Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
Protective eyewear for children with monocular vision
When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem, Lead Orthoptist for Retinoblastoma Services at The Royal...
Scarlet’s sailing experience
The Ellen MacArthur Cancer Trust is a national charity that takes young people aged 8-24 on sailing and outdoor adventures to inspire them to believe in a brighter future living through and beyond cancer. When a young person gets the ‘all clear’, their whole world has...
Our CHECT Champion Dads 2024
For Father’s Day, we recognise those amazing dads out there who go above and beyond to support their families and those affected by Rb.
Ethan’s CHECT Champion award
A five-year-old boy from Rhyl has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Ethan was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly...
Siblings win a CHECT Champion award!
Two brothers have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled against an extremely rare form of cancer. In March 2022 Harry Hanlon from Sutton Coldfield was diagnosed with retinoblastoma, a cancer...
Samuel’s CHECT Champion Award success!
A 10-year-old boy from Leyland in Lancashire has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Samuel was diagnosed with retinoblastoma, a cancer which affects the retina of children...