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Understanding how having Rb affects how you think and feel

Understanding how having Rb affects how you think and feel

We spoke to Nicola O’Donnell about her CHECT-funded research, ‘Understanding how having Rb affects how you think and feel’: Retinoblastoma is a rare eye cancer affecting 40-50 UK children a year. Although it is highly curable, this experience can...
Pathways to Diagnosis 2023

Pathways to Diagnosis 2023

Pathways to Diagnosis Each year, the Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK: the symptoms they noticed; the healthcare professionals they saw; and how long it took them to reach one of the...
Nominate your CHECT Champion Dad!

Nominate your CHECT Champion Dad!

We often feature our wonderful CHECT mums in our stories, and we feel it’s important to recognise those amazing dads out there who go above and beyond to support their families as well. Father’s Day is fast approaching and we’re asking children (maybe with a bit...
Family event: Discover Children’s Story Centre 

Family event: Discover Children’s Story Centre 

On 23 March, 14 CHECT families braved the rain for a meet-up at Discover Children’s Story Centre in East London. Unbelievably, at just the moment everyone was due to arrive, there was a full evacuation of Stratford Station! However, that wasn’t going to deter us, and...
New CHECT research announced

New CHECT research announced

We are delighted to be able to announce our latest retinoblastoma research award to Professor Yellapantula for his project “Prognostic stratification and early detection of relapsed retinoblastoma using aqueous humour based cfDNA screening”. Cancers shed DNA...
Ivy’s glittery eye!

Ivy’s glittery eye!

We were delighted to receive this heartwarming message from Ivy’s mum Ewelina, after Ivy lost her eye to retinoblastoma. Ewelina said, “My daughter got inspired by other kids showing off their special artificial eyes so she asked her ocular prosthetist in...