About us at CHECT
We are the only UK charity solely dedicated to helping anybody affected by retinoblastoma.
Each week a child living in the UK is diagnosed with retinoblastoma, a rare form of eye cancer that typically affects children under six years old. Although 98% survive, around half of all children diagnosed will lose an eye and some will lose their sight.
We deliver lifelong support and create a sense of community.
We spread awareness to drive early diagnosis and understanding.
We fund research to reduce the negative impact of retinoblastoma.
Direct support in the last three years
£30,610
in support grants have been given to those struggling to cope with the cost of cancer.
3,603
face-to-face support sessions were given to families, teens or adults who needed it.
100%
of those affected by retinoblastoma were offered our support when first diagnosed.
CHECT Research
In the last three years we have invested
£150,000
in projects to improve our understanding of retinoblastoma, and develop kinder effective treatments.
Raising awareness
31%
of people thought that a squint was not a sign of childhood eye cancer. It’s the 2nd most common symptom.
45%
of parents were aware of childhood eye cancer, but only 19% were aware of the signs and symptoms to look out for.
55%
of parents correctly identified a white glow as a sign and symptom of childhood eye cancer.
These results are from a survey answered by 1062 parents in 2022.
We are working on improving these statistics every day.
Our History
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