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We’re currently looking for a parent of a child who has had retinoblastoma (Rb) to join us as a lay representative on our Scientific Advisory Committee (SAC).

About the role
The SAC meets every six months (usually May & November) on a weekday afternoon between 3.30 and 5.30pm, currently in London. Occasionally we may have one additional evening conference call. This is a voluntary role, however travel expenses will be reimbursed. A term of office is three years, and only two terms can be served consecutively.

The main responsibility of the SAC is to oversee CHECT’s research activities: assessing applications to our annual funding round and monitoring the performance of CHECT-funded projects.

The committee consists of several medical professionals and researchers who are closely involved in cancer treatment/care, ophthalmology, epidemiology, genetics, laboratory research and psycho-social studies; as well as a CHECT trustee.

About you
To add to the existing expertise of the group, we would like someone to join who brings personal, but non-professional, experience of Rb. We already have one lay member who brings experience of having had Rb as a child, and we would like to add a lay member who is a parent of a child with Rb.

You do not need to have any prior medical knowledge or experience – in fact we would prefer you not to! The inclusion in the SAC of an individual with personal experience of Rb will help us to ensure CHECT continues to fund research questions relevant to the lives and needs of those directly affected by retinoblastoma.

Find out more:
You can find out more about our CHECT research at www.chect.org.uk/research. If you would like more information about the role, contact Petra Maxwell at petra.maxwell@chect.org.uk or on 020 7377 5578.

We are asking members to express their interest to Petra as above, with a few details about your personal experience of Rb and why you are interested in the role, by Friday 6th September. We will then arrange for you to have a chat with Lorna Fraser, Chair of the SAC and CHECT member.

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