On 23 March, 14 CHECT families braved the rain for a meet-up at Discover Children’s Story Centre in East London. Unbelievably, at just the moment everyone was due to arrive, there was a full evacuation of Stratford Station! However, that wasn’t going to deter us, and...
We spoke to Emily Ann Davison – the author behind ‘The Blue Umbrella’ and ‘Every Bunny is a Yoga Bunny’ about the power of reading for World Book Day. World Book Day is always such an exciting time of year where people come together to...
A mum from Gillingham in Kent is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day, after their three-month-old son was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...
We spoke to researcher Munachiso Samuel-Onyeka about her studies, and also her experiences of her son having retinoblastoma (Rb). What is your working or educational background? I studied Optometry and worked as an Optometrist before my master’s degree studies that...
Donate A mum from the Shetland Islands is urging other parents to look out for the tell-tale signs of eye cancer this Christmas, after her thirteen-month-old son was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age...