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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Get involved in Childhood Cancer Awareness Month

Help us raise awareness and funds during September.

50km Your Way!

Complete 50 kilometres in any way you choose throughout the month
of September to represent approximately 50 children diagnosed a year
with the childhood eye cancer retinoblastoma

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Become a member of the Childhood Eye Cancer Trust

Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.

Become our InFocus Cover Stars!

Become our InFocus Cover Stars!

We're sorry to mention Christmas already, but we are busy putting together the next copy of InFocus and we are in need of photos of our stars in their Christmas jumpers and outfits for our front cover! If you are happy for your child to be featured, please send over...

Harry’s retinoblastoma awareness video!

Harry’s retinoblastoma awareness video!

https://youtube.com/shorts/h60bqfeU6i8?feature=share What a great video Harry made us for Childhood Cancer Awareness Month in September - thank you for helping us to raise such important awareness, Harry!  {Video description: Harry is a young child, stood inside, with...

Christmas card competition 2024

Christmas card competition 2024

Is your little one a budding artist? Would they like to see their very own picture on our charity Christmas cards this year?

Imogen’s update!

Imogen’s update!

In 2021 we shared Imogen's retinoblastoma story. We spoke to her mum Lorna to see how she is doing now.   "Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months went through intensive treatment including...

Jaxon shines in sports!

Jaxon shines in sports!

Hi! My name is Jaxon.I am eight-years-old. I am from Dublin, Ireland. I travel over to Birmingham Children's Hospital for my appointments. I was diagnosed with bilateral retinoblastoma when I was two-years-old. I have had many different types of treatments.Ten days...

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