In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. Despite ongoing treatment for four years, David sadly died in 1988. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into Rb,...
We spoke to Candice, the mum of BAFTA-nominated Lucy, who found fame on The Piano about Lucy’s experiences with retinoblastoma, and life now as a musician with a newly released album. Can you tell us about Lucy’s diagnosis of retinoblastoma, any signs that...
A mum and dad from Cheshire are urging other parents to look out for the tell-tale signs of eye cancer this Christmas after their two-year-old son, Thomas, was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...
We spoke to Felicity – the mother of Adaline and sister of Paralympian Stephen Clegg – who discussed the experience of watching her brother win gold at the Paralympic Games in Paris. She reflects on the excitement of taking Adaline to see Stephen compete while...
In 2021 we shared Imogen’s retinoblastoma story. We spoke to her mum Lorna to see how she is doing now. “Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months went through intensive treatment...
Hi! My name is Jaxon.I am eight-years-old. I am from Dublin, Ireland. I travel over to Birmingham Children’s Hospital for my appointments. I was diagnosed with bilateral retinoblastoma when I was two-years-old. I have had many different types of treatments.Ten...
