News
Hair today, gone tomorrow!
A CHECT Ambassador was recently the guest of honour at a Vision Express store – cutting off the Store Manager’s long locks to raise money for CHECT.
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“Rb isn’t something to be afraid of – I grew up thinking it was”
Eve Smyth is a 62-year-old second-generation Rb survivor. She shares her advice, as well as her fascinating story of growing up blind and how she managed to find the strength to adopt after tragically losing her son to trilateral Rb.
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“Everyone is full of quirks and nuances and it is important not to forget that.”
Josh’s family moved to the other side of the world to the UK after he was diagnosed with unilateral Rb. Now 17 years old, his Rb experience certainly has not held him back especially when it comes to succeeding in sports and academia.
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The top five things I learnt working on Rb research
Genetics student Armita, who had bilateral Rb as a child, shares her experience assisting with Professor Ohnuma’s research, funded by CHECT.
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Christmas card competition
Is your little one a budding artist? Would they like to see their very own picture on our charity Christmas cards this year?
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Having had Rb, I hope my academic work will help others
Nicole Beddard undertook a project which explored the experiences of parents with children who have had Rb.
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Opportunity for a parent to join our committee
We’re looking for a parent of a child who has had retinoblastoma to join us as a lay representative on our Scientific Advisory Committee.
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Parents shocked after unusual ‘white glow’ in child’s eye turned out to be cancer
Parents began to notice a strange ‘white glow’ in the right eye of their two-year-old son Oliver, although it only appeared in certain light.
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“I make my loved ones proud no matter how difficult things may get.”
17-year-old Beth Holman shares her experiences of growing up with a visual impairment having been treated for bilateral Rb as a baby.
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Starting a new school
As we near the end of one school year, many are already looking to the new start in August or September. Whether starting nursery for the first time, moving up to primary or transitioning to secondary, the new school year can bring new challenges. Will other students...
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The Best Start in Life for Visually Impaired Children
Harry is enjoying life at mainstream school thanks to modern equipment and access to support funding. Mum Lisa shares her advice for parents with visually impaired children who are about to start school.
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Celebrating Champion Dads
We feel it’s important to recognise those amazing dads out there who go above and beyond to support their families. Here’s just a few of our hero dads!