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Starting School

Starting school is a huge step for any child but there are added worries for parents of a child who has had retinoblastoma, as Jodie Wood, mum to four-year-old Jude, discovered. But she knows that her little boy is ready to start big school and, with the...

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Have your say on research

A CHECT-funded research study, called the Eloise Patterson Project, is being undertaken by the Retinoblastoma Genetics Unit at Barts Health NHS Trust. The Unit is asking for patients and parents of children affected by retinoblastoma to take part in a...

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Supporting siblings

Dr Jennie Robertson, Clinical Psychologist, offers advice to parents and carers on how they can support the brothers and sisters of children living with cancer… Siblings of children living with cancer can experience a range of emotions, such...

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The beginning of my story

Olivia Deane hit the headlines when she was diagnosed with retinoblastoma aged 12 – this type of eye cancer usually affects young children under six. Now 20, Olivia has written a book about her cancer journey which she has kindly agreed to...

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Holiday discounts from Haven

The Childhood Eye Cancer Trust has teamed up with Haven to offer our members a chance to save money on UK breaks and holidays. Haven have got 36 parks around the UK coastline and are offering our members 5% discount on UK school and bank holidays and 10%...

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Ride4Sight cycle team announced

Our corporate partner Vision Express has unveiled the 30-strong team who will be riding in this year’s legendary Ride4Sight challenge to raise funds for the Childhood Eye Cancer Trust. The team of all-star riders, which include company CEO Jonathan Lawson...

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Eliza’s story, part two

Do you remember little Eliza Thomas? She was the face of our #InTheDark Retinoblastoma Awareness Week campaign back in 2016. Eliza was three years old when she was diagnosed with retinoblastoma after a routine eye test and she had her left eye removed to save her...

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A world of books

By Lesley Geen, CHECT support worker  Some parents have told us their child is not always getting the same opportunities as their peers to access books in different formats; this can obviously have an impact on their desire to read from an early age. At...

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