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Educational support after Rb

Educational support for children affected by Rb Marie Lloyd is a Qualified Teacher of Children and Young People with Visual Impairment, and mum to Daisy who had retinoblastoma. She outlines the educational support available to families affected by Rb and recent...

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Gemma and Noah’s knights

Knights in shining armour for Gemma and Noah Gemma Edgar was just 29 years old when she diagnosed with an incurable brain tumour. A year later she found out that her 18-month-old son Noah had eye cancer. Her big brother Lee Relf explains why...

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My eye? What about it?

Mum Melanie Cassidy reveals how, with the help of some cuddly friends, her son Edward took to his new eye like a duck to water… Edward was 19 months old when he was diagnosed with unilateral retinoblastoma. A week before the operation to remove...

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Amazing Grace wins at dance champs

A 12-year-old Salford girl who lost an eye to a rare form of cancer when she was a baby was part of a winning dance team at the prestigious US Finals in Pensacola, Florida. Grace Rushton was one of 12 dancers in the “Red Hot Wildfire” team who...

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Childhood memories shaped by retinoblastoma

Iain Riddell, lay member of CHECT’s Scientific Advisory Committee, reflects on how childhood memories are shaped by the realities of retinoblastoma... Among the mass of childhood memories rises the parental decision on a regular basis that an exciting...

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Using technology to fight retinoblastoma

Technology review: how the latest digital imaging technologies are joining the battle against retinoblastoma It’s difficult to imagine that, only five years ago, smartphones and apps were largely in their infancy – a far cry from their...

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Rb survivor is a sports star

After battling retinoblastoma as a toddler, Will Jubb, 19, really kicked cancer by realising his dream to become a semi-professional rugby player. His proud mum Clare tells us more...  Will was diagnosed with retinoblastoma in his right eye...

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Cancer survivor Kaydan’s a champ!

Four-year-old Kaydan Jacques has been given an award for his bravery after surviving childhood eye cancer. During a presentation at Vision Express in Bradford, Kaydan was named a CHECT Champion after his proud dad Christopher nominated him....

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Retinoblastoma: genetic testing

Dr Simon Ramsden and Dr Trevor Cole answer some of the most frequently asked questions about genetic testing in retinoblastoma… Why do we carry out genetic testing for retinoblastoma? Genetic testing is predominantly used to advise on the...

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Phil’s 4th marathon effort

Next month Phil Mills is running the London Marathon for CHECT after being inspired by his fiancée Miriam’s mum and sister, who were both affected by retinoblastoma… It’s his fourth London Marathon – and, he insists, his last – so Phil Mills is...

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