 16th May 2026.
There are a few different ways that you can help raise awareness and funds to support families affected by retinoblastoma during this important week. Whether you’re organising an event or simply sharing one of our social media posts, we are incredibly grateful to each and every one of you for your support – thank you.
Spreading the word
We’ll be posting via our Facebook, Instagram, X, LinkedIn and TikTok channels throughout World Retinoblastoma Awareness Week. Please help us to spread the word by liking and sharing our posts, photos and videos.
Our hashtag for the week is #RbWeek so if you decide to share your own story or post anything about retinoblastoma, or what you’re up to during the week, please use this.
You can also help us to spread awareness by handing out our signs and symptoms leaflets – please request yours today! Why not ask your local opticians or GPs to display some? Thank you.
Crazy Glasses Day
Crazy Glasses Day is a really fun and easy way to get involved and help raise funds. Simply make or buy a pair of wacky specs and get your family, friends, schoolmates or colleagues to do the same for a £2 donation.
You can find out more about this event and get free resources, including downloadable glasses templates, on our Crazy Glasses page.
If you can’t hold a #CrazyGlasses event during World Retinoblastoma Awareness Week don’t worry, we’ll be running this event throughout the year so any time that works for you is great with us.
If you’d like some merchandise – such as collection tins, T.shirts or balloons – click on our merchandise page.
Or why not contact our fundraising team to discuss more ideas by calling 020 7377 5578 or email the team, at fundraising@chect.org.uk.
More fundraising ideas
- Introducing CHECT’s Gaming for Good. You can now host a livestream, organise a gaming challenge or rally your friends online to support CHECT. To find out more, contact us at fundraising@chect.org.uk
- Why not challenge yourself and take part in one of our many events including the Great North Run, the National 3 Peaks Challenge or a skydive? To learn more, visit Challenge events | Childhood Eye Cancer Trust
- We have lots of fun activities for schools & nurseries in our fundraising pack
- Or why not raise money through an activity you love, whether that’s through a coffee morning or bake sale, a collection in your local community or with your local club.
Our Fundraising Manager is here to help! Please contact us at fundraising@chect.org.uk or by calling 020 7377 5578 for more information or help.
World Retinoblastoma Awareness Week Resource Kit
Please help us to raise awareness by sharing our prewritten content on your social media channels during World Retinoblastoma Awareness Week – be sure to tag us on Facebook, X, Instagram, LinkedIn and TikTok and use our hashtag #RbWeek.
To use our images, either right click and save them, screenshot them, download them in the different formats below or if you are having difficulties – email isabella.greenwood@chect.org.uk who will send them via email. Thank you for your support!
Remember to let us know what you’re up to with the hashtag #RbWeek – we’d love to share it on our social media channels!
Please help us spread awareness of retinoblastoma by sharing the images and text below.
Sunday
Today marks the start of World Retinoblastoma Awareness Week! Would you know the signs and symptoms of retinoblastoma (childhood eye cancer)? Learn more at chect.org.uk #RbWeek
Monday
If you see a white glow in the eye, a white pupil or white reflection in a photo where a flash has been used, or when your child is in artificial light or a darkish room, visit a GP or optometrist ASAP as this is the most common sign of retinoblastoma (childhood eye cancer) #RbWeek
Tuesday
A squint, where the eyes do not look in the same direction, can sometimes be a symptom of retinoblastoma. In many cases, it’s nothing more than a squint but all children should be checked out by an optometrist or GP just in case, as it’s the second most common sign of retinoblastoma (childhood eye cancer) #RbWeek
Wednesday
The iris – the coloured part of the eye – can change colour in one eye, sometimes only in one area, when a child has retinoblastoma (childhood eye cancer). If you notice a change in the colour of your baby or child’s iris, let a GP or optometrist know #RbWeek
Thursday
Your child’s vision may begin to deteriorate, or they may have had poor vision from birth. You may notice that they don’t focus, fix and follow as well as other children of the same age. You should visit a GP or optometrist and request a fundal (red) reflex test #RbWeek
Friday
In a photo where one eye has “red eye” (which is normal), the other eye may look black. This can be a sign of retinoblastoma (childhood eye cancer). A fundal (red) reflex test can help to show if further examination is required – so request this test is done by an optometrist or GP #RbWeek
Saturday
If you spot a sign or symptom of childhood eye cancer (known as retinoblastoma), have your child’s eyes checked out by a GP or optometrist as soon as possible. The most common signs include a white glow in the pupil of the eye or a squint, where the eyes do not look in the same direction. Visit chect.org.uk for more information #RbWeek
Thank you for helping us to spread awareness of retinoblastoma!
Pathways to Diagnosis Information
Head over to our blog to read the 2024 Pathways to Diagnosis results.