News
London Family Members’ Day in pictures
The latest photos and CHECT Champions Awards from our family day out at Discover Children’s’ Story Centre
Sharing your story
Have you, or someone you love, been affected by Rb? Would you like to share your story to raise awareness and help others going through the same thing?
A bumper year for CHECT research
Not only did we end up making two research fund awards rather one, we are also excited to be offering a PhD grant for the first time in many years.
“I don’t feel as lonely as I do in the real world.”
Isaac was diagnosed with Rb and is living with a visual impairment. He explains how the Ellen MacArthur Cancer Trust has helped him to build his confidence.
Leicester and Scotland Members’ Days in pictures
See the latest photos from our 2019 CHECT family days out in Leicester and Scotland.
Targeted Antibody-Drug Conjugates for Retinoblastoma Therapy
A research group at the University at Buffalo outlines their work on new and improved drug therapies for retinoblastoma.
“Finally we can have the Christmas we’ve been waiting for”
Christmas is a time of joy and celebration, but for Laila Ollie, it was the moment they discovered that their little boy had to have his eye removed.
Living Life Past Rb
Kyle’s family travelled from Malta to the UK for his Rb treatment when he was two years old. Now aged 20, he shares his experience of growing up with an artificial eye.
Hair today, gone tomorrow!
A CHECT Ambassador was recently the guest of honour at a Vision Express store – cutting off the Store Manager’s long locks to raise money for CHECT.
“Rb isn’t something to be afraid of – I grew up thinking it was”
Eve Smyth is a 62-year-old second-generation Rb survivor. She shares her advice, as well as her fascinating story of growing up blind and how she managed to find the strength to adopt after tragically losing her son to trilateral Rb.
“Everyone is full of quirks and nuances and it is important not to forget that.”
Josh’s family moved to the other side of the world to the UK after he was diagnosed with unilateral Rb. Now 17 years old, his Rb experience certainly has not held him back especially when it comes to succeeding in sports and academia.
The top five things I learnt working on Rb research
Genetics student Armita, who had bilateral Rb as a child, shares her experience assisting with Professor Ohnuma’s research, funded by CHECT.