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What we do

The Childhood Eye Cancer Trust offers ongoing support to anyone affected by retinoblastoma. We also raise awareness and fund research into prevention and treatment.

About retinoblastoma

Retinoblastoma is a rare form of eye cancer that affects babies and young children, usually under the age of six. Around one child a week is diagnosed in the UK.

Get involved

We’ve been helping families for more than 30 years but we don’t receive any government funding and we rely on public donations to pay for our vital work.

Supporting families affected by retinoblastoma

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.

Learn the signs and symptoms of retinoblastoma

Symptoms

Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.

The white glow

Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.

Get support

We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.

Become a member of the Childhood Eye Cancer Trust

Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.

Livi Deane features on The Traitors

Livi Deane features on The Traitors

We are thrilled that our ambassador, Livi Deane, participated in the third series of BBC One's "The Traitors," which premiered on January 1, 2025. Livi, a 26-year-old beautician and model from Horsham, England, was diagnosed with retinoblastoma at the age of 12,...

The Ffion Miles Bursary 2025

The Ffion Miles Bursary 2025

In honour of Ffion’s love for music, we are pleased to announce the return of the Ffion Miles Music Bursary, open to all CHECT members, regardless of age, for 2025. The Bursary, awarded annually, can be used to support any musical pursuit. This may include musical...

Christmas Family Event

Christmas Family Event

Even the might of Storm Darragh, train cancellations and widespread flooding couldn’t stop 13 families heading to London for the CHECT Christmas party. We had lovely festive morning full of magic, dancing, crafting, Christmas songs and of course mince pies! And as you...

Martha’s love for adventure

Martha’s love for adventure

When Martha was 2 years old, she was diagnosed with retinoblastoma, a rare eye cancer. To treat it, she had her left eye removed and underwent chemotherapy. Now 9 years old, Martha is healthy and thriving, and has told CHECT what life is like for her now. "Hi my name...

A letter from Janet and Pelham Allen

A letter from Janet and Pelham Allen

In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. Despite ongoing treatment for four years, David sadly died in 1988. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into Rb,...

Meet Lucy The Pianist

Meet Lucy The Pianist

We spoke to Candice, the mum of BAFTA-nominated Lucy, who found fame on The Piano about Lucy's experiences with retinoblastoma, and life now as a musician with a newly released album. Can you tell us about Lucy's diagnosis of retinoblastoma, any signs that were...

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