Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
Leicester Event: National Space Centre
We had such a lovely day at the National Space Centre in Leicester! Nine families joined Lena, Sarah, and Lucy from the team for an afternoon filled with fun, rocket-making, star-gazing, and exploring the museum’s fantastic exhibits. We were also thrilled to hand out...
InFocus Winter 2024 – Plain Text Version
We’re pleased to present the latest edition of our CHECT InFocus Winter 2024 Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months. This Winter edition of InFocus has been produced in both a digital and print format....
The impact of a child’s retinoblastoma diagnosis on their parents’ psychosocial functioning in the longer term
We spoke to researcher Clare Stothart about her latest retinoblastoma research: Hi, I’m Clare and my daughter was diagnosed with bilateral retinoblastoma at the age of 2 years and 8 months. At the time, our son was a baby and my husband and I were 29 years old and...
A letter from Janet and Pelham Allen
In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. Despite ongoing treatment for four years, David sadly died in 1988. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into Rb,...
Meet Lucy The Pianist
We spoke to Candice, the mum of BAFTA-nominated Lucy, who found fame on The Piano about Lucy's experiences with retinoblastoma, and life now as a musician with a newly released album. Can you tell us about Lucy's diagnosis of retinoblastoma, any signs that were...
“We spotted our son’s rare cancer because our friend’s child was diagnosed the same year.”
A mum and dad from Cheshire are urging other parents to look out for the tell-tale signs of eye cancer this Christmas after their two-year-old son, Thomas, was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...