From being diagnosed with retinoblastoma to representing England on the international stage, Adam Lione’s shares his story with us. Can you tell us about your retinoblastoma diagnosis? I was diagnosed at 16 weeks old, and early symptoms were that I could not...
A dad from London is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day after his two-year-old daughter, Shuhd, was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...
A huge thank you to Flynn and his mum Katie for helping us to raise awareness of retinoblastoma across the media, radio and TV. Flynn Fairhurst was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six-years-old, in 2023...
When Martha was 2 years old, she was diagnosed with retinoblastoma, a rare eye cancer. To treat it, she had her left eye removed and underwent chemotherapy. Now 9 years old, Martha is healthy and thriving, and has told CHECT what life is like for her now. “Hi my...
In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. Despite ongoing treatment for four years, David sadly died in 1988. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into Rb,...
We spoke to Candice, the mum of BAFTA-nominated Lucy, who found fame on The Piano about Lucy’s experiences with retinoblastoma, and life now as a musician with a newly released album. Can you tell us about Lucy’s diagnosis of retinoblastoma, any signs that...
