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Pathways to Diagnosis 2024 

Pathways to Diagnosis 2024 

Each year, the Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK: the symptoms they noticed; the healthcare professionals they saw; and how long it took them to reach one of the specialist Rb centres...
2024 CHECT Members’ Survey Feedback 

2024 CHECT Members’ Survey Feedback 

Thank you so much to everyone who took part in our 2024 CHECT Members’ Survey.  For the first time this year, we decided to look at responses in terms of three main age groups* to give more specific feedback on the experiences and priorities of different age / stage...
Nominate your CHECT Champion Dad!

Nominate your CHECT Champion Dad!

We often feature our wonderful CHECT mums in our stories, and we feel it’s important to recognise those amazing dads out there who go above and beyond to support their families as well. Father’s Day is fast approaching and we’re asking children (maybe with a bit...
Our CHECT Champion Dads 2024

Our CHECT Champion Dads 2024

We often feature our wonderful CHECT mums in our stories, and we feel it’s important to recognise those amazing dads out there who go above and beyond to support their families as well. For Father’s Day, we asked children (maybe with a bit of help) to nominate their...
Mosaicism

Mosaicism

Genes are instructions that control the way we grow and develop. We have around 20,000 different genes and, for the majority, these come in pairs. We get one copy from our mother and one copy from our father. In turn, we pass one copy onto each of our children. Every...
New retinoblastoma research confirmed

New retinoblastoma research confirmed

We are delighted to confirm that CHECT will be funding the next stage of “Developing an evidence-based psycho-educational intervention for teenagers and young adults who have had retinoblastoma”. Having spent three years understanding the psychosocial experiences of...