Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
InFocus Winter 2024 – Plain Text Version
We’re pleased to present the latest edition of our CHECT InFocus Winter 2024 Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months. This Winter edition of InFocus has been produced in both a digital and print format....
The impact of a child’s retinoblastoma diagnosis on their parents’ psychosocial functioning in the longer term
We spoke to researcher Clare Stothart about her latest retinoblastoma research: Hi, I’m Clare and my daughter was diagnosed with bilateral retinoblastoma at the age of 2 years and 8 months. At the time, our son was a baby and my husband and I were 29 years old and...
CHECT are on Children in Need!
Ahead of tonight’s (15 November) BBC Children in Need Appeal Show on BBC One and iPlayer, Girls Aloud members, Nadine Coyle and Kimberley Walsh, visited the Children Eye Cancer Trust at the Royal London Hospital, to learn more about where the money raised by the...
“We spotted our son’s rare cancer because our friend’s child was diagnosed the same year.”
A mum and dad from Cheshire are urging other parents to look out for the tell-tale signs of eye cancer this Christmas after their two-year-old son, Thomas, was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...
Through Trials and Triumphs: Celebrating Family at the Paralympics
We spoke to Felicity - the mother of Adaline and sister of Paralympian Stephen Clegg – who discussed the experience of watching her brother win gold at the Paralympic Games in Paris. She reflects on the excitement of taking Adaline to see Stephen compete while...
Imogen’s update!
In 2021 we shared Imogen's retinoblastoma story. We spoke to her mum Lorna to see how she is doing now. "Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months went through intensive treatment including...