Get involved in research
Below are current research opportunities for you to be directly involved in!
Please note we are highlighting the opportunity to take part in a research project but it is an individual’s own decision whether they do so. If they proceed it is their responsibility to ensure they have all the relevant information to make an informed decision, and that no liability is accepted by the Childhood Eye Cancer Trust.
WeCHope new research
WeCHope recently hosted webinar about new retinoblastoma research that you are able to get involved in! Dr. Andrew Stacey and Dr. Debarshi Mustafi have developed a groundbreaking blood test that identifies which parent’s copy of the RB1 gene mutation was passed on – offering new insights into disease severity and treatment options.
This is early stage research and not yet clinically available. If anyone would like to express an interest in taking part in the research going forward they can sign up using the link below. (over 18s, or the adult caregiver if the patient is under 18).
NIHR Doctoral Research Training Camp
NIHR are seeking patients, service users, carers or members of the public to embed within each of the mentored groups throughout the team activities at the trainging camp at the Leonardo Hotel Hinckley Island, near Leicester. The aim of this involvement is to provide a more realistic experience of what it is like working with people and communities in the research planning and application process. We also hope it will embed the principles of meaningful inclusion of patient and public involvement and engagement into their research training.
Reimbursement: £55 for the briefing session. £495 for 3 days (£82.50 for two half days, mainly observing, and £330 for one full day where involvement is required within a team task). £27.50 for a feedback meeting after the camp.
This will be an in-person meeting across 3 days – Tues 7th July till Thurs 9th July.
Deadline for applications is the 30th of April 2026.
NIHR Team Science Camp
NIHR is organising a funded, facilitated 3-day Team Science Camp on 15th-17th September 2026.
Reimbursement: £27.50 for the briefing session. £495 for 3 days (£165 per day)
Event details: We will provide accommodation for 15th and 16th Sept and food during the event and cover any additional expenses such as travel, childcare/carer costs (subject to prior agreement) PA costs/accommodation. Alcoholic drinks will not be included.
This will be an in-person meeting across 3 days – Tues 15th Sept till Thurs 17th Sept.
Deadline for applications is the 1st of July 2026.
Understanding How Education Staff Support The Psychological Adjustment of Siblings of Children with Cancer
Are you someone who:
- Working in a primary school OR have worked in a primary school in the last 2 years
- Have had a role in supporting a sibling of a child with cancer
- The sibling was of primary school age (6-11)
- At the time of offering the support, the child with cancer wasalive
- Over 18
- Speak fluent English
What will your role involve?
You would be invited to take part in an online interview lasting approximately 60-90 minutes. If you are interested in taking part, you will be sent additional information. As a token of appreciation for your time, you will receive a £10 love to shop or amazon voucher.
Deadline to register your interest is Sept 2026