A dad from Wales is urging other parents to look out for the tell-tale signs of eye cancer this World Retinoblastoma Awareness Week after his one-year-old son, Kooper, was diagnosed with retinoblastoma – a rare eye cancer that typically affects children under...
Each year, the Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK: the symptoms they noticed; the healthcare professionals they saw; and how long it took them to reach one of the specialist Rb centres...
Thank you so much to everyone who took part in our 2024 CHECT Members’ Survey. For the first time this year, we decided to look at responses in terms of three main age groups* to give more specific feedback on the experiences and priorities of different age / stage...
Natalie, who had retinoblastoma when she was three-years-old, speaks to us about life then and now. I was three years old when my mum noticed a white shield go over my eye while I was in the bath. My mum took me to the local doctors to be told she was a fussy mother...
We often feature our wonderful CHECT mums in our stories, and we feel it’s important to recognise those amazing dads out there who go above and beyond to support their families as well. Father’s Day is fast approaching and we’re asking children (maybe with a bit...
We often feature our wonderful CHECT mums in our stories, and we feel it’s important to recognise those amazing dads out there who go above and beyond to support their families as well. For Father’s Day, we asked children (maybe with a bit of help) to nominate their...
Genes are instructions that control the way we grow and develop. We have around 20,000 different genes and, for the majority, these come in pairs. We get one copy from our mother and one copy from our father. In turn, we pass one copy onto each of our children. Every...
From being diagnosed with retinoblastoma to representing England on the international stage, Adam Lione’s shares his story with us. Can you tell us about your retinoblastoma diagnosis? I was diagnosed at 16 weeks old, and early symptoms were that I could not...
We are delighted to confirm that CHECT will be funding the next stage of “Developing an evidence-based psycho-educational intervention for teenagers and young adults who have had retinoblastoma”. Having spent three years understanding the psychosocial experiences of...
When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem, Lead Orthoptist for Retinoblastoma Services at The Royal...
