Get involved in research
Below are current research opportunities for you to be directly involved in!
Please note we are highlighting the opportunity to take part in a research project but it is an individual’s own decision whether they do so. If they proceed it is their responsibility to ensure they have all the relevant information to make an informed decision, and that no liability is accepted by the Childhood Eye Cancer Trust.
WeCHope new research
WeCHope recently hosted webinar about new retinoblastoma research that you are able to get involved in! Dr. Andrew Stacey and Dr. Debarshi Mustafi have developed a groundbreaking blood test that identifies which parent’s copy of the RB1 gene mutation was passed on – offering new insights into disease severity and treatment options.
This is early stage research and not yet clinically available. If anyone would like to express an interest in taking part in the research going forward they can sign up using the link below. (over 18s, or the adult caregiver if the patient is under 18).
New survey from the North Star Coalition
Five charities, including YoungLives, CCLG and Ellen McArthur amongst others, have joined together to improve the long-term well-being of children and young people with cancer. The first focus is mental health – if you’ve got lived experience of cancer, or are a professional who works with children and young people with cancer, please fill in the survey to help create real, lasting change.
RNIB - How support for people who are blind or partially sighted could be improved
The Royal National Institute of Blind People (RNIB) would like to hear your thoughts on new ideas for how support for people who are blind or partially sighted could be improved and which improvements you think should be prioritised.
This is a 30-minute survey, which presents a list of ideas and practical solutions developed from a previous RNIB survey. It will ask what ideas you think are helpful or not and which you think should be prioritised.
You need to be 18 years old or over to take part.