We had a lovely family day at Chester Zoo on 6 June, thanks to donated tickets from the Community Connection Scheme. It was great to see lots of familiar faces from previous meet-ups, as well as some new families. Everyone got there bright and early to meet and chat –...
Ever wondered what it’s like to design your own eye? We sat down with CHECT members who’ve been through the incredible journey of having a bespoke artificial eye created just for them – and heard the fascinating, deeply personal stories behind what...
Each year, the Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK: the symptoms they noticed; the healthcare professionals they saw; and how long it took them to reach one of the specialist Rb centres...
While retinoblastoma (Rb) can be devastating anywhere, its effects aren’t spread equally. In countries like the UK, research has shown that nearly all children diagnosed with retinoblastoma will survive. In low-income countries however, such as those in Africa and...
Reading opens doors to imagination, learning and confidence. For children and young people with visual impairment, accessible books help make sure those doors are open to everyone. There are now more ways than ever to enjoy stories. Books can be read in braille or...
Mum Fran shared some lovely photos of her son Reggie and how he is getting on: “Reggie has been screened for retinoblastoma (Rb) since he was 2 weeks old, as he carried the gene with a high risk, due to myself having had Rb as a baby. He’s had 17 general...
