Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
Interview with Paralympian Stephen Clegg
We had the pleasure of speaking with Stephen Clegg, fresh off his incredible achievement of winning two medals at the Paris 2024 Paralympics. Stephen opened up about his journey navigating the challenges of competing at an elite level with vision loss, sharing...
Ffion Miles Bursary Winner Announced
The Ffion Miles Music Bursary was set up in 2022 in memory of the former CHECT member and her love of music, and her commitment to helping those who had also suffered from retinoblastoma, and a visual impairment. This year was the third year the Bursary has been...
Kitty’s Day at CHECT
Eleven-year-old Kitty joined us in the CHECT office recently to help us to raise some awareness of retinoblastoma during Childhood Cancer Awareness Month. Kitty explains how the day went: Hi, I’m Kitty, and September is Childhood Cancer Awareness Month! This is a time...
Through Trials and Triumphs: Celebrating Family at the Paralympics
We spoke to Felicity - the mother of Adaline and sister of Paralympian Stephen Clegg – who discussed the experience of watching her brother win gold at the Paralympic Games in Paris. She reflects on the excitement of taking Adaline to see Stephen compete while...
Imogen’s update!
In 2021 we shared Imogen's retinoblastoma story. We spoke to her mum Lorna to see how she is doing now. "Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months went through intensive treatment including...
Jaxon shines in sports!
Hi! My name is Jaxon.I am eight-years-old. I am from Dublin, Ireland. I travel over to Birmingham Children's Hospital for my appointments. I was diagnosed with bilateral retinoblastoma when I was two-years-old. I have had many different types of treatments.Ten days...