100th Issue of InFocus Magazine: Kirsteen’s Story

100th Issue of InFocus Magazine: Kirsteen’s Story

To celebrate our 100th issue of InFocus magazine, we spoke to Kirsteen, who has the genetic type of retinoblastoma, about her experiences of retinoblastoma and CHECT through the years:We have a long history of retinoblastoma (Rb) with many members of our family,...
Lila’s retinoblastoma story

Lila’s retinoblastoma story

We spoke to Lila’s mum, Miranda, about her experiences with retinoblastoma: My partner and I had never heard of retinoblastoma until we started researching our daughter’s symptoms online, which led us to information about retinoblastoma and what to look out for. Lila...
World Sight Day: Theo’s retinoblastoma story

World Sight Day: Theo’s retinoblastoma story

Mum Mariah, from America, tells us about her son Theo’s experiences of retinoblastoma this World Sight Day: Theo has just turned 10, hitting those double digits! He was diagnosed with retinoblastoma at the age of two and a half, after his father and I noticed a glow...
Natalie’s retinoblastoma story

Natalie’s retinoblastoma story

Natalie, who had retinoblastoma when she was three-years-old, speaks to us about life then and now. I was three years old when my mum noticed a white shield go over my eye while I was in the bath. My mum took me to the local doctors to be told she was a fussy mother...