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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Become a member of the Childhood Eye Cancer Trust

Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.

Interview with Paralympian Stephen Clegg

Interview with Paralympian Stephen Clegg

We had the pleasure of speaking with Stephen Clegg, fresh off his incredible achievement of winning two medals at the Paris 2024 Paralympics. Stephen opened up about his journey navigating the challenges of competing at an elite level with vision loss, sharing...

Ffion Miles Bursary Winner Announced

Ffion Miles Bursary Winner Announced

The Ffion Miles Music Bursary was set up in 2022 in memory of the former CHECT member and her love of music, and her commitment to helping those who had also suffered from retinoblastoma, and a visual impairment. This year was the third year the Bursary has been...

Kitty’s Day at CHECT

Kitty’s Day at CHECT

Eleven-year-old Kitty joined us in the CHECT office recently to help us to raise some awareness of retinoblastoma during Childhood Cancer Awareness Month. Kitty explains how the day went: Hi, I’m Kitty, and September is Childhood Cancer Awareness Month! This is a time...

Imogen’s update!

Imogen’s update!

In 2021 we shared Imogen's retinoblastoma story. We spoke to her mum Lorna to see how she is doing now.   "Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months went through intensive treatment including...

Jaxon shines in sports!

Jaxon shines in sports!

Hi! My name is Jaxon.I am eight-years-old. I am from Dublin, Ireland. I travel over to Birmingham Children's Hospital for my appointments. I was diagnosed with bilateral retinoblastoma when I was two-years-old. I have had many different types of treatments.Ten days...

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