In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. Despite ongoing treatment for four years, David sadly died in 1988. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into Rb,...
We had such a lovely day at the National Space Centre in Leicester! Nine families joined Lena, Sarah, and Lucy from the team for an afternoon filled with fun, rocket-making, star-gazing, and exploring the museum’s fantastic exhibits. We were also thrilled to hand out...
We spoke to Candice, the mum of BAFTA-nominated Lucy, who found fame on The Piano about Lucy’s experiences with retinoblastoma, and life now as a musician with a newly released album. Can you tell us about Lucy’s diagnosis of retinoblastoma, any signs that...
We’re pleased to present the latest edition of our CHECT InFocus Winter 2024 Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months. This Winter edition of InFocus has been produced in both a digital and print format....
We spoke to researcher Clare Stothart about her latest retinoblastoma research: Hi, I’m Clare and my daughter was diagnosed with bilateral retinoblastoma at the age of 2 years and 8 months. At the time, our son was a baby and my husband and I were 29 years old and...
