CHECT PhD researcher Nicola O’Donnell recently organised a podcasting event in Birmingham for teens and young adults, as part of sharing the results of her research study.

Nicola says: “Excitingly, I have received a lot of interest in this work and the first academic paper which summarises the findings has now been published in the British Medical Journal.” However, she also wanted to share these more widely. “For this reason, I recently got a group of retinoblastoma (Rb) survivors together and hired a podcast studio in Birmingham … for a video summarising the research findings. They also sat down as a group (without support worker Sarah and I) to create a podcast about what it is like to be a young person who had Rb. I think that you’ll agree that the group did an excellent job, and hearing their voices explaining the study as well as sharing their experiences was incredibly powerful. None  of the young people who created the video and podcast were participants in the research; it is incredibly important to keep participants’ identities private, and it is such a privilege to be able to highlight their experiences in order to improve Rb support in the future.” You can read the findings in the British Medical Journal, and watch Nicola’s video.

You can watch the videos over on our CHECT TYA website, our YouTube, Instagram and TikTok accounts.