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Meet Footballer Adam Lione

Meet Footballer Adam Lione

From being diagnosed with retinoblastoma to representing England on the international stage, Adam Lione’s shares his story with us.  Can you tell us about your retinoblastoma diagnosis?  I was diagnosed at 16 weeks old, and early symptoms were that I could not...
New retinoblastoma research confirmed

New retinoblastoma research confirmed

We are delighted to confirm that CHECT will be funding the next stage of “Developing an evidence-based psycho-educational intervention for teenagers and young adults who have had retinoblastoma”. Having spent three years understanding the psychosocial experiences of...
Protective eyewear for children with monocular vision

Protective eyewear for children with monocular vision

When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem, Lead Orthoptist for Retinoblastoma Services at The Royal...
Monocular vision

Monocular vision

PLEASE NOTE: Every child is different and therefore will adapt differently. This is not related to intelligence – some people will simply struggle with certain tasks in certain settings. Children with special needs may always find some activities challenging....
Artificial eyes school action plan

Artificial eyes school action plan

School teachers may not be covered to remove or replace artificial eyes, so you will need an action plan in place in case of any problems arising during school time. Take time in advance to go through everything clearly with your child’s teacher. You might want to:...