We are so sad to share the news that CHECT member Robin Williams passed away earlier this month. Robin was diagnosed with retinoblastoma at nine months old, losing his first eye at the age of two and a half, and his second eye aged four. His sporting career started...
A brother and sister have received prestigious awards in recognition of the courage and bravery they displayed while one of them faced an extremely rare form of cancer. In September 2024, Hollie Robinson-Mellor from St Helens, Merseyside, was diagnosed with...
A mum from Wales is urging other parents to look out for the tell-tale signs of eye cancer this Christmas after her eight-month-old daughter, Raye, was diagnosed with retinoblastoma – a rare eye cancer that typically affects children under the age of six. Raye’s...
To celebrate our 100th issue of InFocus magazine, we spoke to Kirsteen, who has the genetic type of retinoblastoma, about her experiences of retinoblastoma and CHECT through the years:We have a long history of retinoblastoma (Rb) with many members of our family,...
We spoke to Lila’s mum, Miranda, about her experiences with retinoblastoma: My partner and I had never heard of retinoblastoma until we started researching our daughter’s symptoms online, which led us to information about retinoblastoma and what to look out for. Lila...
Mum Mariah, from America, tells us about her son Theo’s experiences of retinoblastoma this World Sight Day: Theo has just turned 10, hitting those double digits! He was diagnosed with retinoblastoma at the age of two and a half, after his father and I noticed a glow...