Actor and artist Bruce Horak, who is currently playing Hemmer in Star Trek, was diagnosed with retinoblastoma (Rb) at just one-years-old. Bruce has just 9% vision but has made a name for himself as an incredible artist and actor. Here, Bruce discusses his experience...
Would you like to join us for a fun day out in Regent’s Park? We had such an amazing Sunday morning earlier in the month, at this year’s RunThrough event, that we are already starting to plan for next year! On a very hot 10th July, 33 CHECT runners, their friends,...
A new type of in-pregnancy testing called Non-Invasive Prenatal Diagnosis (NIPD) is now available for families affected by the heritable (genetic) form of retinoblastoma. This article explains more about the process, the benefits it can provide, and who is eligible....
Ocularist John Pacey-Lowrie talks us through his 45-year experience working with prosthetic eyes in this blog series, starting right from the beginning of his journey. An unusual profession, a demanding profession and above all a caring profession…45 years as an...
Megan shares with us her retinoblastoma story, and how why she decided she wanted to have a golden prosthetic eye. I was diagnosed with retinoblastoma at three-months-old, by the time I was one I had gone through six rounds of chemotherapy and cryotherapy, two blood...
The Hungerford family would like to extend a warm thank you to everybody who sent in memoirs and left kind messages in regards to the late John Hungerford – you can read our tribute here. A memorial service celebrating the professional life and legacy of John...
