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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Become a member of CHECT

Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.

Ffion Miles Bursary 2024

Ffion Miles Bursary 2024

If you or your child have a love for music, you could be the fourth person to benefit from The Ffion Miles Music bursary – in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma...

Jaxon’s football experience

Jaxon’s football experience

With thanks to the Free Kicks Foundation, CHECT were able to send Jaxon - who had retinoblastoma - and his parents to go and watch the Liverpool vs. Chelsea Carabao Cup Final on Sunday. Jaxon was delighted to see his team win 1-0, with his mum adding that the seats...

The Ffion Miles Bursary winner: Rosie

The Ffion Miles Bursary winner: Rosie

Rosie was one of two winners chosen to be the receiver of the Ffion Miles Music Bursary for 2023, in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma (Rb) and/or who had a...

World Book Day: How books helped me when I was in hospital

World Book Day: How books helped me when I was in hospital

We spoke to Emily Ann Davison - the author behind 'The Blue Umbrella' and 'Every Bunny is a Yoga Bunny' about the power of reading for World Book Day. World Book Day is always such an exciting time of year where people come together to celebrate the magic of books and...

 ”I spotted cancer in my baby’s eye as I cooked dinner” 

 ”I spotted cancer in my baby’s eye as I cooked dinner” 

A mum from Gillingham in Kent is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day, after their three-month-old son was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...

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