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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Latest guidance on COVID-19 / Corona Virus

For children and young people with cancer undergoing treatment. Issued by Children’s Cancer and Leukemia Group (CCLG).

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

What are your child’s priorities for future research?

What are your child’s priorities for future research?

The Children’s Cancer Priority Setting Partnership wants to know what children who have experienced childhood cancer think should be priorities for future research… If your child (aged 15 or under) has had cancer, or has a sibling or friend who has cancer, they are...

Charlie meets his ‘rugby twin’

Charlie meets his ‘rugby twin’

In the latest issue of InFocus magazine and for a video for our social media channels, we interviewed rugby star Will Jubb, who was diagnosed with retinoblastoma (Rb) at two years old and had his right eye enucleated. However, playing with one eye has not held him...

My hearing test experience at GOSH

My hearing test experience at GOSH

Suri (age 10) was born with bilateral Rb which was treated with chemotherapy. He kindly shared a blog with us about his experience of getting his hearing tested at GOSH.

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