Get involved in research
Below are current research opportunities for you to be directly involved in!
Please note we are highlighting the opportunity to take part in a research project but it is an individual’s own decision whether they do so. If they proceed it is their responsibility to ensure they have all the relevant information to make an informed decision, and that no liability is accepted by the Childhood Eye Cancer Trust.
WeCHope new research
WeCHope recently hosted webinar about new retinoblastoma research that you are able to get involved in! Dr. Andrew Stacey and Dr. Debarshi Mustafi have developed a groundbreaking blood test that identifies which parent’s copy of the RB1 gene mutation was passed on – offering new insights into disease severity and treatment options.
This is early stage research and not yet clinically available. If anyone would like to express an interest in taking part in the research going forward they can sign up using the link below. (over 18s, or the adult caregiver if the patient is under 18).
NIHR Doctoral Research Training Camp
NIHR are seeking patients, service users, carers or members of the public to embed within each of the mentored groups throughout the team activities at the trainging camp at the Leonardo Hotel Hinckley Island, near Leicester. The aim of this involvement is to provide a more realistic experience of what it is like working with people and communities in the research planning and application process. We also hope it will embed the principles of meaningful inclusion of patient and public involvement and engagement into their research training.
Reimbursement: £55 for the briefing session. £495 for 3 days (£82.50 for two half days, mainly observing, and £330 for one full day where involvement is required within a team task). £27.50 for a feedback meeting after the camp.
This will be an in-person meeting across 3 days – Tues 7th July till Thurs 9th July.
Deadline for applications is the 30th of April 2026.