Get involved in research
Below are current research opportunities for you to be directly involved in!
Please note we are highlighting the opportunity to take part in a research project but it is an individual’s own decision whether they do so. If they proceed it is their responsibility to ensure they have all the relevant information to make an informed decision, and that no liability is accepted by the Childhood Eye Cancer Trust.
Help shape support for young people after retinoblatoma (Rb)
Researchers at the University of York, in partnership with CHECT, are developing a new psychological support programme for young people who have experienced Rb. To make sure it reflects what people really need, they’re looking to hear directly from those with lived experience.
If you choose to take part, you’ll be invited to join a friendly online workshop(s) where you can share your experiences, ideas and suggestions. Your views will help shape support for future young people and families affected by Rb.
Participants will receive a £40 voucher for each workshop attended as a thank you for their time.
Spaces are limited, so please register your interest asap!
WeCHope new research
WeCHope recently hosted webinar about new retinoblastoma research that you are able to get involved in! Dr. Andrew Stacey and Dr. Debarshi Mustafi have developed a groundbreaking blood test that identifies which parent’s copy of the RB1 gene mutation was passed on – offering new insights into disease severity and treatment options.
This is early stage research and not yet clinically available. If anyone would like to express an interest in taking part in the research going forward they can sign up using the link below. (over 18s, or the adult caregiver if the patient is under 18).
How do articles about research affect people's responses to a childhood cancer charity?
It’s really important for childhood cancer charities to talk about their research – but does the way they do it matter? This Master’s degree project at the University of the West of England looks at how different approaches to communicating research impacts how people feel about the charity.
If you live in the UK or Ireland, and are over 18, please complete this 5-10 minute anonymous survey to help charities share their work in the best way. Anyone can take part, whether or not you have an interest in science or personal experience of childhood cancer.
Deadline: Friday 11th September
Understanding How Education Staff Support The Psychological Adjustment of Siblings of Children with Cancer
Are you someone who:
- Working in a primary school OR have worked in a primary school in the last 2 years
- Have had a role in supporting a sibling of a child with cancer
- The sibling was of primary school age (6-11)
- At the time of offering the support, the child with cancer wasalive
- Over 18
- Speak fluent English
What will your role involve?
You would be invited to take part in an online interview lasting approximately 60-90 minutes. If you are interested in taking part, you will be sent additional information. As a token of appreciation for your time, you will receive a £10 love to shop or amazon voucher.
Deadline to register your interest is Sept 2026