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# Childhood Eye Cancer Trust

We are a UK charity for families and individuals affected by retinoblastoma. We offer support, fund research and raise awareness.

## Posts

- [OrCam MyEye Lucky Dip ](https://chect.org.uk/orcam-myeye-lucky-dip/) - CHECT has kindly been gifted by Essilor Ltd (Thornbury branch) four OrCam MyEye devices which we would like to offer free of charge to members via a lucky dip.
- [AJ's fifth anniversary ball](https://chect.org.uk/finneys-retinoblastoma-ball/) - World Retinoblastoma Awareness Week was a busy one for the Finney Family. Mum Tasha reported on the week: AJ, with help from his mummy and daddy, created awareness packs to give out to his friends - the packs included a CHECT balloon, wristband and sticker as well as a signs and symptoms leaflet, a pack
- [Chester Zoo](https://chect.org.uk/chester-zoo/) - We had a lovely family day at Chester Zoo on 6 June, thanks to donated tickets from the Community Connection Scheme. It was great to see lots of familiar faces from previous meet-ups, as well as some new families. Everyone got there bright and early to meet and chat – joined by some incredibly friendly ducks! We
- [Our CHECT Champion Dads 2026](https://chect.org.uk/our-chect-champion-dads-2026/) - All our nominated CHECT dads received a special CHECT Champion certificate this Father's Day.
- [Bespoke eyes](https://chect.org.uk/bespoke-eyes/) - We sat down with CHECT members who've been through the incredible journey of having a bespoke prosthetic eye created just for them.
- [World Retinoblastoma Awareness Week](https://chect.org.uk/retinoblastoma-week/) - Find out how you can get involved during World Retinoblastoma Awareness Week, from 9th-15th May 2027, & raise awareness & funds to help those with eye cancer.
- [Using technology to fight retinoblastoma](https://chect.org.uk/using-technology-to-fight-retinoblastoma/) - Technology review: how the latest digital imaging technologies are joining the battle against retinoblastoma.
- [Pathways to Diagnosis 2025](https://chect.org.uk/pathways-to-diagnosis-2025/) - Each year, the Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK: the symptoms they noticed; the healthcare professionals they saw; and how long it took them to reach one of the specialist Rb centres (Birmingham Women’s & Children’s Hospital, BCH, or the Royal London Hospital.
- [“We spotted our son’s eye cancer on his birthday”](https://chect.org.uk/isaacs-retinoblastoma-story/) - A mum is urging other parents to look out for the tell-tale signs of eye cancer this World Retinoblastoma Awareness Week
- [Responses Needed! Retinoblastoma Study Questions](https://chect.org.uk/responses-needed-retinoblastoma-study-questions/) - While retinoblastoma (Rb) can be devastating anywhere, its effects aren’t spread equally. In countries like the UK, research has shown that nearly all children diagnosed with retinoblastoma will survive. In low-income countries however, such as those in Africa and South Asia, only half will. This difference is highly unfair, and in order to address it,
- [A world of books](https://chect.org.uk/a-world-of-books/) - Some parents have told us their child is not always getting the same opportunities as their peers to access books in different formats; this can obviously have an impact on their desire to read from an early age.
- [World Book Day: Every Bunny is a Yoga Bunny](https://chect.org.uk/world-book-day-every-bunny-is-a-yoga-bunny/) - For World Book Day author Emily Ann Davison discusses her new book - Every Bunny is a Yoga Bunny - and how retinoblastoma has impacted story time over her lifetime. I was ten weeks old when I was diagnosed with Bilateral Retinoblastoma. It wasn’t a huge surprise to my parents, as my Dad had also
- [Where to find financial help during COVID-19](https://chect.org.uk/financialhelp/) - Some CHECT families will be finding life particularly difficult at the moment. Here are some resources which we hope will be useful and provide some help.
- [Skylah hits the headlines](https://chect.org.uk/skylah-hits-the-headlines/) - Brilliant story on CHECT member Skylah Mae in the Express raising awareness of retinoblastoma.
- [CHECT is on the move!](https://chect.org.uk/chect-is-on-the-move/) - CHECT is changing its office location - but don't worry, we are still here to help you! We are changing the way we work as we enter a post-lockdown world. Following consultation with staff and after over 10 years in the same office, recent experience of remote working, the limitations that remain in place and
- [Meet our London Marathon 2026 runners!](https://chect.org.uk/london-marathon-2026/) - Meet our 2026 London Marathon runners! Andy Kitchin Hi, my name is Andy. I am excited to be running London Marathon this year for CHECT. I won a ballot place for London 2025, and just ran the marathon to challenge myself. Afterwards, I sat and reflected on how great it was, but also felt a
- [Nancy's sporting talents](https://chect.org.uk/nancys-sporting-talents/) - We spoke to ten-year-old Nancy, who was diagnosed with retinoblastoma, about her sporting hobbies. I currently play football twice a week with my school and a team on Saturdays. I also play for my local cricket team through the cricket season. I also love to horse ride! I started horse riding when I was just
- [A World of Books - Accessible Reading](https://chect.org.uk/accessible-reading/) - Reading opens doors to imagination, learning and confidence. For children and young people with visual impairment, accessible books help make sure those doors are open to everyone. There are now more ways than ever to enjoy stories. Books can be read in braille or large print, explored through touch, or listened to through audio. All
- [Brody's retinoblastoma story: “A white glow in our toddler’s eye revealed his cancer”  ](https://chect.org.uk/brodys-retinoblastoma-story/) - A mum is urging other parents to look out for the signs of eye cancer this Rare Disease Day after her son was diagnosed with retinoblastoma – a rare eye cancer.
- [Reggie's retinoblastoma screening](https://chect.org.uk/reggie/) - Mum Fran shared some lovely photos of her son Reggie and how he is getting on: "Reggie has been screened for retinoblastoma (Rb) since he was 2 weeks old, as he carried the gene with a high risk, due to myself having had Rb as a baby. He’s had 17 general anaesthetics at The Royal
- [Make an impact this World Cancer Day](https://chect.org.uk/make-an-impact-this-world-cancer-day/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] World Cancer Day (4 February 2026) is a chance to raise awareness, support those affected, and take action against cancer. Here’s how you can get involved: Share knowledge and spread the word: Help
- [You could be the 2026 Ffion Miles Bursary winner!](https://chect.org.uk/you-could-be-the-2026-ffion-miles-bursary-winner/) - In honour of Ffion’s love of music, we are pleased to announce the return of the Ffion Miles Music Bursary, open to all CHECT members, regardless of age.
- [CHECT Scientific Advisory Committee (SAC) Update](https://chect.org.uk/its-all-change-on-the-chect-scientific-advisory-committee-sac/) - CHECT Scientific Advisory Committee news
- [CHECT Christmas party 2026](https://chect.org.uk/chect-christmas-party-2026/) - CHECT runs meet ups for children who have retinoblastoma - learn more about our Christmas 2025 meet up!
- [Robin Williams](https://chect.org.uk/robin-williams/) - We are so sad to share the news that CHECT member Robin Williams passed away earlier this month. Robin was diagnosed with retinoblastoma at nine months old, losing his first eye at the age of two and a half, and his second eye aged four. His sporting career started with swimming, in which he got
- [Ideas for children's activities](https://chect.org.uk/ideas-for-childrens-activities/) - Stuck indoors? Here's a list of 'digital' activity ideas to help keep the little ones entertained!
- [Beyond Rb event: Boat ride down the Thames](https://chect.org.uk/beyond-rb-event-boat-ride-down-the-thames/) - It’s becoming a bit of a CHECT tradition that our meet-ups usually coincide with extreme weather events! Our Beyond Rb meet-up in November definitely followed this pattern, with torrential rain as the backdrop. However, 13 hardy CHECT adults and their partners / sisters defied the rain to join Sarah and Petra in London. The day
- [St Helens siblings scoop awards from eye cancer charity](https://chect.org.uk/hollie-and-ted/) - A brother and sister have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled against an extremely rare form of cancer.
- [OPPORTUNITY FOR ORBITAL PROSTHETIST WITH NAES](https://chect.org.uk/opportunity-for-orbital-prosthetist-with-naes/) - Due to a retirement within the team, an opportunity has been created for an Orbital Prosthetist with the National Artificial Eye Service, based in Cambridge
- [Hannah Aurora's experience of featuring on the BBC One TV series The Repair Shop ](https://chect.org.uk/hannah-on-the-repair-shop/) - Hannah, who had retinoblastoma, along with her father and beloved guide dog Wendy, featured on BBC One's The Repair Shop in October (Series 14: Episode 25).
- [CHECT in the press](https://chect.org.uk/press-this-week/) - Catch up on where you can see and hear CHECT members in the press this week.
- [CHECT features on BBC Children in Need special episodes!](https://chect.org.uk/chect-features-on-bbc-children-in-need-special-episodes/) - CHECT will feature on both Weatherman Walking and Vernon Kay's Ten to the Top shows this week for Children in Need.
- [The Ffion Miles Music Bursary Winners 2025](https://chect.org.uk/the-ffion-miles-music-bursary-winners-2025/) - The Ffion Miles Music Bursary is an annual award kindly set up by Helen and Dewi Miles in memory of their daughter Ffion.
- [Kaios' retinoblastoma story](https://chect.org.uk/kaios/) - If you are located outside of the UK and are seeking help with a retinoblastoma diagnosis, or wanting support, WeCHope has a list of international organisations that can help - simply visit their website. Know the Glow also offers international awareness opportunities.
- [Raising awareness through sport: Weston North End FC](https://chect.org.uk/weston-north-end-fc/) - We spoke to Rich about his veterans' football team, after he chose to help us raise awareness of our charity by donning our logo on the back of their team shirts.
- [Family Support Meet Up: Manchester](https://chect.org.uk/manchester-family-event/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We were delighted to have 14 families join us for our October meet-up at the beautiful Manchester Museum. After sharing lunch together we celebrated our CHECT Champions – all twelve of them! The staff at the
- [100th Issue of InFocus Magazine: Kirsteen's Story](https://chect.org.uk/kirsteens-retinoblastoma-story/) - Kirsteen discusses her genetic retinoblastoma with the Childhood Eye Cancer Trust.
- [“Our baby’s eye cancer was dismissed”  ](https://chect.org.uk/rayes-retinoblastoma-story/) - A mum is urging other parents to look out for the tell-tale signs of eye cancer after her eight-month-old daughter, Raye, was diagnosed with retinoblastoma.
- [Our Christmas card design winners!](https://chect.org.uk/christmas-winners-2025/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] We’re delighted to share this year’s beautiful collection of Christmas cards – perfect for sending a heartfelt message to family and friends this festive season. You can choose from two options:
- [Educational support after Rb](https://chect.org.uk/educational-support-after-rb/) - Marie Lloyd, a QTVI, outlines the educational support available to children and young people affected by retinoblastoma and recent changes in the law.
- [Lila's retinoblastoma story](https://chect.org.uk/lilas-retinoblastoma-story/) - We spoke to Lila’s mum, Miranda, about her experiences with retinoblastoma: My partner and I had never heard of retinoblastoma until we started researching our daughter’s symptoms online, which led us to information about retinoblastoma and what to look out for. Lila was around 5 months old when we first noticed something was wrong with
- [Interested in research? ](https://chect.org.uk/new-sac-member-needed/) - CHECT is currently looking to recruit a parent of a child who has had retinoblastoma (Rb) as a lay representative to our Scientific Advisory Committee (SAC).
- [World Sight Day: Theo's retinoblastoma story](https://chect.org.uk/theo-and-mariah/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Mum Mariah, from America, tells us about her son Theo’s experiences of retinoblastoma this World Sight Day: Theo has just turned 10, hitting those double digits! He was diagnosed with retinoblastoma at the
- [Jessy's story: “Our toddler said her eye hurt – it turned out to be cancer” ](https://chect.org.uk/jessys-retinoblastoma-story/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] A mum from London is urging other parents to look out for the tell-tale signs of eye cancer this Childhood Cancer Awareness Month after her three-year-old daughter, Jessy, was diagnosed with retinoblastoma –
- [Christmas card competition 2025](https://chect.org.uk/christmas-card-competition-2025/) - Would you like to see your very own picture on our charity Christmas cards this year?
- [Teenagers – looking for a fun weekend without your parents?](https://chect.org.uk/teenagers-looking-for-a-fun-weekend-without-your-parents/) - Childhood Eye Cancer Trust support worker Lesley Geen unveils the charity’s plans for its first ever teenage weekend away
- [Merry Christmas and thank you from CHECT](https://chect.org.uk/merry-christmas-and-thank-you-from-chect/) - With your continued support, we know that we can make a difference. Thank you.
- [Glowing response to Smartphone poster campaign](https://chect.org.uk/glowing-response-to-smart-phone-poster-campaign/) - Just one week after our new retinoblastoma awareness poster launched, the supporting You Tube film received more than 50,000 hits. This is by far the most successful awareness campaign CHECT has run to date.
- [InFocus Winter 2025 - Plain Text Version](https://chect.org.uk/infocus-summer-2025-plain-text-version/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”] We’re pleased to present the latest edition of our CHECT InFocus Summer 2025 Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months.
- [International Day of Women & Girls in Science  - Nicola O'Donnell](https://chect.org.uk/international-day-of-women-girls-in-science-nicola-odonnell/) - This International Day of Women & Girls in Science Nicola O’Donnell tells us about her CHECT-funded PhD looking at producing a resource for teenagers and young adults who have had retinoblastoma. If you are a teen or young adult in the UK who has had retinoblastoma and would like to get involved in this project,
- [Our CHECT Champion Dads 2025](https://chect.org.uk/our-chect-champion-dads-2025/) - All our nominated CHECT dads received a special CHECT Champion certificate this Father's Day.
- [Junior’s Judo Journey: Confidence, Courage, and Kicks](https://chect.org.uk/juniors-judo-journey-confidence-courage-and-kicks/) - We spoke to Junior's mum Courtney about Junior's love for judo.
- [Beale Wildlife Park family meet-up](https://chect.org.uk/beale-wildlife-park-family-meet-up/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]Unlike the last few CHECT family days, there was no major weather event for our Beale Wildlife Park meet-up, just wall-to-wall sunshine! The park was beautiful, with peacocks wandering around and a little train to take everyone
- [New CHECT research announced](https://chect.org.uk/new-chect-research-announced/) - “Prognostic stratification and early detection of relapsed retinoblastoma using aqueous humour based cfDNA screening”.
- [Barber and hairdressing teachers join forces](https://chect.org.uk/barber-and-hairdressing-teachers-join-forces/) - Two top barber and hairdressing trainers who have both been affected by retinoblastoma have joined forces to help raise awareness of the little known condition.
- [Sisters are doing it for themselves](https://chect.org.uk/sisters-are-doing-it-for-themselves/) - Barretstown offers free camps for families affected by illness. Here Megan Deakin gives us the lowdown on what makes this holiday camp so great.
- [First to receive new type of eye cancer treatment](https://chect.org.uk/first-to-receive-new-type-of-eye-cancer-treatment/) - CHECT is currently funding research projects which hope to improve outcomes and develop new targeted treatments for retinoblastoma.
- [A retinal organoid platform for retinoblastoma drug development](https://chect.org.uk/new-research-for-2023-a-retinal-organoid-platform-for-retinoblastoma-drug-development/) - We are delighted to announce the latest CHECT-funded research project on retinoblastoma drug development. Professor Seige describes her project below.
- [Eye cancer societies join hands across Europe](https://chect.org.uk/eye-cancer-societies-join-hands-across-europe/) - Last week the world's foremost eye surgeons and cancer specialists gathered in Paris.
- [Corona Virus Updates](https://chect.org.uk/corona/) - The latest information related to CHECT and other advice regarding the coronavirus/COVID-19 outbreak.
- ["We spotted a white glow in our son’s eye – it turned out to be cancer"](https://chect.org.uk/koopers-retinoblastoma-story/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.27.4″ hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] A dad from Wales is urging other parents to look out for the tell-tale signs of eye cancer this World Retinoblastoma Awareness Week after his one-year-old son, Kooper, was diagnosed with retinoblastoma –
- [Pathways to Diagnosis 2024 ](https://chect.org.uk/pathways-to-diagnosis-2024/) - Each year, the Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK: the symptoms they noticed; the healthcare professionals they saw; and how long it took them to reach one of the specialist Rb centres (Birmingham Women’s & Children’s Hospital, BCH, or the Royal London Hospital,
- [2024 CHECT Members' Survey Feedback ](https://chect.org.uk/2024-chect-members-survey-feedback/) - Thank you so much to everyone who took part in our 2024 CHECT Members’ Survey.
- [Our CHECT Champion Dads 2024](https://chect.org.uk/our-chect-champion-dads-2024/) - All our nominated CHECT dads received a special CHECT Champion certificate this Father's Day.
- [Nominate your CHECT Champion Dad!](https://chect.org.uk/nominate-your-chect-champion-dad/) - We often feature our wonderful CHECT mums in our stories, and we feel it’s important to recognise those amazing dads out there who go above and beyond to support their families as well.
- [Natalie's retinoblastoma story](https://chect.org.uk/natalies-retinoblastoma-story/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Natalie, who had retinoblastoma when she was three-years-old, speaks to us about life then and now. I was three years old when my mum noticed a white shield go over my eye while I was in
- [Mosaicism](https://chect.org.uk/mosaicism/) - Genes are instructions that control the way we grow and develop. We have around 20,000 different genes and, for the majority, these come in pairs. We get one copy from our mother and one copy from our father. In turn, we pass one copy onto each of our children. Every time a cell divides all
- [CHECT research in practice](https://chect.org.uk/chect-research-in-practice/) - Read more about one of our important retinoblastoma research projects, currently underway.
- [Have your say on research](https://chect.org.uk/have-your-say-on-research/) - A CHECT-funded research study, called the Eloise Patterson Project, is being undertaken by the Retinoblastoma Genetics Unit at Barts Health NHS Trust.
- [Targeted Antibody-Drug Conjugates for Retinoblastoma Therapy](https://chect.org.uk/targeted-antibody-drug-conjugates-for-retinoblastoma-therapy/) - A research group at the University at Buffalo outlines their work on new and improved drug therapies for retinoblastoma.
- [Professor Ohnuma: Next generation sequencing analysis of retinoblastoma samples](https://chect.org.uk/professor-ohnuma-next-generation-sequencing-analysis-of-fresh-human-retinoblastoma-samples/) - Professor Ohnuma summarises the findings of this important project looking at why and how we need to understand more about how retinoblastoma forms.
- [Comparing Blood to Aqueous Humour as a Liquid Biopsy for Retinoblastoma: Determining the Superiority of the Aqueous Humour as a Source of Tumour DNA. Professor Jesse Berry](https://chect.org.uk/comparing-blood-to-aqueous-humour-as-a-liquid-biopsy-for-retinoblastoma-determining-the-superiority-of-the-aqueous-humour-as-a-source-of-tumour-dna-professor-jesse-berry/) - Professor Jesse Berry determines the superiority of the aqueous humour as a source of tumour DNA and explains her findings from her CHECT-funded research.
- [Further investigation into intra-ocular fluid as a liquid biopsy in retinoblastoma: By Dr Amy Gerrish and Dr Trevor Cole](https://chect.org.uk/further-investigation-into-intra-ocular-fluid-as-a-liquid-biopsy-in-retinoblastoma-by-dr-amy-gerrish-and-dr-trevor-cole/) - [et_pb_section][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Dr Amy Gerrish and her team have been working to develop a form of liquid biopsy, using cell-free DNA (cfDNA) found in eye fluid, to discover if a patient has the heritable or non-heritable form of retinoblastoma (Rb). This information is vital in identifying individuals at risk of developing further Rb tumours, as
- [Research milestone in understanding progression of retinoblastoma](https://chect.org.uk/research-milestone-in-understanding-progression-of-retinoblastoma/) - Dr Sandy Hung from the Centre for Eye Research Australia talks through her team's latest breakthrough in understanding the progression of Rb
- [‘All I wanted was to be a mum’](https://chect.org.uk/all-i-wanted-was-to-be-a-mum/) - All her life, Angie Campbell had dreamed of being a mum and having a large family. She takes us on her remarkable journey to realise her dream.
- ["I'm so grateful our GP didn't let us miss our appointment."](https://chect.org.uk/im-so-grateful-our-gp-didnt-let-us-miss-our-appointment/) - When Stacey Declerk was given a camera for Christmas, she had no idea it would lead to the discovery that her son Brody had eye cancer. She shares her story
- [CHECT pays tribute to Caroline Aherne](https://chect.org.uk/chect-pays-tribute-to-caroline-aherne/) - The Childhood Eye Cancer Trust was terribly sad to hear the news on Saturday that the writer, actress and comedian Caroline Aherne had died at the age of 52.
- ["It was only when my daughter was born, that I felt my mother’s pain."](https://chect.org.uk/it-was-only-when-my-daughter-was-born-that-i-felt-my-mothers-pain/) - Diagnosed with bilateral retinoblastoma 33 years ago, Aazmeen shares her story of how inheriting the Rb gene has had an impact on her life.
- [New pregnancy testing technology (NIPD) for retinoblastoma now available](https://chect.org.uk/new-pregnancy-testing-technology-now-available/) - A new type of in-pregnancy testing called Non-Invasive Prenatal Diagnosis (NIPD) is now available for families affected by the heritable (genetic) form of retinoblastoma. This article explains more about the process, the benefits it can provide, and who is eligible. What is NIPD? Non-invasive prenatal diagnosis (NIPD) uses a blood sample taken in pregnancy from
- [Ethan's CHECT Champion award](https://chect.org.uk/ethans-chect-champion-award/) - A five-year-old boy from Rhyl has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Ethan was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six-years-old, in November 2017 when he was only a few days old. Tests
- [Charity eye patch day](https://chect.org.uk/charity-eye-patch-day/) - Katie Peller got 100 people to take part in an eye patch day, raising awareness of retinoblastoma as well as valuable funds for the Childhood Eye Cancer Trust.
- [Rb survivor is a sports star](https://chect.org.uk/rb-survivor-is-a-sports-star/) - After battling retinoblastoma as a toddler, Will Jubb, 19, really kicked cancer by realising his dream to become a semi-professional rugby player.
- [‘Retinoblastoma is life changing but it doesn’t have to be a life sentence’](https://chect.org.uk/retinoblastoma-is-life-changing-but-it-doesnt-have-to-be-a-life-sentence/) - Alison Scattergood was just six weeks old when she was diagnosed with the eye cancer retinoblastoma, and within a month she’d had her eye removed.
- [Retinoblastoma: genetic testing](https://chect.org.uk/retinoblastoma-genetic-testing/) - Dr Simon Ramsden and Dr Trevor Cole answer some of the most frequently asked questions about genetic testing for retinoblastoma.
- [A guide to holidays](https://chect.org.uk/a-guide-to-holidays/) - When your child is having any type of treatment for retinoblastoma it’s a challenging time for the whole family, so it can help to unwind and spend time together away from the hospital.
- [CHECT Chief Exec blog update](https://chect.org.uk/chect-chief-exec-blog-update/) - Patrick Tonks, CHECT Chief Exec gives an update on the support we are providing during these difficult times and how COVID-19 is impacting the charity.
- [A day in the life of a CHECT support worker](https://chect.org.uk/a-day-in-the-life-of-a-chect-support-worker/) - Sarah Turley is based in Birmingham Children’s Hospital. She shares with us what it’s like to be a CHECT support worker during these unusual times.
- [How to prepare for a long distance running challenge](https://chect.org.uk/how-to-prepare-for-an-extreme-challenge/) - Here Dan discusses why he has chosen the 82 mile run and provides us with tips on how to prepare for a long distance running challenge.
- [Meet our 2023 Great North Runners!](https://chect.org.uk/meet-our-2023-great-north-runners/) - Good luck to the Great North Run TeamCHECT runners taking on the half marathon challenge on the 10 September.
- [Meet our 2024 Great North Runners!](https://chect.org.uk/great-north-run-2024/) - [et_pb_section fb_built=”1″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_blurb _builder_version=”4.27.0″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”] A huge good luck to the Great North Run TeamCHECT runners taking on the half marathon challenge on the 8 September. Here you can learn a bit about some of our amazing #TeamCHECT runners: Ian Bird Hi I’m Ian, a
- [Meet our London Marathon Runners!](https://chect.org.uk/our-london-marathon-runners-2/) - Good luck to all our wonderful #TeamCHECT London Marathon runners who will be pounding the streets of London on 2 October 2022!
- [London Marathon Runners 2023! ](https://chect.org.uk/meet-our-london-marathon-runners-2/) - We wish the best of luck to our #TeamCHECT London Marathon runners who will be pounding the streets of London on Sunday 23 April 2023!
- [Festus’ fundraising story! ](https://chect.org.uk/festus-fundraising-story/) - As a family we’d never heard of retinoblastoma ever before our daughter, Harper-Rose, was diagnosed with the eye cancer when she was a baby.
- [London Marathon Runners 2024! ](https://chect.org.uk/london-marathon-runners-2024/) - We wish the best of luck to our #TeamCHECT London Marathon runners who will be pounding the streets of London on Sunday 21 April 2024!
- [Run For Charity](https://chect.org.uk/run-for-charity/) - Ready to take on an outdoor Challenge now that mass participation events are opening up again? From the Brighton Marathon to the Hackney Half, we can offer you places to run for CHECT in the UK’s top events! Take a look at what’s on offer on our challenge page here. If you are looking for
- [Meet our London Marathon Runners](https://chect.org.uk/meet-our-london-marathon-runners/) - Good luck to all our wonderful #TeamCHECT London Marathon runners! After last year's public race was postponed, the event has been rescheduled for 3rd October 2021. Many of our runners are able to join in via the Virtual London Marathon, meaning we have a record number of runners taking part! Running the London Marathon Route
- [Regent’s Park - Would you like to join us for a fun day out?](https://chect.org.uk/would-you-like-to-join-us-for-a-fun-day-out-in-regents-park/) - Would you like to join us for a fun day out in Regent’s Park? We had such an amazing Sunday morning earlier in the month, at this year’s RunThrough event.
- [Starting School](https://chect.org.uk/starting-school/) - Starting school is a huge step for any child but there are added worries for parents of a child who has had retinoblastoma, as Jodie Wood discovered.
- [Colchester members’ day in pictures](https://chect.org.uk/colchester-members-day-in-pictures/) - Around 80 people descended upon Colchester Zoo on Saturday for our regional members’ day. See the day in pictures here.
- [#YouMadeItHappen](https://chect.org.uk/youmadeithappen/) - Today is #YouMadeItHappen day, and a chance for the Childhood Eye Cancer Trust to tell you about the difference your amazing support has made.
- [Starting a new school](https://chect.org.uk/starting-a-new-school/) - We've gathered a wealth of helpful information for parents with visually impaired children who are starting at a new school.
- [Protective eyewear for children with monocular vision](https://chect.org.uk/protective-eyewear-for-children-with-monocular-vision/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” min_height=”1272.7px” global_colors_info=”{}”] When children and young people have monocular vision, it’s even more important to preserve their eyesight. But that doesn’t mean that they have to miss out on all the fun of sports and activities. Zishan Naeem,
- [Congratulations to all the CHECT champions of 2015](https://chect.org.uk/congratulations-to-all-the-chect-champions-of-2015/) - More than 40 children affected by the eye cancer retinoblastoma won a CHECT Champion award in 2015 for their courage and determination.
- [Cancer survivor Kaydan’s a champ!](https://chect.org.uk/cancer-survivor-kaydans-a-champ/) - Kaydan Jacques, four, has been given a CHECT Champion award for his bravery after surviving eye cancer.
- [Young eye cancer survivors are VIPs in Taunton](https://chect.org.uk/young-eye-cancer-survivors-are-vips-in-taunton/) - Two young Childhood Eye Cancer Trust ambassadors were special guests to officially open a new Vision Express store in Taunton.
- [CHECT members day is a roaring success](https://chect.org.uk/chect-members-day-is-a-roaring-success/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] CHECT’s Development Manager Matt Croxall talks about a very successful members day… Families in the North West region had a ‘monster’ of a day out this October during our visit to Liverpool’s fabulous World Museum. A fun and educational Dinosaur Workshop was just one highlight from a memorable day which saw one
- [Isabella wins bravery award](https://chect.org.uk/isabella-wins-bravery-award/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] A three-year-old girl from Oxfordshire has received a prestigious award in recognition of the courage she has shown while battling against a rare form of cancer. Isabella Goodale was just 10 weeks old when she was diagnosed with retinoblastoma in her left eye. Two days later, it was confirmed that she also had
- [This one’s for the dads](https://chect.org.uk/fathersday/) - This weekend it’s Father’s Day, a day to celebrate and thank all you amazing dads out there who go above and beyond to support your families.
- [CHECT Champs](https://chect.org.uk/james-and-olivia-are-champions/) - Nearly 10 years ago, in two different parts of the country, two children were diagnosed with retinoblastoma. Their families didn’t know each other but their stories bear many similarities.
- [Brave brother and sister awarded as CHECT Champions](https://chect.org.uk/brave-brother-and-sister-both-awarded-as-chect-champions/) - Siblings Thomas and Beth Hale have been awarded for their courage and bravery while one of them battled against the rare eye cancer retinoblastoma.
- [CHECT Champions awarded in Edinburgh](https://chect.org.uk/chect-champions-awarded-in-edinburgh/) - Nine deserving children have been given awards for their bravery by the Childhood Eye Cancer Trust.
- [Erin, 7, is a CHECT champ](https://chect.org.uk/erin-7-is-a-chect-champ/) - Erin Gentry, who had retinoblastoma, has been given an award by the Childhood Eye Cancer Trust in recognition of the commitment she has shown in helping other young eye cancer survivors.
- [Siblings scoop bravery awards](https://chect.org.uk/siblings-scoop-bravery-awards/) - Three children from the same family have received a CHECT Champion award in recognition of the courage they have displayed while one of them battles retinoblastoma.
- [CHECT Champions awarded at Twycross Zoo](https://chect.org.uk/chect-champions-awarded-at-twycross-zoo/) - Four deserving people – including our first ever adult – were given CHECT Champion awards during a special ceremony at our members’ day on Sunday.
- [There’s still time for a New Year’s Resolution – don’t give up yet!](https://chect.org.uk/theres-still-time-for-a-new-years-resolution-dont-give-up-yet/) - Sign up to a fundraising challenge for the Childhood Eye Cancer Trust and stick to your New Year's resolution to get fit or lose weight.
- [Team CHECT take on the Hampton Court Half Marathon](https://chect.org.uk/team-chect-take-on-the-hampton-court-half-marathon/) - Seven runners braved the bracing February weather on Sunday to raise funds for families affected by retinoblastoma at the Hampton Court Half Marathon.
- [Will’s cycling challenge inspired by son Benjamin](https://chect.org.uk/wills-charity-cycling-challenge-inspired-by-son-benjamin/) - Will Plant took part in the Roubaix Challenge cycling event for the Childhood Eye Cancer Trust after his son Benjamin was diagnosed with retinoblastoma.
- [CHECT Christmas eCards](https://chect.org.uk/chect-christmas-ecards/) - We’re delighted to reveal our 2016 Christmas eCards, which have all been created with a little help from our Santa’s elves.
- [Share some Christmas love with a CHECT charity e-card](https://chect.org.uk/share-some-christmas-love-with-a-chect-charity-e-card/) - Want to get into the festive spirit AND help families affected by retinoblastoma this Christmas? There’s an easy way to do it – simply send a Christmas e-card.
- [Golfers raise £5k for CHECT](https://chect.org.uk/golfers-raise-5k-for-chect/) - Members of an Essex golf club have raised more than £5,000 to help families affected by retinoblastoma.
- [Team Harry take on the three peaks](https://chect.org.uk/team-harry-take-on-the-three-peaks/) - After his grandson Harry was diagnosed with retinoblastoma, Paul Stokes decided to raise funds for the Childhood Eye Cancer Trust by taking on three peaks.
- [Desert trek for Kitty](https://chect.org.uk/desert-trek-for-kitty/) - Cathy Woodstock was so determined to raise awareness of retinoblastoma after her little girl Kitty’s cancer battle that she signed up for a charity trek through the Sahara desert.
- [VW group raise £5,000 for CHECT](https://chect.org.uk/vw-group-raise-5000-for-chect/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Volkswagen enthusiasts have helped to raise £5,000 to help families affected by retinoblastoma. The Yeovil VW group Scrumpy Dubbers presented the Childhood Eye Cancer Trust with a cheque following its annual festival earlier this year. The event, called Dubs at the Mill, was a sell out success, with scores of VW fans
- [‘Whose idea was this?’](https://chect.org.uk/whose-idea-was-this/) - Seven mates did a charity cycle ride from Liverpool to Leeds to raise money for the Childhood Eye Cancer Trust and help in the fight against retinoblastoma.
- [A little help from our friends](https://chect.org.uk/a-little-help-from-our-friends/) - As a small charity the Childhood Eye Cancer Trust needs to make very penny count and keep a tight rein on the budget, always using the most competitive suppliers available and taking up any offers of services and skills that may come our way.
- [Vision Express Ride4Sight raises £25k](https://chect.org.uk/vision-express-ride4sight-raises-25k/) - Volunteers from Vision Express took part in a 200-mile cycle challenge called Ride4Sight, and raised £25,000 to help families affected by retinoblastoma.
- [Global’s Make Some Noise](https://chect.org.uk/globals-make-some-noise/) - The Childhood Eye Cancer Trust has received an incredible donation of £93,000 to help support families affected by retinoblastoma (Rb).
- [Looking back on 2018](https://chect.org.uk/looking-back-on-2018/) - As the year draws to an end, it’s a time when we like to look back and reflect on what we’ve achieved, thanks to your absolutely amazing support.
- [Thank you trustees!](https://chect.org.uk/thank-you-trustees/) - All of the staff at the Childhood Eye Cancer Trust and all those individuals and families that we are able to help and support would like to take this opportunity, during trustees week, to thank our wonderful group of trustees for their commitment, their support, their insights, their energy and their guidance. At CHECT we
- [“Second cancers have always been in the back of my mind.”](https://chect.org.uk/second-cancers-have-always-been-in-the-back-of-my-mind/) - Louise shares how her retinoblastoma has not held her back, but also how important it is to be aware of the risks of adult second cancers.
- ["My cancer does not define me, nor is it an excuse to not try."](https://chect.org.uk/my-cancer-does-not-define-me-nor-is-it-an-excuse-to-not-try/) - Whilst retinoblastoma has affected her life, Monica has not let the disease hold her back from success or from chasing her dreams. Now age 30, she recalls her story.
- [“Having had Rb has certainly taught me not to stint on what I value: family, friends and the things that bring me joy” ](https://chect.org.uk/annas_story/) - Anna reflects on her journey through retinoblastoma, a secondary cancer, and life beyond cancer. Please be warned that this article contains an experience of a very rare secondary cancer and therefore could be triggering to some. Please read at your discretion, and contact our support team and refer to the links at the end of
- [Rb training launched](https://chect.org.uk/e-learning-module-launched/) - Vision Express employees across the UK will now receive professional training on the signs of the childhood eye cancer retinoblastoma.
- [Early years and visual impairment](https://chect.org.uk/early-years-and-visual-impairment/) - A diagnosis of bilateral retinoblastoma can sometimes mean that your child may have some problems with their eyesight. This may result in the need for additional help and support as your child is growing up.
- [Ride4Sight cycle team announced](https://chect.org.uk/ride4sight-cycle-team-announced/) - Our corporate partner Vision Express has unveiled the 30-strong team who will be riding in this year’s legendary Ride4Sight challenge to raise funds for the Childhood Eye Cancer Trust. 
- [‘Our miracle baby has arrived’](https://chect.org.uk/our-miracle-baby-has-arrived/) - Rachael Tuley tells her story of surviving bilateral retinoblastoma and having her miracle baby after using pre-implantation diagnosis (PGD).
- [Kelsey unveils restored opticians](https://chect.org.uk/kelsey-unveils-restored-opticians/) - Kelsey Trevett was guest of honour to launch newly refurbished premises for Vision Express Ruislip.
- [Michael's Journey: From retinoblastoma to fitness expert](https://chect.org.uk/michaels-retinoblastioma-story/) - For World Retinoblastoma Week, we spoke to Michael about his journey from the childhood eye cancer retinoblastoma, his enucleation and beyond! Background History and Diagnosis My name is Ayokunle Michael Omotayo (Michael), and I was born on 1st October 1992 in Kings College Hospital, South East London. I was diagnosed with retinoblastoma in my left
- [Ana's story: From diagnosis to adulthood!](https://chect.org.uk/anas-story-from-diagnosis-to-adulthood/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] What were the signs and symptoms you experienced, and who first spotted them? One day, while I was playing on the carpet, my mother called my name. When I looked up, she noticed
- [Practical advice for the cost of living challenges](https://chect.org.uk/practical-advice-for-the-cost-of-living-challenges/) - Families in the UK are facing a cost of living crisis. People with disabilities often have higher additional costs. In this blog we look at how to help
- [Ivy's glittery eye!](https://chect.org.uk/ivys-glittery-eye/) - We were delighted to receive this heartwarming message from Ivy's mum Ewelina, after Ivy lost her eye to retinoblastoma.
- [Laura's retinoblastoma story: From patient to nurse!](https://chect.org.uk/lauras-retinoblastoma-story-from-patient-to-nurse/) - As part of Childhood Cancer Awareness Month, we spoke to Laura, who had retinoblastoma as a child. Here are her experiences: Growing up I am a great believer that everything happens for a reason and here’s why. I grew up in a little village in co. Down. I have 5 brothers (2 older and 3
- [Megan's Golden Prosthetic Eye](https://chect.org.uk/megans-golden-eye/) - Megan shares with us her retinoblastoma story, and how why she decided she wanted to have a golden prosthetic eye.
- [Paralympian Simon Hill - The highs and lows of living with blindness](https://chect.org.uk/paralympian-simon-hill-the-highs-and-lows/) - Simon Hill, who represented Team Gb in the Beijing Paralympics, talks to CHECT about the highs and lows of living without sight following retinoblastoma.
- [Steven's Retinoblastoma Story: From diagnosis to rugby](https://chect.org.uk/stevens-retinoblastoma-story-from-diagnosis-to-rugby/) - I was diagnosed with retinoblastoma (Rb) when I was 3 months old and fortunately through my mum’s awareness I only lost sight in my right eye
- [Life with bilateral retinoblastoma: Natalie's creative streak](https://chect.org.uk/natalies-creative-streak/) - Mum Sanya describes how having bilateral retinoblastoma is not getting in the way of her daughter Natalie's accomplishments. "My daughter Natalie has bilateral retinoblastoma but that does not stop her to do all the amazing stuff she loves. She loves to do gymnastics, horse riding, making stuff with clay, playing violin and swimming. Natalie won
- [Jude's customised prosthetic eye!](https://chect.org.uk/judes-customised-prosthetic-eye/) - Nine-year-old Jude discusses why he chose to go for a customised prosthetic eye after losing his eye to retinoblastoma. Nine-year-old Jude discusses why he chose to go for a customised prosthetic eye after losing his eye to retinoblastoma.
- [Ernie’s retinoblastoma story - by his mum Keri](https://chect.org.uk/ernies-story/) - When Ernie was diagnosed with cancer just before his first birthday, it was his parents’ worst nightmare. But positivity saw them through.
- [Looking after yourself](https://chect.org.uk/looking-after-yourself/) - When your child is diagnosed with retinoblastoma, so much energy goes into looking after them and the rest of the family that it can be easy to forget to take care of yourself. But, as Lesley Geen, CHECT support worker, explains, this is important too.
- [‘Having one eye makes me who I am’](https://chect.org.uk/having-one-eye-makes-me-who-i-am/) - Kate, who had Rb as a baby, looks back on her journey to achieve her dream of becoming a nurse, so she can support families just like hers.
- ["I don’t feel as lonely as I do in the real world."](https://chect.org.uk/i-dont-feel-as-lonely-as-i-do-in-the-real-world/) - Isaac was diagnosed with Rb and is living with a visual impairment. He explains how the Ellen MacArthur Cancer Trust has helped him to build his confidence.
- [Brave Boy Seb Scoops Award](https://chect.org.uk/brave-boy-seb-scoops-award/) - A four-year old boy from Fair Oak has received a prestigious award in recognition of the courage he has shown while battling against retinoblastoma.
- [Make time for tea](https://chect.org.uk/teaparty/) - September is Childhood Cancer Awareness Month and we'd love you to plan a charity tea party for the Childhood Eye Cancer Trust to mark this event.
- [Armanie, 7, raises awareness](https://chect.org.uk/armanie-7-raises-awareness/) - Seven-year-old Armanie Binning is doing her bit to raise awareness of retinoblastoma by writing this heartwarming letter to her headteacher.
- [Supporting siblings](https://chect.org.uk/supporting-siblings/) - Dr Jennie Robertson, Clinical Psychologist, offers advice to parents and carers on how they can support the brothers and sisters of children living with cancer.
- [‘We’ve come so far in a year’](https://chect.org.uk/weve-come-so-far-in-a-year/) - Xavi was diagnosed with retinoblastoma just after he turned two. Now, as he approaches his third birthday, his mum Rhiannon Malbas shares their family’s story.
- [London Marathon 2025 - meet the runners!](https://chect.org.uk/london-marathon-2025-meet-the-runners/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] This year, an inspiring team of runners is taking on the iconic TCS London Marathon in support of the Childhood Eye Cancer Trust (CHECT). These dedicated individuals—whether seasoned marathoners or first-time challengers—are lacing up their running
- [London Marathon 2024](https://chect.org.uk/london-marathon-2024/) - We are thrilled to celebrate our 14 incredible runners who took part in the iconic TCS London Marathon on 21st April 2024, raising a fantastic £45,000 including Gift Aid. We are so proud of them, for dedicating the time and effort to train and fundraise for CHECT, resulting in all 14 of them crossing the
- ["My daughter lost her eye to cancer after we spotted her iris changed colour”](https://chect.org.uk/esmaes-story/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.0″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] A mum from Birmingham is urging other parents to look out for the tell-tale signs of eye cancer this Childhood Cancer Awareness Month, after her three-year-old daughter Esmae was diagnosed with retinoblastoma, a rare eye cancer
- [“A school vision screening led to my daughter’s eye cancer being spotted” ](https://chect.org.uk/a-school-vision-screening-led-to-my-daughters-eye-cancer-being-spotted/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] A mum from County Caven is urging other parents to look out for the tell-tale signs of eye cancer this Childhood Cancer Awareness Month, after her five-year-old daughter Rachel was diagnosed with retinoblastoma, a rare eye cancer that
- [“We spotted our son’s rare cancer because our friend’s child was diagnosed the same year.” ](https://chect.org.uk/thomas-rb-christmas-story/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] A mum and dad from Cheshire are urging other parents to look out for the tell-tale signs of eye cancer this Christmas after their two-year-old son, Thomas, was diagnosed with retinoblastoma, a rare eye cancer that typically affects
- ["A flash of light in a photo uncovered my daughter's cancer"](https://chect.org.uk/shuhd/) - A dad from London is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day after his two-year-old daughter, Shuhd, was diagnosed with retinoblastoma.
- [“My daughter’s eye cancer was mistaken for eczema” ](https://chect.org.uk/my-daughters-eye-cancer-was-mistaken-for-eczema/) - A mum from Cheshire is urging other parents to look out for the tell-tale signs of eye cancer this Childhood Cancer Awareness Month, after her six-month-old daughter was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of six. Katherine O’Neill had noticed her newborn Amelia had been rubbing her left eye
- [“Our son spent the Christmas period in hospital after being diagnosed with retinoblastoma”](https://chect.org.uk/ciansstory/) - A mum from the Shetland Islands is urging other parents to look out for the tell-tale signs of eye cancer this Christmas, after her thirteen-month-old son was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of six. As part of our Christmas campaign, we are asking for your kind donations to help our charity to be able to continue our integral support, research and awareness work.
- ["I spotted cancer in my baby’s eye as I cooked dinner” ](https://chect.org.uk/thomas_retinoblastoma/) - A mum is urging other parents to look out for the tell-tale signs of eye cancer, after their three-month-old son was diagnosed with retinoblastoma
- [Meet Our Patron: Darren Harris](https://chect.org.uk/meet-our-patron-darren-harris/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Darren Harris has been CHECT’s patron since 2012. He has supported several fundraising events including Ride4Sight and Art4Eyes. He’s also a member of the Beyond Rb group, having been diagnosed with bilateral retinoblastoma;
- [Livi Deane features on The Traitors](https://chect.org.uk/livi-deane-features-on-the-traitors/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We are thrilled that our ambassador, Livi Deane, participated in the third series of BBC One’s “The Traitors,” which premiered on January 1, 2025. Livi, a 26-year-old beautician and model from Horsham, England,
- [Meet Lucy The Pianist](https://chect.org.uk/lucy-the-pianist/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”54px|||||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We spoke to Candice, the mum of BAFTA-nominated Lucy, who found fame on The Piano about Lucy’s experiences with retinoblastoma, and life now as a musician with a newly released album. Can you tell us
- [Evie's retinoblastoma story: From diagnosis to now](https://chect.org.uk/evies-retinoblastoma-story/) - Mum Danielle shares Evie’s retinoblastoma diagnosis story with CHECT for World Sight Day. It was 11th January 2023 and a day like any other day. I was feeding Evie lunch whilst she was watching her favourite presenter 'Miss Rachel' at the time when I noticed a haze or a cloudy smear across her eye. I
- [Name our penguin!](https://chect.org.uk/name-our-penguin/) - Thanks to the generosity of Phoenix Bespoke Solutions Ltd, us at CHECT have been busy behind the scenes creating a toy to support children who have had, or who will have an enucleation. And we’re now excited to show you our penguin! This fluffy friend can be used to explain this procedure by the clinical
- [“My daughter’s optometrist aunt referred her for retinoblastoma” ](https://chect.org.uk/olivia-retinoblastoma-story/) - Parents are urging others to look out for the signs of eye cancer, after their daughter was diagnosed with retinoblastoma
- [Young Lives vs Cancer: Help with travel costs petition](https://chect.org.uk/help-with-travel-costs-petition/) - Young Lives vs Cancer's latest research shows, on average, children and young people with cancer are travelling 350 miles and spending £250 each month, all to get to hospital. 71% are struggling to meet these costs, and one in 10 are missing or delaying their treatment because the costs are so high. Many are worrying
- [Opportunity for young people to help shape future CHECT support!](https://chect.org.uk/meet-nicola-odonnell-chects-phd-researcher/) - Nicola O'Donnell has just begun a CHECT-funded PhD which will ultimately lead to new support resources being developed to help young people who have had Rb transition to adulthood. We took the opportunity to ask her some questions! What is your background? I completed an Applied Clinical Psychology degree in 2016, and I worked in
- [New exciting retinoblastoma research](https://chect.org.uk/new-exciting-retinoblastoma-research-announced/) - CHECT is delighted to announce our latest new retinoblastoma research project. The he project aims to form the basis for a possible new treatment
- [Research into understanding retinoblastoma mutations](https://chect.org.uk/milestone-research-into-understanding-retinoblastoma-mutations/) - As part of a research project funded by CHECT, Dr Carmel McConville talks through understanding the mutational landscape of retinoblastoma
- [Top priorities for childhood cancer research](https://chect.org.uk/top-10-priorities-for-childhood-cancer-research-revealed/) - A list of the top 10 research priorities for childhood cancer research has been published, following a collaborative project
- [Love Your Eyes: Olivia's Story](https://chect.org.uk/love-your-eyes-olivias-story/) - World Sight Day takes place on the 14th October this year, with a theme that you should #LoveYourEyes. Loving your eyes can come in many forms – for instance – attending all your eye appointments or looking after your eyes by wearing sunglasses. At CHECT, we also want to celebrate eyes in all their forms
- [“A Polaroid picture helped reveal the eye cancer that cost our son his eye” ](https://chect.org.uk/a-polaroid-picture-helped-reveal-the-eye-cancer-that-cost-our-son-his-eye/) - Beth
- [Can you spare some time to help research into developing resources for adults affected by Rb?](https://chect.org.uk/can-you-spare-some-time-to-help-research-into-developing-resources-for-adults-affected-by-rb/) - Can you spare some time to help research into developing resources for adults affected by Rb? Nicole Beddard, who has had bilateral retinoblastoma (Rb), is looking for your help. An open letter from Nicole: For those of you who don’t know me I am Nicole Beddard, I live in the North East of England and
- [What are your child's priorities for future research?](https://chect.org.uk/what-are-your-childs-priorities-for-future-research/) - The Children’s Cancer Priority Setting Partnership wants to know what children who have experienced childhood cancer think should be priorities for future research… If your child (aged 15 or under) has had cancer, or has a sibling or friend who has cancer, they are invited to take part in this survey to tell researchers what
- [CHECT research - Rb registry](https://chect.org.uk/establishing-an-enhanced-rb-registry/) - Establishing an enhanced retinoblastoma registry to improve the services and care provided to children in the UK.
- [Get your local MP involved in Rb Awareness Week](https://chect.org.uk/get-your-local-mp-involved-in-rb-awareness-week/) - We're inviting MPs to come along to meet parents of children and adults affected by Rb - and we need your help!
- [Having had Rb, I hope my academic work will help others](https://chect.org.uk/having-had-rb-herself-nicole-is-passionate-about-continuing-her-rb-project-to-help-others/) - Having had Rb herself, Nicole wants to continue her Rb-related Masters project to PhD level.
- [Raising awareness](https://chect.org.uk/raising-awareness/) - Raising awareness of retinoblastoma and its symptoms among parents and healthcare professionals, like GPs and health visitors, is a crucial part of our work.
- [Schools scoop Art4Eyes prizes](https://chect.org.uk/schools-scoop-art4eyes-prizes/) - Hundreds of schools from across the UK entered CHECT’s Art4Eyes competition earlier this year, creating artwork based on the theme of eyes.
- [CHECT lottery - win up to £25,000!](https://chect.org.uk/lottery/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] What better day to launch the new Childhood Eye Cancer Trust (CHECT) lottery than on the first day of Childhood Cancer Awareness Month? Not only can you be in with a chance of winning £25,000 each week but for every £1 you spend, 50p will go directly to CHECT to help raise awareness
- [‘She just bounces back every time’](https://chect.org.uk/she-just-bounces-back-every-time/) - She’s only 16 months old but horse lover Felicity Bone is already fearless when it comes to her four legged friends.
- [Family of footballing legend hold charity auction](https://chect.org.uk/family-of-footballing-legend-hold-charity-auction/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] A signed Sunderland football shirt and an autographed copy of one of the most iconic goals in history are just two of the items up for grabs to raise money for the Childhood Eye Cancer Trust. The online eBay auction, which starts on Friday (10 March) has been organised by Tina Treadwell,
- [Will your New Year’s resolution make a difference?](https://chect.org.uk/will-your-new-years-resolution-make-a-difference/) - New Year’s resolutions are notoriously hard to keep. Make sure you stick to yours and give yourself that feel good feeling in 2017 by taking on a CHECT challenge
- [Supporting teenagers after retinoblastoma](https://chect.org.uk/supporting-teenagers-after-retinoblastoma/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] This week a couple of us had the pleasure of getting out of the office and hospital to spend time on a site visit researching the venue we have chosen for our first ever Teenage Weekend at St Mark’s College. Our first foray into the world of residential breaks for younger members
- [Art to be auctioned on eBay to raise money for CHECT this Christmas](https://chect.org.uk/art-to-be-auctioned-on-ebay-to-raise-money-for-chect-this-christmas/) - Looking for a unique Christmas present? The Childhood Eye Cancer Trust is auctioning off 10 artworks, some from renowned artists across the globe to raise vital funds for families affected by retinoblastoma (Rb).
- [InFocus readers survey – have your say now](https://chect.org.uk/survey/) - Here in the CHECT office we’re busy planning how we can make our InFocus newsletter even better in 2016, and we need your help.
- [CHECT Champion - Kate Bravery](https://chect.org.uk/chect-champion-kate-bravery/) - Some great coverage from ITV this week about one of our brilliant CHECT Champions, Kate Bravery. See the full story HERE.
- [Dive into fundraising](https://chect.org.uk/dive-into-fundraising/) - The CHECT team members are no strangers to fundraising – we are always happy to lead by example, mucking in and joining our supporters whenever we can.
- [Help cheer on the Childhood Eye Cancer Trust’s London Marathon runners!](https://chect.org.uk/help-cheer-on-the-childhood-eye-cancer-trusts-london-marathon-runners/) - We are delighted to have 13 amazing people running in the Virgin London Marathon this year, all raising funds for CHECT on Sunday 26 April.
- [Team CHECT take on the London Marathon](https://chect.org.uk/team-chect-take-on-the-london-marathon/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Fundraising manager Fiona Heath reports back on a brilliant day for our runners in the London Marathon and their families and supporters who came along to cheer them on. Bright spirits The skies may have been grey and leaden but our runners’ spirits were bright, up early ready for the challenge of
- [A new type of retinoblastoma](https://chect.org.uk/a-new-type-of-retinoblastoma/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] In 2013 a ‘new type of Rb’ was revealed by Dr. Brenda Gallie at the Princess Margaret Cancer Centre, University Health Network, in Canada. Rb specialists in the UK provided the following information
- [Just diganosed](https://chect.org.uk/just-diganosed/) - Retinoblastoma – just diagnosed If your child has just been diagnosed with retinoblastoma, it can be an extremely stressful and frightening time. We are here to support you in any way that we can, and your support worker will chat to you on the ward about how best we can help you. How do I
- [Meet Footballer Adam Lione](https://chect.org.uk/adamlione/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] From being diagnosed with retinoblastoma to representing England on the international stage, Adam Lione’s shares his story with us. Can you tell us about your retinoblastoma diagnosis? I was diagnosed at 16 weeks old, and early
- [New retinoblastoma research confirmed](https://chect.org.uk/new-retinoblastoma-research-confirmed/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We are delighted to confirm that CHECT will be funding the next stage of “Developing an evidence-based psycho-educational intervention for teenagers and young adults who have had retinoblastoma”. Having spent three years understanding
- [Monocular vision](https://chect.org.uk/monocular-vision/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] PLEASE NOTE: Every child is different and therefore will adapt differently. This is not related to intelligence – some people will simply struggle with certain tasks in certain settings. Children with special needs may always find
- [Artificial eyes school action plan](https://chect.org.uk/artificial-eyes-school-action-plan/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] School teachers may not be covered to remove or replace artificial eyes, so you will need an action plan in place in case of any problems arising during school time. Take time in advance to
- [History of the Childhood Eye Cancer Trust](https://chect.org.uk/history-of-the-childhood-eye-cancer-trust/) - [et_pb_section][et_pb_row][et_pb_column type=”4_4″][et_pb_text] 1984 In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. During this time Janet and Pelham set up the David Allen Retinoblastoma Appeal to fund research into retinoblastoma and raised an incredible £250,000. 1986 in 1986 when all parents attending Moorfields were invited to meetings to hear
- [Neng's Book Review](https://chect.org.uk/thelastbear/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Eleven-year-old Neng, who had retinoblastoma, has written a book review for CHECT. My Book Review Title: The Last Bear Author: Hannah Gold The writer presents April, the main character, as kind and fearless
- [World Book Day: Retinoblastoma and Me](https://chect.org.uk/world-book-day-retinoblastoma-and-me/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We spoke to Courtney Banfield, the author behind ‘Retinoblastoma and Me’. Can you tell us what your book is about and called? The book is called ‘Retinoblastoma and Me’ and is based
- [The Ffion Miles Bursary 2025](https://chect.org.uk/ffion-miles/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”||0px|||” global_colors_info=”{}”] In honour of Ffion’s love for music, we are pleased to announce the return of the Ffion Miles Music Bursary, open to all CHECT members, regardless of age, for 2025. The Bursary,
- [Flynn appears on BBC News](https://chect.org.uk/flynn/) - A huge thank you to Flynn and his mum Katie for helping us to raise awareness of retinoblastoma across the media, radio and TV. Flynn Fairhurst was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six-years-old, in 2023 when he was still only seven months old. Tests at Birmingham Children’s
- [Mini-me – let’s help them see! ](https://chect.org.uk/mini-me-lets-help-them-see/) - Many children who have had retinoblastoma may also wear glasses to correct their sight. Alicia Thompson, Director of Education, Research and Professional Development at ABDO (the Association of British Dispensing Opticians*) explains the importance of a good fit for children’s glasses, and what to look for. A child’s face is not the same as a
- [Martha's love for adventure](https://chect.org.uk/martha/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″] When Martha was 2 years old, she was diagnosed with retinoblastoma, a rare eye cancer. To treat it, she had her left eye removed and underwent chemotherapy. Now 9 years old, Martha is healthy
- [Christmas Family Event](https://chect.org.uk/christmas-family-event/) - Even the might of Storm Darragh, train cancellations and widespread flooding couldn’t stop 13 families heading to London for the CHECT Christmas party. We had lovely festive morning full of magic, dancing, crafting, Christmas songs and of course mince pies! And as you can see from the photos, everyone had their best Christmas outfits on.
- [A letter from Janet and Pelham Allen](https://chect.org.uk/janet/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] In 1984 Janet and Pelham Allen’s then two-year old son David was diagnosed with retinoblastoma. Despite ongoing treatment for four years, David sadly died in 1988. During this time Janet and Pelham set
- [Leicester Event: National Space Centre](https://chect.org.uk/national-space-centre/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We had such a lovely day at the National Space Centre in Leicester! Nine families joined Lena, Sarah, and Lucy from the team for an afternoon filled with fun, rocket-making, star-gazing, and exploring
- [CHECT are on Children in Need!](https://chect.org.uk/children-in-need/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Ahead of tonight’s (15 November) BBC Children in Need Appeal Show on BBC One and iPlayer, Girls Aloud members, Nadine Coyle and Kimberley Walsh, visited the Children Eye Cancer Trust at the Royal London Hospital, to
- [InFocus Winter 2024 - Plain Text Version](https://chect.org.uk/infocus-winter-2024-plain-text-version-2/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”] We’re pleased to present the latest edition of our CHECT InFocus Winter 2024 Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months.
- [The impact of a child’s retinoblastoma diagnosis on their parents’ psychosocial functioning in the longer term](https://chect.org.uk/the-impact-of-a-childs-retinoblastoma-diagnosis-on-their-parents-psychosocial-functioning-in-the-longer-term/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We spoke to researcher Clare Stothart about her latest retinoblastoma research: Hi, I’m Clare and my daughter was diagnosed with bilateral retinoblastoma at the age of 2 years and 8 months. At the
- [Armanie discusses her sister's Rb on the BBC for Children in Need](https://chect.org.uk/kritis-story/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We’re incredibly grateful to Kriti, Armanie, and Aazmeen for courageously sharing their experiences with retinoblastoma on the BBC. Kriti, at just eight years old, has already attended over 200 appointments to treat and
- [Celebrating Livi Deane's Inspirational Book Launch: My New Normal](https://chect.org.uk/celebrating-livi-deanes-inspirational-book-launch-my-new-normal/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] We were thrilled to join CHECT Ambassador and member Livi Deane at the launch of her powerful debut memoir, My New Normal, on Wednesday at the iconic Waterstones store in Piccadilly. Our Communications Manager Isabella and
- [Interview with Paralympian Stephen Clegg](https://chect.org.uk/stephen-clegg/) - We had the pleasure of speaking with Stephen Clegg, fresh off his incredible achievement of winning two medals at the Paris 2024 Paralympics. Stephen opened up about his journey navigating the challenges of competing at an elite level with vision loss, sharing insights into his mindset and the path to success. In the crowd cheering
- [Through Trials and Triumphs: Celebrating Family at the Paralympics  ](https://chect.org.uk/through-trials-and-triumphs-celebrating-family-at-the-paralympics/) - We spoke to Felicity – the mother of Adaline and sister of Paralympian Stephen Clegg – who discussed the experience of watching her brother win gold at the Paralympic Games in Paris. She reflects on the excitement of taking Adaline to see Stephen compete while managing her daughter’s journey with retinoblastoma, a rare eye cancer.
- [Kitty's Day at CHECT](https://chect.org.uk/kittys-day-at-chect/) - [et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Eleven-year-old Kitty joined us in the CHECT office recently to help us to raise some awareness of retinoblastoma during Childhood Cancer Awareness Month. Kitty explains how the day went: Hi, I’m Kitty, and September is Childhood
- [Ffion Miles Bursary Winner Announced](https://chect.org.uk/ffion-miles-bursary-winner-announced/) - The Ffion Miles Music Bursary was set up in 2022 in memory of the former CHECT member and her love of music, and her commitment to helping those who had also suffered from retinoblastoma, and a visual impairment. This year was the third year the Bursary has been awarded. As in previous years, it was
- [CHECT TYA podcasting day!](https://chect.org.uk/chect-tya-podcasting-day/) - CHECT PhD researcher Nicola O’Donnell recently organised a podcasting event in Birmingham for teens and young adults, as part of sharing the results of her research study. Nicola says: “Excitingly, I have received a lot of interest in this work and the first academic paper which summarises the findings has now been published in the
- [My Beautiful Socket](https://chect.org.uk/my-beautiful-socket/) - [et_pb_section fb_built=”1″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_blurb _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”] Our member Katie Bohana Davies sent us a poem about her eye that was removed due to having retinoblastoma. My Beautiful Socket and Me 💗 My beautiful socket, Behind my Prosthetic, My beautiful socket I see. I see it often, Daily,
- [Tobias' Crazy Glasses Event](https://chect.org.uk/tobias-crazy-glasses/) - Raising awareness about important health conditions can be both educational and fun, as Tobias’ preschool recently demonstrated.
- [Sam's Mascot Day!](https://chect.org.uk/sams-mascot-day/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_blurb _builder_version=”4.27.0″ _module_preset=”default” hover_enabled=”0″ sticky_enabled=”0″] A huge thank you to the Free Kicks Foundation for providing a great day out for our member, Sam! Mum Nicky says, “The official pictures from Sam’s day as a mascot at PNE v
- [Imogen's update!](https://chect.org.uk/imogens-update/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_blurb _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”] In 2021 we shared Imogen’s retinoblastoma story. We spoke to her mum Lorna to see how she is doing now. “Imogen was diagnosed with bilateral Retinoblastoma in November 2020, and over the following eighteen months
- [Become our InFocus Cover Stars!](https://chect.org.uk/cover-stars/) - [et_pb_section fb_built=”1″ theme_builder_area=”post_content” _builder_version=”4.27.0″ _module_preset=”default”][et_pb_row _builder_version=”4.27.0″ _module_preset=”default” theme_builder_area=”post_content”][et_pb_column _builder_version=”4.27.0″ _module_preset=”default” type=”4_4″ theme_builder_area=”post_content”][et_pb_blurb title=”Calling all future cover stars!” _builder_version=”4.27.0″ _module_preset=”default” theme_builder_area=”post_content” hover_enabled=”0″ sticky_enabled=”0″] We’re sorry to mention Christmas already, but we are busy putting together the next copy of InFocus and we are in need of photos of our stars in their Christmas jumpers and outfits
- [Harry's retinoblastoma awareness video!](https://chect.org.uk/harrys-rb/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] What a great video Harry made us for Childhood Cancer Awareness Month in September – thank you for helping us to raise such important awareness, Harry! {Video description: Harry is a young child,
- [Jaxon shines in sports!](https://chect.org.uk/jaxon/) - Hi! My name is Jaxon.I am eight-years-old. I am from Dublin, Ireland. I travel over to Birmingham Children’s Hospital for my appointments. I was diagnosed with bilateral retinoblastoma when I was two-years-old. I have had many different types of treatments.Ten days before my third birthday I had my right eye removed. After I had my
- [Christmas card competition 2024](https://chect.org.uk/christmas-card-competition-2024/) - Is your little one a budding artist? Would they like to see their very own picture on our charity Christmas cards this year?
- [InFocus Summer 2024 - Plain Text Version](https://chect.org.uk/infocus-summer-2024-plain-text-version/) - The plain text version of Summer InFocus magazine 2024.
- [Scarlet's sailing experience](https://chect.org.uk/sailing/) - The Ellen MacArthur Cancer Trust is a national charity that takes young people aged 8-24 on sailing and outdoor adventures to inspire them to believe in a brighter future living through and beyond cancer. When a young person gets the ‘all clear’, their whole world has changed. What happens after treatment can be as difficult
- [Junior's CHECT Champion Award](https://chect.org.uk/juniors-chect-champion-award/) - A four-year-old boy from Harrow has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Junior was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six-years-old, in September 2023 when he was still only three-years-old. Initial tests at
- [Samuel's CHECT Champion Award success!](https://chect.org.uk/samuels-chect-champion-award-success/) - A 10-year-old boy from Leyland in Lancashire has received a prestigious award in recognition of the courage he has shown while battling against an extremely rare form of cancer. Samuel was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six years old, in 2014 when he was just 18 months
- [Siblings win a CHECT Champion award!](https://chect.org.uk/siblings-win-a-chect-champion-award/) - Two brothers have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled against an extremely rare form of cancer. In March 2022 Harry Hanlon from Sutton Coldfield was diagnosed with retinoblastoma, a cancer which affects the retina of children predominantly under six-years-old. At the time Harry was
- [Cardiff family event](https://chect.org.uk/cardiff-family-event/) - We held our latest CHECT Family Day at Techniquest science centre in Cardiff. Sarah, Beth and Petra from the CHECT team were greeted by glorious Welsh sunshine as we came out of the train station. We just about had time to start setting up for the day, when excited families began arriving. It was a
- [Understanding how having Rb affects how you think and feel](https://chect.org.uk/understanding-how-having-rb-affects-how-you-think-and-feel/) - https://youtu.be/00XhTZMhbEU We spoke to Nicola O'Donnell about her CHECT-funded research, 'Understanding how having Rb affects how you think and feel': Retinoblastoma is a rare eye cancer affecting 40-50 UK children a year. Although it is highly curable, this experience can leave some people feeling complex emotions, including worry, anger, or sadness. These feelings can occur
- [“We spotted my son’s cancer in his eye as he played with toys"](https://chect.org.uk/arlos-retinoblastoma-story/) - A mum is urging other parents to look out for the tell-tale signs of eye cancer, after their son was diagnosed with retinoblastoma, a rare eye cancer.
- [Pathways to Diagnosis 2023](https://chect.org.uk/pathways-to-diagnosis-2023/) - The Childhood Eye Cancer Trust reports back on families’ experiences of being diagnosed with retinoblastoma (Rb) in the UK in the Pathways to Diagnosis report.
- [Family event: Discover Children's Story Centre ](https://chect.org.uk/discover-childrens-centre/) - On 23 March, 14 CHECT families braved the rain for a meet-up at Discover Children’s Story Centre in East London.
- [Beyond Rb event: Kelham Island Museum](https://chect.org.uk/kelhamisland/) - CHECT Head of Support Petra Maxwell and Fundraising Manager Priyanka Kotecha recently attended one of our Beyond Rb meet-ups. Here they discuss how the day went
- [Amazing Maisy](https://chect.org.uk/amazingmaisy/) - We spoke to author Kay Lewis about her first book, Amazing Maisy.
- [In memorial: Tony Dollery](https://chect.org.uk/tony-dollery/) - Shaun discusses his late father Tony, who raised over £6000 for CHECT by making and selling hedgehogs and bird boxes.
- [Frankie's artificial eye fitting](https://chect.org.uk/frankies-artificial-eye/) - We spoke to Robyn, whose daughter Frankie recently had a new artificial eye fitted. She tells us about the experience.
- [Ffion Miles Bursary 2024](https://chect.org.uk/ffion-miles-bursary-2024/) - If you or your child have a love for music, you could be the fourth person to benefit from The Ffion Miles Music bursary – in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma (Rb) and/or who had
- [Jaxon's football experience](https://chect.org.uk/jaxons-football-experience/) - With thanks to the Free Kicks Foundation, CHECT were able to send Jaxon - who had retinoblastoma - and his parents to go and watch the Liverpool vs. Chelsea Carabao Cup Final on Sunday. Jaxon was delighted to see his team win 1-0, with his mum adding that the seats were amazing and they all
- [World Book Day: How books helped me when I was in hospital](https://chect.org.uk/world-book-day-how-books-helped-me-when-i-was-in-hospital/) - We spoke to Emily Ann Davison - the author behind 'The Blue Umbrella' and 'Every Bunny is a Yoga Bunny' about the power of reading for World Book Day.
- [The Ffion Miles Bursary winner: Rosie](https://chect.org.uk/the-ffion-miles-bursary-winner-rosie/) - Rosie was one of two winners chosen to be the receiver of the Ffion Miles Music Bursary for 2023, in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma (Rb) and/or who had a visual impairment. Rosie has used the funding
- [I studied retinoblastoma after my son was diagnosed with Rb](https://chect.org.uk/joseph/) - We spoke to researcher Munachiso Samuel-Onyeka about her studies, and also her experiences of her son having retinoblastoma (Rb). What is your working or educational background? I studied Optometry and worked as an Optometrist before my master’s degree studies that commenced in September of 2022 at the University of Bedfordshire, Luton Campus. What is your
- [Taylor's on target for success](https://chect.org.uk/taylor/) - Taylor's mum Tina discusses what her son's life is like now after he was diagnosed with retinoblastoma, and his love for archery. "Taylor is 11 now and has taken up 3D field (Forrest really) archery. He recently did his first competition in cubs at the Isle of Wight and came home with a gold and
- [Scotland Family Day](https://chect.org.uk/scotland-family-day/) - CHECT Family Day at the Glasgow Science Centre, 18 November 2023 One very wet Saturday in November, Sarah and Petra travelled north of the border to meet some of our Scottish families at the Glasgow Science Centre. The amazing venue made it well worth the trip, with loads of hands-on experiments to try, play areas
- [InFocus Winter 2023 - Plain Text Version](https://chect.org.uk/infocus-winter-2023-plain-text-version/) - A plain text version of the Autumn/Winter InFocus edition.
- [Two gifts for the price of one](https://chect.org.uk/two-gifts-for-the-price-of-one/) - With Christmas on the horizon, why not give two gifts in one by shopping through websites that give a percentage of their profits to CHECT? Whether you are pre-ordering your Christmas dinner at your online supermarket through Give As You Live, or making the most of buying second hand via eBay – there are plenty
- [CHECT's Stafford Family Day](https://chect.org.uk/chects-stafford-family-day/) - On 21 October, eleven families struggled through the flooded roads caused by Storm Babet to reach Lower Drayton Farm in Stafford for the CHECT family day.
- [InFocus Summer 2023 - Plain Text Version](https://chect.org.uk/infocussummer2023/) - [et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.20.2″ _module_preset=”default” global_colors_info=”{}”] We’re pleased to present the latest edition of our CHECT InFocus Summer 2023 Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months.
- [Violet's life outside of Rb](https://chect.org.uk/violet/) - Mum Annalise discusses what life is like for Violet after having her eye enucleated (removed) following her retinoblastoma diagnosis. Violet (aka Queen V) is a very busy, confident and happy seven-year-old girl. Being diagnosed with retinoblastoma (Rb) at the age of four has not stopped her from achieving many goals. Violet is a whizz at
- [James sets a World Record for CHECT!](https://chect.org.uk/world-record/) - James Utting took on a Guinness World Record attempt by running a half marathon in high heels to raise funds for the Childhood Eye Cancer Trust.
- [TeamCHECT at the London Marathon!](https://chect.org.uk/team-chect-take-on-the-london-marathon-2/) - TeamCHECT was thrilled to celebrate the achievements of our ten runners at the 2023 London Marathon, who each crossed the finish line on Sunday 23 April!
- [Crazy Glasses for World Retinoblastoma Awareness Week!](https://chect.org.uk/crazy-glasses-for-world-retinoblastoma-awareness-week/) - During World Retinoblastoma Awareness Week, we were thrilled to see incredible support from individuals wearing crazy glasses at work, school, and home.
- [Kerrie and Megan see Harry Styles live!](https://chect.org.uk/kerrie-and-megan-see-harry-styles-live/) - Kerrie and Megan attended a Harry Styles concert, with thanks to our collaboration with the Free Kicks Foundation. Here, Kerrie discusses the experience! Thank you so much to CHECT and the Free Kicks Foundation for such a fabulous experience. This was the first concert I've taken my nine-year-old daughter to, and what a first concert!
- [Lawson's Retinoblastoma Story: From Rb to Aircraft Technician](https://chect.org.uk/lawsons-rb-story/) - As part of Childhood Cancer Awareness Month, Lawson, who was diagnosed with retinoblastoma (Rb) over fifty years ago, shares his story with us.
- [James' retinoblastoma story ](https://chect.org.uk/james-retinoblastoma-story/) - Mum Lesley tells CHECT about James’ journey with retinoblastoma, and what life is like now.
- [Eddie's Wembley Experience](https://chect.org.uk/eddies-wembley-experience/) - A big thank you to the Free Kicks Foundation for the wonderful opportunity. Mum Diane tells us about Eddie and James' experiences: "They had a great time. Eddie went with his big brother (he’s 20 and in the Royal Navy so it was lovely for them to have such a special day together) and they
- [Steven's rugby tips!](https://chect.org.uk/stevens-rugby-tips/) - You may remember that we interviewed rugby player Steven about his experiences playing rugby. We asked Steven for his top tips on managing depth perception in the game after losing sight in one eye: My top tips would be: Treat it like any skill. Your depth perception will only improve by practising it and sticking at
- [InFocus Winter 2022 Plain Text Version](https://chect.org.uk/infocuswinter2022-plain-text/) - You can read our InFocus Winter 2022 in plain format here.
- [Lizzie's Pupdate!](https://chect.org.uk/lizzies-pupdate/) - You may remember that earlier in the year CHECT’s Trusts & Foundations Fundraising Manager Lizzie and her family have recently become Puppy Raisers for Guide Dogs and welcomed Ashford into their homes. Here, Lizzie updates us on how Ashford is getting on. Ashford is nearly seven months now and is growing incredibly fast! From arriving
- [Pathways to Diagnosis 2022 results revealed](https://chect.org.uk/pathwaystodiagnosis-2/) - Our pathways to diagnosis found that overall 46 children were diagnosed with retinoblastoma in the UK in 2022, and we have information from 38 of these families
- [Armanie raises awareness on Kanshi TV!](https://chect.org.uk/armanie-raises-awareness-on-kanshi-tv/) - Armanie talked in Punjabi about her hobbies, retinoblastoma - eye cancer - and the squats challenge she did for CHECT back in 2020.
- [“We spotted eye cancer while our brave daughter was playing”](https://chect.org.uk/our-brave-daughter-was-playing-with-her-toys-when-we-spotted-the-signs-of-eye-cancer/) - Two parents urging other parents to look out for the tell-tale signs of eye cancer after their daughter was diagnosed with retinoblastoma, a rare eye cancer
- [Retinoblastoma PhD researcher becomes a finalist in Yorks Talks competition](https://chect.org.uk/retinoblastoma-phd-researcher-becomes-a-finalist-in-yorks-talks-competition/) - Our retinoblastoma PhD researcher who is researching into the psycho-social effects of childhood called retinoblastoma successfully became a finalist
- [Ffion Miles Music Bursary Winner: Eliza](https://chect.org.uk/elizas-musical-future/) - Eliza was chosen to be the receiver of the Ffion Miles Music Bursary for 2022. Eliza has used the funding to buy a piano - and has been using it to create beautiful compositions. Eliza's mum Lucy said, "Eliza is absolutely thrilled with her piano, and has a renewed enthusiasm for composing as well as
- [Help us to raise awareness with your videos!](https://chect.org.uk/help-us-to-raise-awareness-with-your-videos/) - Get ready to help us promote Childhood Cancer Awareness Month this September 2021
- [We spent our wedding night in hospital with our daughter who has eye cancer](https://chect.org.uk/we-spent-our-wedding-night-in-hospital-with-our-daughter-who-had-eye-cancer /) - A mum is urging other parents to look out for the tell-tale signs of eye cancer after her 8-week-old daughter lost her vision in her right eye through retinoblastoma, a rare eye cancer that typically affects children under the age of six. Mum Lorna Lloyd, from Barry in Wales, spotted an unusual white glow in her then 8-week-old daughter Imogen’s eye – a common sign of eye cancer which is
- [Lesley has worked at CHECT for just shy of a decade! ](https://chect.org.uk/lesley-has-worked-at-chect-for-just-shy-of-a-decade/) - Lesley started her career at CHECT, as a support worker and has helped hundreds of people in so many different ways since she joined back in 2012. Lesley was instrumental in growing the range of support we offer as a charity and was the natural person to become our first ever support service manager. In her almost 10
- [The Birmingham Retinoblastoma Service – 20 years a team](https://chect.org.uk/the-birmingham-retinoblastoma-service-20-years-a-team/) - The team at CHECT would like to say a huge congratulations to all those who work on the Birmingham Retinoblastoma service at Birmingham Women's and Children's Hospital
- [Pathways to Diagnosis](https://chect.org.uk/pathways-to-diagnosis/) - In 2012, as part of our aim to reduce the delays in diagnosis of retinoblastoma (Rb) experienced by some families in the UK CHECT began to collect information from parents we called ‘Pathways to Diagnosis’. This information was gathered by support workers during the course of their conversations with newly diagnosed families, and focussed on whether
- [Meet Marvin the Mole, Vision Express’ New Fundraiser!](https://chect.org.uk/meet-marvin-the-mole-vision-express-new-fundraiser/) - As you may have seen in stores and on social media, the lovable Vision Express mascot Marvin the Mole is now raising vital funds for both CHECT and the Macular Society. After joining the Vision Express team in 2021, Marvin has proved to be a hit with the public, prompting the high street optician to
- [“We spotted our son’s retinoblastoma (eye cancer) the day he took his first steps”](https://chect.org.uk/we-spotted-our-sons-eye-cancer-the-day-he-took-his-first-steps/) - A mum and dad from Bolton are urging other parents to look out for the tell-tale signs of eye cancer, after their son lost his eye through retinoblastoma
- [Transforming the treatment of children's eye cancer (retinoblastoma)](https://chect.org.uk/transforming-the-treatment-of-childrens-eye-cancer/) - Dr Amy Gerrish tells us about the groundbreaking work her team is doingto develop the genetic testing available for retinoblastoma.
- [A Tribute to Audrey Allen](https://chect.org.uk/a-tribute-to-audrey-allen/) - We are saddened to inform our members of the passing of former chair, social worker and newsletter editor Audrey Allen.
- [InFocus - Summer 2022 Plain Text Version](https://chect.org.uk/infocus-summer-2022-plain-text-version/) - Welcome to CHECT's InFocus - Summer 2022 magazine - filled with your latest stories an updates
- [John Hungerford's Memorial](https://chect.org.uk/john-hungerfords-memorial/) - The Hungerford family would like to extend a warm thank you to everybody who sent in memoirs and left kind messages in regards to the late John Hungerford
- [It's all change in the genetics service!](https://chect.org.uk/its-all-change-in-the-genetics-service/) - We have been sad to say goodbye to Dr Trevor Cole and Dr Elisabeth Rosser who have given their invaluable genetics support to so many families over the years
- [Lavinia's story: From retinoblastoma diagnosis to playing the violin!](https://chect.org.uk/lavinias-retinoblastoma-story/) - Mum Lucy reflects back on Lavinia's journey with retinoblastoma, a rare cancer that typically affects children under the age of six.
- [Q&A with Star Trek Star Bruce Horak](https://chect.org.uk/qa-with-star-trek-star-bruce-horak/) - Actor and artist Bruce Horak, who is currently playing Hemmer in Star Trek, was diagnosed with retinoblastoma (Rb) at just one-years-old.
- [Meet our Great North Runners!](https://chect.org.uk/meet-our-great-north-runners/) - The Great North Run event will be respectfully modified to reflect the intense sadness which is being felt across the county – allowing brilliant runners to still raise incredible donations for charities such as ours, while remembering the devastating loss of Her Majesty The Queen. We are so grateful to Team CHECT: Alex, Arran, Caroline,
- [“I thought my daughter had ice in her eye, but it was retinoblastoma - eye cancer” ](https://chect.org.uk/i-thought-my-daughter-had-ice-in-her-eye-but-it-was-retinoblastoma/) - A mum and dad from Westgate are urging other parents to look out for the tell-tale signs of eye cancer as part of Childhood Cancer Awareness Month, after their two-year-old daughter lost her eye due to retinoblastoma, a rare eye cancer that typically affects children under the age of six. Parents Gina and Michael Hickson first spotted
- [William's time at school after retinoblastoma](https://chect.org.uk/williams-time-at-school/) - We love reading about what our members are up to. Here, William, who is in Year 5, has written about his school life after retinoblastoma
- [Developing a laboratory model of retinoblastoma for testing new and existing treatments (Dr A Rozanka)](https://chect.org.uk/developing-a-laboratory-model-of-retinoblastoma-for-testing-new-and-existing-treatments-dr-a-rozanka/) - We hear from Dr Agata Rozanka, part of Professor Lako’s team at Newcastle University, about the CHECT-funded retinoblastoma project they have just completed,
- [“My daughter lost her eye to retinoblastoma 5 months after I had the ‘all clear’ for breast cancer”](https://chect.org.uk/my-daughter-lost-her-eye-to-retinoblastoma-5-months-after-i-had-the-all-clear-for-breast-cancer/) - A mum and dad from Doncaster are urging other parents to look out for the tell-tale signs of eye cancer this festive season, after their five-year-old daughter lost her eye due to retinoblastoma, a rare eye cancer that typically affects children under the age of six. Parents Lisa Shaw and Daryl Robson first spotted an unusual white
- [Jaxon's retinoblastoma story](https://chect.org.uk/jaxons-retinoblastoma-story/) - On Christmas day of 2018 my sister noticed a glare in my son Jaxon's eye - a sign of retinoblastoma. I took him to the GP on 27th Dec, who then advised us to go start to our localA & E department. That's when we learned of the devastating diagnoses that Jaxon had bilateral retinoblastoma.
- [Daisy's Pink Prosthetic Eye](https://chect.org.uk/daisys-pink-prosthetic-eye/) - How beautiful does Daisy look with her new prosthetic eye? Daisy had her eye removed (enucleated) after having retinoblastoma, a childhood eye cancer. She has always wanted a pink sparkly prosthetic eye since she was two-years-old, and now, aged eight, is delighted to show the world her new special eye! Mum Alysia says, "Daisy was
- [It's all change at the Scientific Advisory Committee](https://chect.org.uk/its-all-change-at-the-scientific-advisory-committee/) - It’s all change on CHECT’s Scientific Advisory Committee this year! In July we sadly said goodbye to Prof Lorna Fraser, who had spent six years as Chair of the SAC (the body that oversees our research). As well as bringing her immense professional expertise to the role, Lorna also brought personal experience of having had
- [2022 London Marathon!](https://chect.org.uk/london-marathon-2022/) - TeamCHECT had an amazing day at the 2022 London Marathon! Thankfully the threatened rain stayed away, and the sun shone on our 11 wonderful runners as they set off on the 26.2 miles to The Mall, near Buckingham Palace. CHECT staff were at mile 20.5 to offer jelly babies and cheer them on along the way, when
- [Meet Craig: CHECT's Head of Support](https://chect.org.uk/meetcraig/) - I’m Craig, and I commenced my role as CHECT’s Head of Support in May this year. I know many of you have a long-standing relationship with CHECT and its people; and I’m really looking forward to being part of that team and getting to know you. I live in Scotland, half an hour south of
- [CHECT TYA: New Website for Teens & Young Adults!](https://chect.org.uk/chect-tya-our-new-website-for-teens-young-adults/) - The Childhood Eye Cancer Trust have launched a new website aimed at teenagers and young adults who have had retinoblastoma, called CHECT TYA.
- [Tales of an Ocularist: Part 4!](https://chect.org.uk/tales-of-an-ocularist-part-4/) - Ocularist John Pacey-Lowrie, who you may remember from our blog on prosthetic eyes, discusses some experiences of heightened senses for those who have had vision loss. ENHANCED SENSES The human body is an incredible machine when you think about it (not including my own!!) and our senses are auto-adjusted to in a way compensate for sensory
- [The Ffion Miles Music Bursary](https://chect.org.uk/the-ffion-miles-music-bursary/) - If you or your child have a love for music, you could be the second person to benefit from The Ffion Miles Music bursary – in memory of the late Ffion Miles.
- [Emily Ann Davison: World Book Day recommendations](https://chect.org.uk/emily-ann-davison-world-book-day-recommendations/) - I feel very honoured to be asked to write another blog post for CHECT for World Book Day 2023. In my previous post, I talked about how books were important to me as a child, and how it’s come full circle now that I am a children’s author. I was just a baby when I
- [Lizzie's Pupdate - Meet Ashford the guide dog!](https://chect.org.uk/lizzies-pupdate-meet-asford-the-guide-dog/) - CHECT’s Trusts & Foundations Fundraising Manager Lizzie and her family have recently become Puppy Raisers for Guide Dogs. Golden Retriever Ashford moved in with them at the beginning of February and is expected to live with them for the next year or so until he starts his formal guide dog training. It has been a
- [A new, simpler way to donate](https://chect.org.uk/a-new-simpler-way-to-donate/) - Donate £2 and help us trial the new simpler way to support CHECT! This super quick gift option will transform the ways in which our supporters can donate. Simply scan the QR code on your smartphone and follow the instructions to make a £2 donation (you may need to enable QR codes in your camera
- [The Ocularist: Part 3!](https://chect.org.uk/the-ocularist-continued-2/) - Ocularist John Pacey-Lowrie, who you may remember from our blog on prosthetic eyes, discusses his own journey with a different eye condition, and his training of a man who had retinoblastoma. I have been extremely fortunate during my lifetime in Ocular Prosthetics as it has allowed me to travel the world, or a good deal of it,
- [Meet our new support worker Lena!](https://chect.org.uk/meet-our-new-support-worker-lena/) - Hi everyone! I am Lena and have recently joined the CHECT team as a Support Worker at the Royal London Hospital. For the past 15 years my working life has been spent in the charities sector, beginning with Save the Children then Living Earth Foundation and most recently as a Care Support Worker with the
- [Her Majesty The Queen](https://chect.org.uk/her-majesty-the-queen/) - Our deepest condolences go out to everybody affected by the loss of Her Majesty The Queen. We are incredibly saddened by the news, and to mark our respects, on the 9th September and the day of the state funeral, we will be holding a social media silence. We will remain contactable via email and telephone.
- [The Ocularist...Continued!](https://chect.org.uk/the-ocularist-continued/) - Ocularist John Pacey-Lowrie, who you may remember from our last blog on prosthetic eyes, discusses his own journey with a different eye condition, and his training of a man who had retinoblastoma. Being born with RIGHT sided microphthalmia and coloboma has had its challenges throughout my life and as I alluded to in my first
- [The Ocularist: How the journey began](https://chect.org.uk/the-ocularist-how-the-journey-began/) - Ocularist John Pacey-Lowrie talks us through his 45-year experience working with prosthetic eyes in this blog series, starting right from the beginning of his journey. An unusual profession, a demanding profession and above all a caring profession...45 years as an Ocularist this is how it all began for me!! Born in 1953 in Edinburgh, Scotland
- [InFocus Summer 2022](https://chect.org.uk/infocus-summer-2022/) - [et_pb_section fb_built=”1″ _builder_version=”4.15.1″ _module_preset=”default” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.15.1″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.15.1″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.15.1″ _module_preset=”default” global_colors_info=”{}”] We’re pleased to present the latest edition of our CHECT InFocus Magazine – full of your stories as well as what we’ve been up to as a charity over the last few months. This Summer edition of InFocus has
- [InFocus Digital Edition: Winter2021](https://chect.org.uk/infocus-digital-edition-winter2021/) - We’re pleased to present the latest edition of our CHECT InFocus Magazine - full of news and your stories.
- [Meet Finn the buddy dog!](https://chect.org.uk/meet-finn-the-buddy-dog/) - Harvey, who was diagnosed with retinoblastoma just as he turned 4, has written about his buddy dog, Finn. This is Finn he is 2 years old, he is a labradoodle, I am Harvey and I am 7. I wanted a guide dog because of my eyes, but we ended up with Finn who is a
- [Mohamed's Posed for Poetry Success!](https://chect.org.uk/mohameds-posed-for-poetry-success/) - Mohamed Abukhzaam, who had his eye enucleated aged three after being diagnosed with retinoblastoma, is now aged eight and has a strong love for poetry. Mum discusses his achievements and shares a poem that inspires him: Mohamed has a poetry competition every year called the Poetry Slam, and he loves to participate in it. Last
- [Eliza's Equestrian Enjoyment](https://chect.org.uk/elizas-equestrian-enjoyment/) - Eliza, who had bilateral retinoblastoma and had an enucleation, has written about her love for horse riding and how she protects her eyes: My name is Eliza and I am eight years old. I have a special eye since I was 1 years old. I do like participating in a lot of after school activities.
- [Do you have a love for music? ](https://chect.org.uk/do-you-have-a-love-for-music/) - If you or your child have a love for music, you could be the first to benefit from The Ffion Miles Music bursary – in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma (Rb) and/or who had a
- [Xavi's trip to London!](https://chect.org.uk/xavis-trip-to-london/) - Xavi was diagnosed with retinoblastoma two days after he celebrated turning two years old. Now age six, Xavi goes for a check-up every six months and is due to have squint surgery in August. Here Xavi tells us about his trip to London with his sister Rosa. In February half term Mummy took me
- [Zain's first bike!](https://chect.org.uk/zains-first-bike/) - Mum Nadia Sadaf shares the excitement her son, Zain Hussain, age 4, has at receiving his first bike from Cyclists Fighting Cancer after having his right eye removed. “When Zain cycles, he faces no difficulties despite having monocular vision – he is a master of his bike and has a such a good handle over his
- [Jacob takes to the podium to win gold](https://chect.org.uk/jacob-takes-to-the-podium-to-win-gold/) - Jacob Wright was 12 weeks old when he was diagnosed with bilateral retinoblastoma (eye cancer in both of his eyes). He lost his right eye at diagnosis and has since lost most of the vision in his left eye. You may remember Jacob’s judo achievements from our last blog, where he was tipped on local news
- [3D Printed artificial eyes](https://chect.org.uk/3d-printed-artificial-eyes/) - Would you be prepared to offer your time for a clinical investigation currently recruiting at Moorfields Eye Hospital London? Provided you are aged 18 or over and meet the eligibility criteria, Professor Mandeep Sagoo’s team would be delighted to speak with you. 5+ years in development, the 3D printed artificial eye is designed with you
- [How an OCT scan can impact retinoblastoma treatment plans](https://chect.org.uk/how-octs-can-impact-retinoblastoma-treatment-plans/) - I am Dr Zhanhan Tu - an ophthalmologist, researcher and teacher based in the Ulverscroft Eye Unit at the University of Leicester. For the last ten years I have been working on normal and pathological eye development in infants and children, using optical coherence tomography (OCT). Following a pilot project in 2017/18, I am very
- [A Tribute to John Hungerford](https://chect.org.uk/john-hungerford/) - We are extremely sad to inform our members of the passing of Consultant Ophthalmologist John Hungerford, who not only helped many people who had retinoblastoma (Rb) and actively assisted with fundraising as the trust established itself, but was also key in the development of new approaches in the treatment of Rb. Libby Halford, a former
- [Jack’s sleepover antics](https://chect.org.uk/jacks-sleepover-antics/) - Jack Gwyther, 11, recalls a story which shows how his confidence with his prosthetic eye has grown. It was a Saturday night when I went round my best friend's 11th birthday party and there were 4 of us. We were all messing about in the living room playing on the Xbox's we had all brought round.
- [InFocus Winter 2021 - Plain Text Version](https://chect.org.uk/infocus-winter-2021-plain-text-version/) - View the plain text version of our Winter InFocus magazine: INFOCUS WINTER 2021 - HMTL If you would like to receive InFocus in a different format, please email info@chect.org.uk.
- [Tribute: Dalbir  "Danny" Singh Kharbanda](https://chect.org.uk/tribute-dalbir danny-singh-kharbanda/) - It is with heavy hearts and great sadness that we inform our members of the passing of Dalbir “Danny” Singh Kharbanda. At the age of 7 Danny was diagnosed with retinoblastoma (Rb). Whilst he retained vision in his right eye, he wasn’t aware of the possibility that Rb can have a genetic nature. Two out
- [Marathon Mum](https://chect.org.uk/marathon-mum/) - Our fab virtual London Marathon runner Hayley Richley wrote this brilliant poem about her experiences running the marathon. We have a small amount of spaces left, so if you'd like a space, please email fundraising@chect.org.uk Marathon Mum On a morning in October In twenty twenty-one A nervous mum, set off from home With family,
- [Give new life to old stock!](https://chect.org.uk/give-new-life-to-old-stock/) - Inspired by our Trusts & Foundations Fundraising Manager Lizzie, who made these fab cushions for our office, will you join us in giving old stock new (and a different) life! 1. Buy an old CHECT T-shirt (take pot luck with the size) for £2 2. Upcycle/repurpose it - giving free rein to your imagination 3.
- [Setting Sail: Max's day out!](https://chect.org.uk/setting-sail-maxs-day-out/) - Max Macara, 11, recently attended a Ellen MacArthur Cancer Trust day. The Ellen MacArthur Cancer Trust run sailing trips for children and young people who have, or have had, cancer. Max reports what he got up to during the trip I woke up in the morning, ready for an exciting day of fun at Whitemoor lakes.
- [World Sight Day - get involved!](https://chect.org.uk/world-sight-day-get-involved/) - World Sight Day will take place on the 14th October this year, with a theme that you should #LoveYourEyes. Loving your eyes can come in many forms - for instance - attending all your eye appointments, or looking after your eyes by wearing sunglasses. At CHECT, we also want to celebrate eyes in all their
- [Potential Paralympian Jacob's Judo success](https://chect.org.uk/potential-paralympian-jacobs-judo-success/) - Jacob Wright was 12 weeks old when he was diagnosed with bilateral retinoblastoma (eye cancer). He lost his right eye at diagnosis and has since lost most of the vision in his left eye. Now aged 8, Jacob is making huge strides in the world of judo - with hopes that he can make the
- [We did everything to save our baby’s eye](https://chect.org.uk/we-did-everything-to-save-our-babys-eye/) - A mum is urging other parents to look out for the tell-tale signs of eye cancer after her daughter was told she will lose her eye to retinoblastoma, a rare cancer that typically affects children under the age of six. Mum Kara Wedderburn, from Northumberland, noticed that her then one-year-old daughter, Evie, appeared to have
- [Charlie meets his 'rugby twin'](https://chect.org.uk/charlie-meets-his-rugby-twin/) - In the latest issue of InFocus magazine and for a video for our social media channels, we interviewed rugby star Will Jubb, who was diagnosed with retinoblastoma (Rb) at two years old and had his right eye enucleated. However, playing with one eye has not held him back from a successful rugby career, as he
- [An interview with rugby star Will Jubb](https://chect.org.uk/an-interview-with-rugby-star-will-jubb/) - Will Jubb was diagnosed with Rb as a baby and had his right eye enucleated. However, playing with one eye has not held him back from a successful rugby career.
- [Olivia Earns A Black Belt in Taekwondo](https://chect.org.uk/olivia-earns-a-black-belt-in-taekwondo/) - Olivia Harrison, who had retinoblastoma (eye cancer) as a baby, achieved a black belt in taekwondo despite having an artificial eye
- [InFocus Digital Edition: Summer 2021](https://chect.org.uk/infocus-digital-edition-summer-2021/) - We’re pleased to present the latest edition of our CHECT spring/summer 2021 InFocus Magazine - full of news and your stories.
- [InFocus Digital Edition: Winter 2020](https://chect.org.uk/infocus-digital-edition-winter-2020/) - We’re pleased to present the latest edition of our CHECT InFocus Magazine - full of news and your stories.
- [A tribute to Ffion Miles](https://chect.org.uk/a-tribute-to-ffion-miles/) - We are extremely sad to inform our members of the passing of our former trustee, and dear friend Ffion Miles.
- [Our CHECT Champion Dads 2021](https://chect.org.uk/our-chect-champion-dads-2021/) - For Father's Day, we recognise those amazing dads out there who go above and beyond to support their families and those affected by Rb.
- [My hearing test experience at GOSH](https://chect.org.uk/my-hearing-checkup-at-gosh/) - Suri (age 10) was born with bilateral Rb which was treated with chemotherapy. He kindly shared a blog with us about his experience of getting his hearing tested at GOSH.
- [We're recruiting: Communications Manager](https://chect.org.uk/were-recruiting-communications-manager/) - We're recruiting for a Communications Manager. This role helps to raise awareness of retinoblastoma (Rb) and the work of CHECT amongst the general public.
- [Baby diagnosed with eye cancer after auntie spots unusual symptom](https://chect.org.uk/baby-diagnosed-with-eye-cancer-after-auntie-spotted-unusual-symptom/) - A mother’s intuition proved correct after GPs assured that her daughter was healthy. Thankfully an auntie spotted an unusual ‘white dot’ in the baby’s eye.
- [Adult who had Rb needed for voluntary role](https://chect.org.uk/adult-who-had-rb-needed-for-voluntary-role/) - CHECT is currently looking to recruit an adult who had retinoblastoma as a child as a lay representative to our Scientific Advisory Committee.
- [The face of our new "Good Luck" cards revealed](https://chect.org.uk/the-face-of-our-new-good-luck-cards/) - Thank you and a huge well done to everyone who submitted a photo for the design of our next good luck card. We can now reveal the chosen photo.
- [Vision Express store manager takes on epic squats challenge for charity](https://chect.org.uk/vision-express-store-manager-takes-on-epic-squats-challenge-for-charity/) - Vision Express store manager Dean Alldis has set himself a mammoth 50,000 squats challenge to raise money for the Childhood Eye Cancer Trust.
- [Celebrating our CHECT women of science](https://chect.org.uk/celebrating-our-chect-women-of-science/) - For International Women's Day we've highlight some of the brilliant women involved in our CHECT research into the prevention and treatment of retinoblastoma.
- [“It was only later in life that I felt that I could finally show the world who I was.”](https://chect.org.uk/it-was-only-later-in-life-that-i-felt-that-i-could-show-the-world-who-i-was/) - Nicole shares her retinoblastoma story, from treatment and being self-conscious, to embracing her artificial eye and becoming the confident woman she is today.
- [2021 Squats thank you and fundraising total revealed](https://chect.org.uk/2021-squats-thank-you-and-fundraising-total-revealed/) - Whilst there are still challenging times ahead, this event has really helped make up for lost funds, ensuring that we can continue to offer support to families.
- [“The Rb journey is one of twists and turns and ups and downs” - mum shares her family’s story](https://chect.org.uk/the-rb-journey-is-one-of-twists-and-turns-and-ups-and-downs-mum-shares-her-familys-story/) - Mum Pippa talks about her daughter's chemo treatment. This blog may be helpful to other parents whose child may have to face something similar to treat their Rb
- [Meet the marathon team](https://chect.org.uk/meet-the-marathon-team/) - Our wonderful runners shared what inspired them to undertake this huge challenge to support us.
- [“I was gently reminded, 'You have saved his life'. ” - mum shares her family’s story](https://chect.org.uk/i-was-gently-reminded-you-have-saved-his-life/) - Mum Charlie tells us about her son's retinoblastoma journey including how his eye was removed (enucleated) top save his life.
- [“Chemotherapy wasn’t what I was expecting” - mum shares her family’s story](https://chect.org.uk/chemotherapy-wasnt-what-i-was-expecting/) - Mum Michelle tells us about her son's retinoblastoma journey including how his eye was removed (enucleated) and his chemotherapy treatment.
- [“A photo saved my daughter’s life”](https://chect.org.uk/a-photo-saved-my-daughters-life/) - A four-year-old was diagnosed with the rare eye cancer retinoblastoma after her mum saw her tumour ‘glowing’ in a flash photo.
- [Sharing your story](https://chect.org.uk/sharing-your-story/) - Have you, or someone you love, been affected by retinoblastoma (Rb)? Would you like to share your story to raise awareness of this rare cancer and help others going through the same thing?
- [One third of parents say a squint is NOT a symptom of childhood eye cancer](https://chect.org.uk/one-third-of-parents-say-a-squint-is-not-a-symptom-of-childhood-eye-cancer/) - A squint is actually the second most common symptom.
- [22 years after Rb, medical student returns to make a difference](https://chect.org.uk/22-years-after-rb-medical-student-returns-to-london-to-make-a-difference/) - Angharad was diagnosed with Rb at nine months and had her eye enucleated at St Bartholomew’s Hospital. She's now studying at Barts & the London Medical School.
- [Our Champion Dads!](https://chect.org.uk/fathers-day-2020/) - All our nominated CHECT dads received a special CHECT Champion certificate this Father's Day.
- [InFocus Digital Edition Summer 2020](https://chect.org.uk/infocussummer2020/) - We’re pleased to present the latest edition of our CHECT InFocus Magazine - full of news and your stories.
- [When they said I was going to lose my eye, I was almost relieved – I thought it was going to be so much worse."](https://chect.org.uk/when-they-said-i-was-going-to-lose-my-eye-i-was-almost-relieved-i-thought-it-was-going-to-be-so-much-worse/) - Unlike so many children, Eloise is able to remember her Rb diagnosis and journey through treatment. Now aged 16, she tells us her story.
- [“Don’t delay” – says mum who spotted her child’s rare cancer in a flash photo.](https://chect.org.uk/mum-spots-rare-cancer-in-childs-photo/) - After her baby girl was diagnosed with a rare cancer, a mum is urging parents to be aware of the symptoms and to see a medical professional as soon as possible.
- [London Family Members' Day in pictures](https://chect.org.uk/london-family-members-day-in-pictures/) - The latest photos and CHECT Champions Awards from our family day out at Discover Children's' Story Centre
- ["Finally we can have the Christmas we've been waiting for"](https://chect.org.uk/finally-we-can-have-the-christmas-weve-been-waiting-for/) - Christmas is a time of joy and celebration, but for Laila Ollie, it was the moment they discovered that their little boy had to have his eye removed.
- [A bumper year for CHECT research](https://chect.org.uk/a-bumper-year-for-chect-research/) - We were delighted by the strength of applications to our 2019/20 research fund - so much so, that we ended up making two awards rather one.
- [Leicester and Scotland Members' Days in pictures](https://chect.org.uk/leicester-and-scotland-members-days-in-pictures/) - The latest photos from our CHECT family days out in Leicester and Scotland.
- [Living Life Past Rb](https://chect.org.uk/living-life-past-rb/) - Kyle's family travelled to the UK for his Rb treatment when he was two years old. He shares his experience of growing up with an artificial eye.
- [“Rb isn't something to be afraid of - I grew up thinking it was”](https://chect.org.uk/rb-isnt-something-to-be-afraid-of-i-grew-up-thinking-it-was/) - Eve Smyth is a 62-year-old second-generation Rb survivor. She shares advice, her story of being blind and how she tragically lost her son to trilateral Rb.
- [Telling my friends I had cancer](https://chect.org.uk/telling-my-friends-i-had-cancer/) - Olivia Deane was diagnosed with eye cancer at the age of 12. Now 21, Olivia has written a book about her cancer journey. Read chapter two here.
- [Hair today, gone tomorrow!](https://chect.org.uk/hair-today-gone-tomorrow/) - A CHECT Ambassador was recently the guest of honour at a Vision Express store - cutting off the Store Manager’s long locks to raise money for CHECT.
- ["Everyone is full of quirks and nuances and it is important not to forget that."](https://chect.org.uk/everyone-is-full-of-quirks-and-nuances-and-it-is-important-not-to-forget-that/) - Josh's family moved to the other side of the world to the UK after he was diagnosed with Rb. He certainly hasn't let his Rb hold him back.
- [The top five things I learnt working on Rb research](https://chect.org.uk/the-top-five-things-i-learnt-working-on-an-rb-research-project/) - Here are the top five things I learnt working on an Rb lab research project for a month.
- [Christmas card competition](https://chect.org.uk/christmas-card-competition-2019/) - Is your little one a budding artist? Would they like to see their very own picture on our charity Christmas cards this year?
- [Opportunity for a parent to join our committee](https://chect.org.uk/lay-member-opportunity/) - We're looking for a parent of a child who has had retinoblastoma to join us as a lay representative on our Scientific Advisory Committee.
- [Parents shocked after unusual ‘white glow’ in child’s eye turned out to be cancer](https://chect.org.uk/parents-shocked-after-unusual-white-glow-in-childs-eye-turned-out-to-be-cancer/) - Parents began to notice a strange ‘white glow’ in the right eye of their two-year-old son Oliver, although it only appeared in certain light.
- ["I make my loved ones proud no matter how difficult things may get."](https://chect.org.uk/i-make-my-loved-ones-proud-no-matter-how-difficult-things-may-get/) - 17-year-old Beth recalls her experiences of growing up with a visual impairment having been treated for bilateral Rb.
- [The Best Start in Life for Visually Impaired Children](https://chect.org.uk/giving-visually-impaired-children-the-best-start-in-life/) - Harry, who is visually impaired, is enjoying life at mainstream school thanks to modern equipment and access to support funding. Mum Lisa shares her advice.
- [Celebrating Champion Dads](https://chect.org.uk/celebrating-champion-dads/) - It’s important to recognise those amazing dads out there who go above and beyond to support their families. Here's just a few stories of hero dads!
- [Raising Awareness of Rb in Parliament](https://chect.org.uk/raising-awareness-of-rb-in-parliament/) - We hosted a Parliamentary Drop-In event, as part of World Retinoblastoma Awareness Week 2019, to engage MPs in raising awareness of Rb.
- [Rare sign of cancer spotted in baby by vigilant parents](https://chect.org.uk/rare-sign-of-cancer-spotted-in-baby-by-vigilant-parents/) - “I expected the doctor to say that I was another worried over-bearing mother, panicking over nothing”
- [Members' Day moments captured](https://chect.org.uk/members-day-march-2019/) - Members' days are a great way to meet other families affected by Rb. Here is a collection of photos taken on the day.
- [Life After Childhood Cancer](https://chect.org.uk/life-after-childhood-cancer/) - Diagnosed with retinoblastoma in 1950, Greg Ovens recalls his fond memories of his 'days out' at Moorfields Eye Hospital with his father.
- [“Your life isn't defined by your artificial eye - what matters is your own personality”](https://chect.org.uk/your-life-isnt-defined-by-your-artificial-eye-what-matters-is-your-own-personality/) - Dom Bielby shares how having an artificial eye has not held him back, instead how embracing uniqueness can be used as an advantage when making new friends.
- [BBC Lifeline Appeal for CHECT](https://chect.org.uk/bbc-lifeline-appeal-for-chect/) - Presented by Shane Richie, this short programme gives insight into some of our families affected by retinoblastoma and the work that we do.
- [How your impairments can be an advantage](https://chect.org.uk/how-your-impairments-can-be-an-advantage/) - A moving and inspirational TED Talk from James Morley-Smith, one of our CHECT supporters, whose son lost his sight after being diagnosed with Rb.
- ["My daughter’s eye looked like a cat’s eye or a marble in the light – I knew there was something wrong."](https://chect.org.uk/my-daughters-eye-looked-like-a-cats-eye-or-a-marble-in-the-light-i-knew-there-was-something-wrong/) - A mother of identical twins was shocked to learn that a strange ‘glow’ in one of her daughter’s eyes was actually retinoblastoma.
- [“My life turned upside down literally in the blink of an eye”](https://chect.org.uk/my-life-turned-upside-down-literally-in-the-blink-of-an-eye/) - Diagnosed with retinoblastoma, Alex tells us about his “rollercoaster” life, but how losing your sight is not the end of life’s wonderful experiences.
- ["My parents didn't wrap me in cotton wool - I've enjoyed life to the full"](https://chect.org.uk/my-parents-didnt-wrap-me-in-cotton-wool-ive-enjoyed-life-to-the-full/) - 75 years on, Alan shares his journey of retinoblastoma treatment in a pre-NHS system, growing up with a prosthetic eye and living life to the full.
- [CHECT research](https://chect.org.uk/chect-research/) - Since 1997, the Childhood Eye Cancer Trust has funded more than 20 research projects, totalling almost £700k. Find out more about CHECT research.
- [CHECT ambassadors at Vision Express in Lincoln](https://chect.org.uk/chect-ambassadors-at-vision-express-in-lincoln/) - Two youngsters from Lincoln who have battled retinoblastoma were guests of honour to officially open a new Vision Express store in the city.
- [Christmas competition winners](https://chect.org.uk/christmas-card-competition-winners/) - Thank you to all the children who submitted their designs for the Childhood Eye Cancer Trust Christmas card competition 2018.
- [Q&A with NAES](https://chect.org.uk/qa-with-naes/) - The National Artificial Eye Service, part of the NHS, makes up to 5,000 bespoke artificial eyes a year for people of all ages, from babies to pensioners.
- [‘I can’t imagine my life without goalball’](https://chect.org.uk/i-cant-imagine-my-life-without-goalball/) - Kelsey Trevett, 16, was introduced to goalball during the 2012 London Paralympic Games. Since then, the sport has had a huge impact on his life, as he explains.
- [Mumsnet features CHECT](https://chect.org.uk/mumsnet-features-chect-campaign/) - To mark World Sight Day, Mumsnet is helping to raise awareness of retinoblastoma by showing our Uninvisible Friend campaign on its website.
- [Christmas card competition](https://chect.org.uk/christmas-card-competition/) - Is your little one a budding artist? Would they like to see their very own picture on our charity Christmas cards this year?
- [‘Pirate game revealed my toddler’s eye cancer’](https://chect.org.uk/alice/) - Alice Taylor had been going blind in one eye for months without anyone realising. She was diagnosed with retinoblastoma in May 2017, when she was two years old.
- [CHECT launches ‘Uninvisible Friend’ campaign](https://chect.org.uk/chect-launches-uninvisible-friend-campaign/) - The Childhood Eye Cancer Trust has today launched a multichannel campaign – featuring characters Alice and her ‘Uninvisible Friend’ Dot – to raise awareness of retinoblastoma
- [Ride4Sight 2018](https://chect.org.uk/ride4sight-2018-in-pictures/) - A 30-strong team of volunteer cyclists from Vision Express rode into a rain-swept Nottingham after a gruelling 300km, two-day ride in aid of the Childhood Eye Cancer Trust.
- [Back to school - children’s eye tests](https://chect.org.uk/childrens-eye-tests/) - In our guest blog by Vision Express, they explain why it’s so important to get children’s eyes tested and answer some frequently asked questions.
- [‘It’s ok to find it hard and I’m accepting that now’](https://chect.org.uk/clarks-story/) - Mum Sally Northfield's son Clark was diagnosed with retinoblastoma, a rare form of eye cancer, last year. She shares her family's story.
- [Taxi drivers raise £3,000 for Hawwa](https://chect.org.uk/taxi-drivers-raise-3000-for-hawwa/) - The drivers of a Peterborough taxi firm have raised nearly £3,000 in support of a local baby girl who is battling retinoblastoma.
- [Make Some Noise](https://chect.org.uk/make-some-noise/) - The Childhood Eye Cancer Trust (CHECT) is delighted to have been selected as one of this year’s beneficiaries of Global’s Make Some Noise
- [Cycle London to Paris with Team CHECT!](https://chect.org.uk/londontoparisteam/) - Meet the team taking part in this year's London to Paris Bike Race.
- [Lizzie's Great Adventure](https://chect.org.uk/greatwallofchina/) - Signing up for the Great Wall of China Trek was one of those things that I do under the category ‘Act Now; Engage Thought Process Later’
- [CHECT Ambassadors unveil new look Vision Express stores](https://chect.org.uk/new-look-stores/) - Our young CHECT Ambassadors have been busy this month unveiling newly refurbished Vision Express stores across the UK.
- ["Some say I’m unlucky, I say that’s life" Stephanie Bywater](https://chect.org.uk/stephanie/) - Stephanie tells of her experience of retinoblastoma
- [Getting ready for hospital](https://chect.org.uk/getting-ready-for-hospital/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Gemma Melisi, Play Specialist at the Royal London Hospital, has some tips for parents on how to help prepare your child for a hospital visit… Preparing a child for hospital is very important, so that you all know what to expect. The thought might be worrying for children so it’s important to
- [Kelsey's an internet pop sensation.](https://chect.org.uk/kelsey_ellison/) - Kelsey Ellison, 24, reveals how she didn’t let losing an eye stop her from working in one of the most image obsessed industries in the world...
- [I spy with my little eye...](https://chect.org.uk/ispyrb/) - The Childhood Eye Cancer Trust (CHECT) is urging parents to be aware of the warning signs of a devastating childhood cancer
- [Championing Rose](https://chect.org.uk/rose/) - Rose was diagnosed with retinoblastoma (rb), a cancer which affects the retina of children predominantly under six years old, when she was still only six months old.
- [It’s a family affair](https://chect.org.uk/thomas-family/) - Three sisters have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled with the effects of an extremely rare form of cancer.
- [Champion siblings](https://chect.org.uk/champion-siblings/) - Two children from the same family have received prestigious awards in recognition of the courage and bravery they displayed while one of them battled against an extremely rare form of cancer.
- [See for yourself](https://chect.org.uk/orcam/) - Zoe was diagnosed with retinoblastoma when she was 5 months old. She shares her experience of using the OrCam My Reader…
- [Amazing humans](https://chect.org.uk/amazing-humans/) - Erin was two years old when she was diagnosed with retinoblastoma (Rb), fast forward five years and Erin has been featured as part of BBC 3’s Amazing Humans series ...
- [Too many children are still waiting too long for cancer diagnosis](https://chect.org.uk/raredisease/) - The Childhood Eye Cancer Trust (CHECT) found that 11% of children diagnosed with retinoblastoma in 2017 had a delay of at least six months from their first visit to a GP or other health professional to being seen for specialist assessment.
- [How do you want to hear from us?](https://chect.org.uk/how-do-you-want-to-hear-from-us/) - A new piece of EU legislation is coming into effect later this month, the General Data Protection Regulation or GDPR. This is bringing the biggest change to UK data privacy laws for 20 years.
- [Dad’s marathon effort for retinoblastoma](https://chect.org.uk/dads-marathon-effort-for-retinoblastoma/) - A dad whose toddler battled retinoblastoma is taking part in the London Marathon so that he can help raise awareness of the symptoms among other parents.
- [Gemma to tick marathon off bucket list](https://chect.org.uk/gemma-to-tick-marathon-off-bucket-list/) - Mum-of-two Gemma Edgar, who is currently undergoing chemotherapy for an incurable brain tumour, has vowed to cross the finish line of the London Marathon 2018 for her son Noah, who has been battling retinoblastoma.
- [Rb Week 2018](https://chect.org.uk/rbweek/) - Find out how you can get involved during World Retinoblastoma Awareness Week, from 8-15 May 2016.
- [Sailing away](https://chect.org.uk/emct/) - The Ellen MacArthur Cancer Trust, which runs sailing trips for children and young people who have, or have had, cancer has reserved two places for the Childhood Eye Cancer Trust in 2018. CHECT Champion Ernie Brown, 10, who has taken part in two trips, tells us what it’s like.
- [A step back in time](https://chect.org.uk/a-step-back-in-time/) - Recent investigations of hospital and other historical records by member Iain Riddell show how cases, treatment and discussion of retinoblastoma, then known as ‘glioma of the Retina’, can be traced back to Victorian times
- [A common bond](https://chect.org.uk/a-common-bond/) - Friendships forged out of shared experiences, particularly those which involve hardship, are often the ones which endure the test of time.
- [Living with an artificial eye](https://chect.org.uk/living-with-an-artificial-eye/) - Dr Deanna Gibbs, Research Consultant for Nursing, Midwifery and Allied Health Professionals at Barts Health NHS Trust and Principle Investigator of the research project.
- [Squint can be a symptom of eye cancer](https://chect.org.uk/squint-can-be-a-symptom-of-eye-cancer/) - Two out of three parents aren’t aware that a squint or lazy eye can be a symptom of an aggressive eye cancer in children called retinoblastoma, according to a new survey by the Childhood Eye Cancer Trust.
- [Eliza's story, part two](https://chect.org.uk/elizas-story-part-two/) - Do you remember little Eliza Thomas? She was the face of our Retinoblastoma Awareness Week campaign back in 2016.
- [Holiday discounts from Haven](https://chect.org.uk/holiday-discounts-from-haven/) - The Childhood Eye Cancer Trust has teamed up with Haven to offer our members a chance to save money on UK breaks and holidays.
- [The beginning of my story](https://chect.org.uk/the-beginning-of-my-story/) - Olivia Deane hit the headlines when she was diagnosed with retinoblastoma at the age of 12 – this type of eye cancer usually affects babies and young children under six. Now 20 years old, Olivia has written a book about her cancer journey which she has kindly agreed to share on our blog.
- [CHECT ambassadors team up with Vision Express](https://chect.org.uk/chect-ambassadors-team-up-with-vision-express/) - Children and teenagers across the UK have been raising vital awareness of retinoblastoma and helping Vision Express to launch its new network of stores.
- [CHECT teens go Global](https://chect.org.uk/chect-teens-go-global/) - Nine teenage CHECT members went on a VIP tour of the Global radio studios in London. Here 16-year-old Harry Harrison gives his account.
- [Ethan Carr - my story](https://chect.org.uk/ethen-carr-my-story/) - His story started one Friday afternoon on an outing with his nursery; one of the accompanying parents thought she noticed a reflection in his eye.
- [CHECT Champions - Lucy, Tom and George Rodriguez](https://chect.org.uk/chect-champion-lucy-rodriguez/) - It was great to see the Bournemouth Echo covered the CHECT Champion awards received by brave Lucy and her two brothers recently. Well done guys!
- [Angharad Price - my story](https://chect.org.uk/angharad-price-my-story-2/) - The CHECT staff team had the pleasure of spending some time with Angharad when she joined us in the office for a week’s work experience in the summer of 2014.
- [Challenge of a lifetime … trek the Sahara to help children with eye cancer](https://chect.org.uk/challenge-of-a-lifetime-trek-the-sahara-to-help-children-with-eye-cancer/) - Wanting to go the extra mile to help children with eye cancer? Then join Team CHECT on its first ever trek challenge – across the Sahara Desert.
- [Adopt a collecting tin to help fight retinoblastoma](https://chect.org.uk/adopt-a-collecting-tin-to-help-fight-retinoblastoma/) - To mark this year’s awareness week we’re challenging our supporters to find new homes for 200 Childhood Eye Cancer Trust collecting tins.
- [Could you be a CHECT super hero?](https://chect.org.uk/could-you-be-a-chect-super-hero/) - Find out how you can be a CHECT super hero and claim your FREE super hero suit by joining our team for a fun-filled 5k or 10k run in London's beautiful Regents Park on May 17, 2015.
- [The rise of the charity ambassador](https://chect.org.uk/the-rise-of-the-charity-ambassador/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Communications manager Julie Firth takes a look at how engaging members has enabled the charity to significantly boost its eye cancer awareness efforts and encourage fundraising at the same time. Can I Help? We are very fortunate at the Childhood Eye Cancer Trust to be asked this question again and again, usually
- [Zachary Sinclair - My Story](https://chect.org.uk/zachary-sinclair-my-story/) - On the 18th September 2013 we received the devastating news that our ten month old son Zachary had a tumour in his left eye which is known as Retinoblastoma.
- [Retinoblastoma research: changing the future](https://chect.org.uk/retinoblastoma-research-changing-the-future/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Ever since the charity’s earliest days, funding research into Rb has been a key part of the Childhood Eye Cancer Trust’s work. Though CHECT is a small charity it provides a substantial proportion of global funding for research on Rb. Back in 1997, CHECT, then known as the Retinoblastoma Society, invested £90,000
- [Supporting Small Charity Week](https://chect.org.uk/supporting-small-charities-week/) - June 15 to 20 is Small Charities Week (SCW), a celebration of all the fantastic work being done by amazing organisations across the UK.
- [Eight go mad in Essex](https://chect.org.uk/eight-go-mad-in-essex/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] CHECT has just held its first teenage weekend away – giving young people affected by retinoblastoma the chance to share their experiences with one another and tackle some of the challenges they may be facing. Here teenage members Tor Moore and Lexie Edwards share their thoughts on the weekend. Usually when CHECT
- [Join CHECT's Teddy Bears Picnic](https://chect.org.uk/cheer-up-chester-and-join-chects-teddy-bears-picnic/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Poor Chester the CHECT bear. He’s already missing his pals now school’s broken up for the summer. Luckily, we’ve thought of a way to put a smile back on Chester’s face – we’re arranging a Teddy Bears Picnic for him. It would make him very happy if you all invite your teddies to join him
- [When the going gets tough!](https://chect.org.uk/when-the-going-gets-tough/) - Blog by Childhood Eye Cancer Trust member Jane Harrison, mum of Olivia.
- [Raising awareness of Rb with health visitors](https://chect.org.uk/raising-awareness-of-rb-with-health-visitors/) - This week is National Eye Health Week. To mark the event one of our trustees, Lisa Brown, explains how she has been able to use her role as a health visitor to raise awareness of retinoblastoma amongst her colleagues.
- [#TeamSkylah cycle London to Brighton for CHECT](https://chect.org.uk/teamskylah-cycle-london-to-brighton-for-chect/) - Kev Bawn, Skylah’s granddad and his dedicated team cycled from London to Brighton and raised in excess of £2,000 for the Childhood Eye Cancer Trust (CHECT).
- [Could 3D printing be the future of artificial eyes?](https://chect.org.uk/could-3d-printing-be-the-future-of-artificial-eyes/) - At Birmingham Children’s Hospital, specialists are always looking into ways to improve prosthetic eyes for children and adults affected by retinoblastoma.
- [Katy's Grand Canyon charity trek](https://chect.org.uk/katys-grand-canyon-charity-trek/) - CHECT ambassador Katy Bishop braved scorching temperatures and steep ravines on her overseas charity trek to raise money for families affected by retinoblastoma.
- [Mum urges parents to be more aware of retinoblastoma](https://chect.org.uk/nia-delpratt-retinoblastoma/) - Mum Nia Delpratt is calling for more parents to be aware of retinoblastoma after her young daughter had to have her eye removed to save her life.
- [Retinoblastoma survivor needs help with new research project](https://chect.org.uk/help-with-new-research-project/) - [et_pb_section bb_built=”1″][et_pb_row][et_pb_column type=”4_4″][et_pb_text] Nicole Beddard, a master’s student who had bilateral retinoblastoma as a child, has set up a research project which she hopes will help families affected by Rb in the future. She’s looking for parents to get involved… Hello, my name is Nicole Monique Beddard and when I was three months old I
- [‘It’s very important to accept help when you need it’](https://chect.org.uk/its-very-important-to-accept-help-when-you-need-it/) - Teenager Katy Hughes was diagnosed with bilateral retinoblastoma as a baby. She talks about having an artificial eye and how cancer inspired her to aim high.
- [Phil's 4th marathon effort](https://chect.org.uk/philmills/) - Phil Mills is running the London Marathon for the Childhood Eye Cancer Trust to make a difference to families affected by retinoblastoma.
- [Mum backs campaign to improve eye cancer awareness](https://chect.org.uk/mum-backs-campaign-to-improve-eye-cancer-awareness/) - The Childhood Eye Cancer Trust has released figures which show that one in five children with retinoblastoma are waiting more than six months to be diagnosed.
- [Childhood memories shaped by retinoblastoma](https://chect.org.uk/childhood-memories-shaped-by-retinoblastoma/) - Iain Riddell, lay member of CHECT’s Scientific Advisory Committee, reflects on how childhood memories are shaped by the realities of retinoblastoma.
- [Mum urges parents to be ‘eye aware’](https://chect.org.uk/mum-urges-parents-to-be-eye-aware/) - Less than one in three parents have ever had their child’s eyes checked, new figures released by the Childhood Eye Cancer Trust have revealed.
- [Amazing Grace wins at dance champs](https://chect.org.uk/amazing-grace-wins-at-dance-champs/) - 12-year-old Grace Rushton, who lost an eye to retinoblastoma when she was a baby, was part of a winning dance team at the prestigious US Finals.
- [My eye? What about it?](https://chect.org.uk/my-eye-what-about-it/) - Melanie Cassidy reveals how, with the help of some cuddly friends, her son Edward - who had retinoblastoma - took to his artificial eye like a duck to water.
- [Gemma and Noah's knights](https://chect.org.uk/gemma-and-noahs-knights/) - Lee Relf has organised a knight rider cycling challenge for the Childhood Eye Cancer Trust in honour of his nephew and sister, Noah and Gemma Edgar.
- [Grandson’s bravery inspires Graham to run Great North Run](https://chect.org.uk/grandsons-bravery-inspires-graham-to-run-great-north-run/) - Graham Sinclair never thought he would run a half marathon but the bravery of his three-year-old grandson Zachary has shown him that anything is possible.
- [Good luck to the knights!](https://chect.org.uk/good-luck-to-the-knights/) - Lee Relf and friends are about to embark on a 130 mile cycle ride dressed as medieval knights but it’s his sister Gemma and nephew Noah who are the true heroes.
- [Young journalists needed for next edition of Teen Focus](https://chect.org.uk/young-journalists-needed-for-next-edition-of-teen-focus/) - Calling all teenage Childhood Eye Cancer Trust members! We need you to help us put together the next edition of Teen Focus.
- ['I shaved my head for charity'](https://chect.org.uk/headshave/) - Jodie Ward and her husband Gareth have taken part in a sponsored head shave for the Childhood Eye Cancer Trust (CHECT) in memory of Jodie’s brother Martin who had retinoblastoma.
- [Family of 5 in Great North Run](https://chect.org.uk/family-of-5-in-great-north-run/) - Childhood Eye Cancer Trust Chief Executive Patrick Tonks is running the Great North Run with his wife and three children.
- [60-second interview – CHECT marathon runner](https://chect.org.uk/60-second-interview-chect-marathon-runner/) - Steve Garland tells us what inspired him to run the 2017 London Marathon for the Childhood Eye Cancer Trust.
- [Vote for CHECT to win up to £25,000](https://chect.org.uk/vote-for-chect-to-win-up-to-25000/) - The Childhood Eye Cancer Trust has been shortlisted for an Aviva Community Fund award – and we really need your help to make sure we win it.
- [Discount for family holidays](https://chect.org.uk/haven/) - Holiday park operator Haven is offering discounted holidays to Childhood Eye Cancer Trust members.
- [Mission of a lifetime](https://chect.org.uk/mission-of-a-lifetime/) - Karen Stuart and her dad Ray reveal why their personal health challenges have inspired them to take on the mission of a lifetime.
- [‘We want to help other families too’](https://chect.org.uk/we-want-to-help-other-families-too/) - Despite coping with two cancer diagnoses, the Edgar family have raised more than £17,000 to make sure that families in the future are supported.
- [Mum’s Christmas photo warning](https://chect.org.uk/mums-christmas-photo-warning/) - Christmas is a time for taking family photos but one mum is warning parents to make sure they check their snaps for symptoms of the eye cancer retinoblastoma.
- [Esme is VIP guest](https://chect.org.uk/esme-is-vip-guest/) - Young eye cancer survivor Esme Eagle Davies and Mayor of Hereford Jim Kenyon were special guests as Vision Express opened its new-look Hereford store.
- [The week that changed our lives](https://chect.org.uk/the-week-that-changed-our-lives/) - One evening, Michelle Turner spotted an unusual white glow in her toddler’s eye. Just seven days later, she was told her boy had cancer. She tells their story.
- [Save the date!](https://chect.org.uk/save-the-date/) - We are delighted to announce that we will be holding our next members’ weekend in 2017 – so please get the date in your diary!
- ['Trust a parent’s instinct'](https://chect.org.uk/trust-a-parents-instinct/) - New figures show that babies and children are waiting more than three times longer than the recommended guidelines to be diagnosed with retinoblastoma.
- [Family affair for London Marathon](https://chect.org.uk/family-affair-for-london-marathon/) - The mum, aunt, grandmother and grandfather of a boy who had retinoblastoma are all taking part in the London Marathon for the Childhood Eye Cancer Trust.
- [Drew-Alexander unveils revamped opticians](https://chect.org.uk/drew-unveils-revamped-opticians/) - Drew was guest of honour to launch newly refurbished premises for Vision Express Hounslow
- [Schoolgirl raises awareness of Rb](https://chect.org.uk/schoolgirl-raises-awareness-of-rb/) - When teenager Amy Owens' little cousin Ethan was diagnosed with retinoblastoma, she wanted to do her bit to let more people know about this rare cancer…. In the midst of preparing for her GCSEs, Amy Owen has also devoted her time to raising awareness of retinoblastoma. The schoolgirl was motivated by her cousin Ethan Warman,
- [Festive fundraising](https://chect.org.uk/festive-fundraising/) - Christmas is the perfect time to raise funds for a good cause and there are so many fun and different ways to take part.

## Pages

- [Childhood Eye Cancer Trust](https://chect.org.uk/) - The Childhood Eye Cancer Trust (CHECT) is the only charity dedicated to helping anyone in the UK affected by retinoblastoma, a rare form of eye cancer.
- [Get involved in research](https://chect.org.uk/research-asks/) - On this page are some current research opportunities for you to be directly involved in and make a difference for those affected by Rb in the future!
- [Childhood Cancer Awareness Month - Going for Gold!](https://chect.org.uk/childhood-cancer-awareness-month-going-for-gold/) - Get involved with Childhood Cancer Awareness Month 2025 on behalf of the Childhood Eye Cancer Trust by raising awareness of retinoblastoma, and fundraising.
- [Fundraising hub](https://chect.org.uk/hub/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [Cookie Policy](https://chect.org.uk/cookie-policy/) - This Cookie Policy explains what cookies are and how we use them. You should read this policy to understand what cookies are, how we use them.
- [CHECT meet-ups](https://chect.org.uk/meet-ups/) - Childhood Eye Cancer Trust In-person meet- are back! Register your interest now on our website. We also have a host of online events throughout 2023
- [Safeguarding](https://chect.org.uk/safeguarding/) - The purpose of this policy is to promote and safeguard the welfare of children and adults at risk of harm who come into contact with CHECT.
- [Privacy](https://chect.org.uk/privacy/) - This privacy notice sets out how the Childhood Eye Cancer Trust (CHECT) uses and protects information that identifies or can be used by us to identify you.
- [Challenge events](https://chect.org.uk/challenge-events/) - Take part in a fundraising charity event and make a difference to the lives of children affected by retinoblastoma - run, cycle, walk or trek for CHECT.
- [Become a member](https://chect.org.uk/become-a-member/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Run for CHECT](https://chect.org.uk/running/) - From 5k to 100k – by signing up to a running event in aid of CHECT you’re doing something amazing for families affected by the eye cancer retinoblastoma.
- [Information for professionals](https://chect.org.uk/info-for-professionals/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Current research projects](https://chect.org.uk/current-research/) - These projects are currently being funded by Childhood Eye Cancer Trust. For past research please have a look at our previous projects.
- [Make a one-off donation](https://chect.org.uk/donate/one-off-donation/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma.
- [Holidays and wishes](https://chect.org.uk/holidays-and-wishes/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Gaming for good](https://chect.org.uk/digital-fundraising/gaming-for-good/) - [et_pb_section fb_built=”1″ admin_label=”Heading” _builder_version=”4.27.6″ _module_preset=”default” background_enable_image=”off” custom_padding=”||19px|||” collapsed=”off” global_colors_info=”{}”][et_pb_row admin_label=”Row” _builder_version=”4.27.4″ _module_preset=”default” background_enable_image=”off” custom_padding=”23px|||||” border_color_all=”#ffcd00″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][/et_pb_column][/et_pb_row][et_pb_row admin_label=”Row” _builder_version=”4.27.4″ _module_preset=”default” background_enable_image=”off” custom_margin=”|auto|-16px|auto||” custom_padding=”1px||0px|||” border_color_all=”#ffcd00″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https://chect.org.uk/wp-content/uploads/2026/04/Twitch_1.png” alt=”A girl, boy with a Minecraft jumper on and another boy all have their arms high in
- [Apply for funding](https://chect.org.uk/apply-for-funding/) - [et_pb_section fb_built=”1″ admin_label=”Heading” _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||5px|||” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||1px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”] Childhood Eye Cancer Trust research grants: Application process Our current round of applications has closed, but you can see examples of our application invitation and form below. [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||1px|||”
- [CHECT Research](https://chect.org.uk/research/) - [et_pb_section fb_built=”1″ admin_label=”Heading” _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||5px|||” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||1px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][/et_pb_column][/et_pb_row][et_pb_row column_structure=”2_3,1_3″ _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||1px|||” global_colors_info=”{}”][et_pb_column type=”2_3″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Subheading” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”11px|||||” custom_padding=”||0px|||” global_colors_info=”{}”] Funding world-class research into retinoblastoma is one of the key aims of the Childhood Eye Cancer Trust. We are currently
- [Digital fundraising](https://chect.org.uk/digital-fundraising/) - Digital fundraising is a simple yet powerful way to support families affected by retinoblastoma from anywhere in the world.
- [Corporate Partnerships](https://chect.org.uk/corporate-partnerships/) - Your company support can make a huge difference to the families affected by retinoblastoma
- [Media](https://chect.org.uk/contact/media/) - Details for journalists looking for information about the childhood eye cancer retinoblastoma. Get in touch to help us spread awareness in the press and media
- [Teens and young adults](https://chect.org.uk/teens-and-young-adults/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Information for parents](https://chect.org.uk/info-for-parents/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Get involved with CHECT](https://chect.org.uk/get-involved/) - [et_pb_section fb_built=”1″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][/et_pb_column][/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_blurb title=”Challenge events” image=”https://chect.org.uk/wp-content/uploads/2024/11/Challenges-1.png” alt=”Icon of a medal for CHECT challenges” icon_alignment=”left” admin_label=”Challenges” _builder_version=”4.27.3″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}”] Join one of our exciting challenge events, from walks and treks to runs
- [Walking, trekking and hiking](https://chect.org.uk/walking-events/) - Take part in a charity trek for CHECT and raise vital funds to help children affected by retinoblastoma and their families.
- [CHECT merchandise](https://chect.org.uk/shop/) - Whether you are raising funds, awareness of retinoblastoma or simply would love to own some of our merchandise, thank you!
- [Signs and symptoms](https://chect.org.uk/signs-and-symptoms/) - You may notice a white glow in the eye, white reflection in a photo or in the eye itself, or another symptom which might not be retinoblastoma (Rb).
- [Publications](https://chect.org.uk/publications/) - You can download and read all of our latest publications, including our InFocus newsletter, impact report and annual report and accounts.
- [About us at CHECT](https://chect.org.uk/about-us/) - The Childhood Eye Cancer Trust (CHECT) is the only charity in the UK dedicated to helping people affected by retinoblastoma.
- [Other fundraising events](https://chect.org.uk/other-events/) - From Tough Mudder obstacle courses to doing the Up at the o2 challenge in London, there are lots of ways to raise money for children with eye cancer.
- [Community Fundraising](https://chect.org.uk/community-fundraising/) - Fundraising in your community is a fantastic way to support the Childhood Eye Cancer Trust while bringing people together for a great cause.
- [Artificial / Prosthetic eyes](https://chect.org.uk/artificial-eyes/) - Are you living with an artificial eye? We have addressed some of the more common questions asked.
- [Our Team & Trustees](https://chect.org.uk/team/) - Meet the Childhood Eye Cancer Trust staff team, trustees and patron and find out how to get in touch with us today! We look forward to hearing from you.
- [Contact us](https://chect.org.uk/contact/) - We aim to respond to your query within 24 hours during working days. If you need urgent assistance then please contact our office on 0207 377 5578
- [Make a regular donation](https://chect.org.uk/regular-donation/) - [et_pb_section fb_built=”1″ admin_label=”Intro & amounts” _builder_version=”4.16″ custom_padding=”||10px|||” global_colors_info=”{}”][et_pb_row admin_label=”Row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][et_pb_text _builder_version=”4.23.4″ global_colors_info=”{}”] Thank you for choosing to make a regular donation to the Childhood Eye Cancer Trust. Your ongoing support ensures nobody faces the journey of retinoblastoma alone. With your generosity,
- [How we can help](https://chect.org.uk/how-we-can-help/) - [et_pb_section fb_built=”1″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][et_pb_text admin_label=”Subheading” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”] When your child is first diagnosed with eye cancer, the shock can be numbing. Concerns about the future, both short and long-term, can be overwhelming. This is a difficult period in any family’s life,
- [Cycling events](https://chect.org.uk/cycling-events/) - With fundraising events across the UK, the money you raise by cycling for CHECT will make a big difference to children affected by retinoblastoma.
- [Trusts and Foundations](https://chect.org.uk/trusts-and-foundations/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma.
- [Hospital to Hospital](https://chect.org.uk/h2h/) - Claim a free pair of limited-edition shoelaces when you walk, run, cycle or skate to raise money for Childhood Eye Cancer Trust during Childhood Cancer Awareness Month!
- [Explore Lambeth Palace with us](https://chect.org.uk/explore-lambeth-palace-with-us/) - [et_pb_section fb_built=”1″ admin_label=”Heading” _builder_version=”4.27.4″ _module_preset=”default” background_enable_image=”off” custom_padding=”||3px|||” collapsed=”off” global_colors_info=”{}”][et_pb_row admin_label=”Row” _builder_version=”4.27.4″ _module_preset=”default” background_enable_image=”off” custom_padding=”23px|||||” border_color_all=”#ffcd00″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][/et_pb_column][/et_pb_row][et_pb_row column_structure=”3_5,2_5″ admin_label=”Row” _builder_version=”4.27.4″ _module_preset=”default” background_enable_image=”off” custom_padding=”23px||0px|||” border_color_all=”#ffcd00″ global_colors_info=”{}”][et_pb_column type=”3_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”||11px|||” global_colors_info=”{}”] Friday 29th August 2025 [/et_pb_text][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||0px|||” global_colors_info=”{}” custom_margin=”||1px|||”] Step inside history, connect
- [Research](https://chect.org.uk/research-2-2/) - We support research that will enhance our understanding of retinoblastoma, improve treatment options and reduce the negative impact on those affected.
- [Donate today](https://chect.org.uk/donate/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma.
- [Enucleation of the eye](https://chect.org.uk/enucleation/) - [et_pb_section fb_built=”1″ admin_label=”Enucleation” _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||20px|||” collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”||||false|false” custom_padding=”|30px||30px|false|true” border_color_right=”#FFCD00″ border_width_left=”5px” border_color_left=”#FFCD00″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.3″ _module_preset=”default” global_colors_info=”{}”][et_pb_text admin_label=”Subheading” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”] If the retinoblastoma tumour is very large and has damaged the sight in the eye beyond repair, then the
- [Information for adults](https://chect.org.uk/info-for-adults/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Work for CHECT](https://chect.org.uk/jobs/) - Current job vacancies at the Childhood Eye Cancer Trust. This includes voluntary and permanent job roles - we look forward to receiving your application!
- [Chemotherapy for retinoblastoma](https://chect.org.uk/chemotherapy/) - Chemotherapy is usually used in the first stage of treatment for patients with bilateral retinoblastoma and can be used for both small and large tumours.
- [Intra-vitreal chemotherapy](https://chect.org.uk/ivc/) - Children who have developed seeds in the vitreous may be offered injections of chemotherapy directly into the eye known as Intra-vitreal chemotherapy (IVC)
- [Intra-arterial chemotherapy](https://chect.org.uk/iac/) - Intra-arterial chemotherapy (IAC) is a method of delivering chemotherapy drugs directly to the eye rather than around the whole body with systemic chemotherapy
- [Crazy Glasses](https://chect.org.uk/crazyglasses/) - Would you like a quick, easy and fun way to support the Childhood Eye Cancer Trust? Then Crazy Glasses is for you!
- [Give as you live](https://chect.org.uk/gayl/) - [et_pb_section fb_built=”1″ admin_label=”GAYL” _builder_version=”4.16″ custom_padding=”||10px|||” global_colors_info=”{}”][et_pb_row admin_label=”Row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][et_pb_text admin_label=”Subheading” _builder_version=”4.27.4″ global_colors_info=”{}”] Support us every time you shop with Give as You Live! Give as You Live (GAYL) is a free online fundraising platform that allows you to raise funds for the
- [CHECT lottery](https://chect.org.uk/lottery/) - [et_pb_section fb_built=”1″ admin_label=”Join” _builder_version=”4.16″ custom_padding=”||10px|||” global_colors_info=”{}”][et_pb_row admin_label=”Row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][et_pb_text admin_label=”Subheading” _builder_version=”4.27.4″ global_colors_info=”{}”] For just £1 a week, you can enter the Childhood Eye Cancer Trust’s lottery for a chance to win up to £25,000—while supporting children with retinoblastoma. For every £1 entry,
- [Volunteer with CHECT](https://chect.org.uk/volunteer-with-chect/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma. Volunteer with us today!
- [Legacy Giving](https://chect.org.uk/legacy-giving/) - At the Childhood Eye Cancer Trust, we are dedicated to supporting children and families affected by retinoblastoma, a rare childhood eye cancer.
- [Pay in your funds](https://chect.org.uk/pay-in-your-funds/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma.
- [Give in memory](https://chect.org.uk/give-in-memory/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma.
- [Payroll Giving](https://chect.org.uk/payroll-giving/) - The Childhood Eye Cancer Trust (CHECT) is a charity dedicated to helping people affected by retinoblastoma.
- [Retinoblastoma and me](https://chect.org.uk/ages-7-11/) - Welcome to the part of our website for 7 to 11-year-olds. We hope you like it. Below we have tried to explain a bit about what happened or is happening to you.
- [Retinoblastoma and me](https://chect.org.uk/ages-1-6/) - Welcome to the part of our website for 1 to 6-year-olds. We hope you like it. Below we have tried to explain a bit about what happened or is happening to you.
- [School and nursery](https://chect.org.uk/school-and-nursery/) - Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by Rb, their friends and family, all supporters of CHECT and health professionals.
- [Previous research projects](https://chect.org.uk/previous-research/) - These projects have previously been funded either solely by Childhood Eye Cancer Trust or in partnership with a co-funder.
- [Cryotherapy and laser](https://chect.org.uk/other-treatments/) - Small tumours that are located at the front of the eye can be treated by a freezing treatment known as cryotherapy. An instrument called a cryoprobe...
- [Radiotherapy and plaque](https://chect.org.uk/radiotherapy-treatment/) - Depending on the location of the tumour, solitary tumours can sometimes be treated with a radioactive plaque. This is a tiny piece of radioactive material...
- [Screening for retinoblastoma](https://chect.org.uk/screening/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [Types of retinoblastoma](https://chect.org.uk/types-of-retinoblastoma/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [Genetics and retinoblastoma](https://chect.org.uk/genetics/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [Treatment for retinoblastoma](https://chect.org.uk/treatment/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [Diagnosing retinoblastoma](https://chect.org.uk/diagnosis/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [What causes white eye?](https://chect.org.uk/about-retinoblastoma-2/what-causes-white-eye/) - Noticing a white glow in the eye, a white pupil or white reflection in a photo or in the eye itself doesn't always mean your child has retinoblastoma (Rb).
- [About Retinoblastoma](https://chect.org.uk/about-retinoblastoma-2/) - Retinoblastoma (Rb) is a type of eye cancer that affects young children, mainly under the age of six. It develops in the cells of the retina.
- [Genetic testing](https://chect.org.uk/genetic-testing/) - Retinoblastoma information, including signs and symptoms, types of eye cancer, diagnosing retinoblastoma, the red reflex test and treatment options.
- [Seen a white glow in a photograph?](https://chect.org.uk/about-retinoblastoma-2/whiteeye/) - Seeing a white glow in the eye of a child in a photograph can be really worrying. We’ve answered some of the most frequently asked questions around white eye.
- [50km your way!](https://chect.org.uk/50km/) - Claim a free pair of limited-edition shoelaces when you walk, run, cycle or skate to raise money for Childhood Eye Cancer Trust during September.
- [Stories and news](https://chect.org.uk/blog/) - Childhood Eye Cancer Trust's blog - for retinoblastoma news, research updates and real life stories.
- [Accessibility](https://chect.org.uk/home-new-2/accessibility/) - We developed the design and layout of the site so that it can be used by blind or partially sighted users.
- [CHECT's Patron](https://chect.org.uk/chects-patron/) - Darren Harris has been the CHECT's patron since 2012. He has supported several fundraising events including Ride4Sight and Art4Eyes
- [Thank you](https://chect.org.uk/donate-old/thankyou/) - Thank you for donating to the Childhood Eye Cancer Trust.
- [Comments, compliments and complaints](https://chect.org.uk/contact/comments-compliments-and-complaints/) - We aim to provide the highest level of service to individuals, families, supporters, donors and volunteers. We appreciate that occasionally things may go wrong, and that there may be circumstances which are beyond our control.
- [Subject Access Request](https://chect.org.uk/sar/) - [et_pb_section fb_built=”1″ _builder_version=”3.17.6″][et_pb_row custom_padding=”0|0px|38px|0px|false|false” _builder_version=”3.17.6″][et_pb_column type=”4_4″ _builder_version=”3.0.47″ parallax=”off” parallax_method=”on”][et_pb_post_title meta=”off” featured_image=”off” _builder_version=”3.17.6″][/et_pb_post_title][et_pb_text _builder_version=”3.17.6″]Under General Data Protection Regulations, you have the right to access the personal data that the Childhood Eye Cancer Trust (CHECT) holds about you. This is called a Subject Access Request (SAR). To help us identify exactly which information you require, and the
- [GDPR consent form](https://chect.org.uk/contact/consent/)

## Products

- [Pin Badge](https://chect.org.uk/product/pin-badge/) - Our CHECT pin badge is an accessory featuring the CHECT logo and is made of high-quality enamel. Perfect for wearing on jackets, bags, and or lanyards to show support.
- [Balloons](https://chect.org.uk/product/balloons/) - Our balloons are made of high-quality latex, featuring our CHECT logo available in three colours, white, light blue and dark blue.
- [Adults' T-Shirt - White](https://chect.org.uk/product/adults-t-shirt/) - Our 100% cotton t-shirts are perfect for a fundraiser or raising awareness for CHECT and retinoblastoma. We currently have limited stock so get your orders in fast! Have a look at their size guide.
- [Stickers](https://chect.org.uk/product/stickers/) - Our stickers featuring our logo come in sheets of A4 with 15 stickers
- [Collection Tin](https://chect.org.uk/product/collection-tin/) - Our plastic branded collection tins come with a ring seal and tin number. When you have finished your collection, go to our paying in your funds page to find out how to pay in your monies. Please return the tin back to us when you have finished your collection. Address below: Childhood Eye Cancer Trust
- [Fundraising leaflet](https://chect.org.uk/product/fundraising-leaflet/) - Our Fundraising leaflet: Illustrates the work we do, who we support as well as showing where your donation goes through the statistics on the back.
- [CHECT poster](https://chect.org.uk/product/chect-poster/) - A4 awareness poster: illustrates a symptom of Rb and tells the viewer about the other signs. It also has a QR code for people to scan and donate. It's perfect for an event or to hand out to businesses in your local area.
- [Wrist Band](https://chect.org.uk/product/wrist-band/) - Our CHECT-branded wristbands made of silicone are worn around the wrist in two shades of blue, dark & light.
- [Branded Shoe Laces](https://chect.org.uk/product/branded-shoe-laces/) - Grab one of our CHECT-branded laces in our colours blue and yellow. Whether you're running a marathon, taking on a challenge, or simply showing your support, these laces are a great way to raise awareness for childhood eye cancer.
- [Children's T-Shirt - White](https://chect.org.uk/product/childrens-t-shirt-2/) - Our 100% cotton t-shirts are perfect for matching the grown ups at a fundraiser or raising awareness for CHECT and retinoblastoma. We currently have limited stock so get your orders in fast! Have a look at their size guide.
- [Adults' T-Shirt - Blue](https://chect.org.uk/product/adults-t-shirt-blue/) - Our 100% cotton t-shirts are perfect for a fundraiser or raising awareness for CHECT and retinoblastoma. We currently have limited stock so get your orders in fast! Have a look at their size guide.
- [Technical T-Shirt](https://chect.org.uk/product/technical-t-shirt/) - Our unisex technical t-shirts are available in sizes S, M, L, XL & XXL
- [Running Vest](https://chect.org.uk/product/running-vest/) - Our unisex running vests are available in sizes XS, S, M, L, XL, XXL & XXXL
- [CHECT Teddy](https://chect.org.uk/product/chect-teddy/) - A small fluffy light brown teddy wearing a white t-shirt with the childhood eye cancer trust logo on it. Perfect for little hands!
- [Awareness leaflet](https://chect.org.uk/product/leaflet/) - Our Six Signs to Watch For leaflet: illustrates the six signs and symptoms of retinoblastoma to look out for.
- [Christmas Cards, by Sally Foden (pack of 9)](https://chect.org.uk/product/christmas-cards-by-sally-foden-pack-of-9/) - It's never to early to be organised for Christmas! This set of cards was designed by Mum Sally, whose little boy was affected by retinoblastoma. Check out more of Sally's work on her instagram: www.instagram.com/sallyelizabethfoden/ 3x 3 designs for a pack of 9. Please allow 5 working days for your cards to arrive.
- [Children's T-Shirt - Blue](https://chect.org.uk/product/childrens-t-shirt-blue/) - Our 100% cotton t-shirts are perfect for matching the grown ups at a fundraiser or raising awareness for CHECT and retinoblastoma. We currently have limited stock so get your orders in fast! Have a look at their size guide.
- [Christmas Cards, by Amber aged 8 (pack of 5)](https://chect.org.uk/product/christmas-cards-by-amber-aged-8-pack-of-5/) - If you love Amber's design and just want some of their design then look no further! You'll recieve 5 cards in this pack. Stock is limited so order yours today and be super organised for Christmas! Please allow 5 working days for your cards to arrive.
- [Christmas Cards, by CHECT members (pack of 9)](https://chect.org.uk/product/christmas-cards-by-chect-members-pack-of-9/) - This year's festive cards are designed by three children who have been affected by retinoblastoma. You get three of each design to make a pack of 9. Please allow 5 working days for your cards to arrive.
- [Christmas Cards, by Samah aged 10 (pack of 5)](https://chect.org.uk/product/christmas-cards-by-samah-aged-10-pack-of-5/) - If you love Samah's design and just want some of their design then look no further! You'll recieve 5 cards in this pack. Stock is limited so order yours today and be super organised for Christmas! Please allow 5 working days for your cards to arrive.
- [Christmas Cards, by Ethan aged 7 (pack of 5)](https://chect.org.uk/product/christmas-cards-by-ethan-aged-7-pack-of-5/) - If you love Ethan's design and just want some of their design then look no further! You'll recieve 5 cards in this pack. Stock is limited so order yours today and be super organised for Christmas! Please allow 5 working days for your cards to arrive.

## MailPoet Page

- [MailPoet Page](https://chect.org.uk/?mailpoet_page=subscriptions) - [mailpoet_page]
- [MailPoet Page](https://chect.org.uk/?mailpoet_page=captcha) - [mailpoet_page]

## eCard

- [1. Choose your design...](https://chect.org.uk/ecard/choose-your-design/)

## Categories

- [SUPPORT](https://chect.org.uk/category/support/)
- [AWARENESS](https://chect.org.uk/category/awareness/)
- [FUNDRAISING](https://chect.org.uk/category/fundraising/)
- [EVENTS](https://chect.org.uk/category/events/)
- [DO NOT USE](https://chect.org.uk/category/do-not-use/)
- [NEWS](https://chect.org.uk/category/news/)
- [MY STORY](https://chect.org.uk/category/real-life-stories/)
- [RESEARCH](https://chect.org.uk/category/research/)

## Tags

- [Charity](https://chect.org.uk/tag/charity/)
- [CHECT](https://chect.org.uk/tag/chect/)
- [Retinoblastoma](https://chect.org.uk/tag/retinoblastoma/)
- [Cancer](https://chect.org.uk/tag/cancer/)
- [Rb](https://chect.org.uk/tag/rb/)
- [artificial eye](https://chect.org.uk/tag/artificial-eye/)
- [Enucleation](https://chect.org.uk/tag/enucleation/)
- [fundraising](https://chect.org.uk/tag/fundraising/)
- [awareness](https://chect.org.uk/tag/awareness/)
- [squint](https://chect.org.uk/tag/squint/)
- [eye cancer](https://chect.org.uk/tag/eye-cancer/)
- [art4eys](https://chect.org.uk/tag/art4eys/)
- [CHECT Champion](https://chect.org.uk/tag/chect-champion/)
- [wunderman](https://chect.org.uk/tag/wunderman/)
- [awareness campaign](https://chect.org.uk/tag/awareness-campaign/)
- [smartphone](https://chect.org.uk/tag/smartphone/)
- [leukocoria](https://chect.org.uk/tag/leukocoria/)
- [white reflex](https://chect.org.uk/tag/white-reflex/)
- [rare disease day](https://chect.org.uk/tag/rare-disease-day/)
- [diagnosis](https://chect.org.uk/tag/diagnosis/)
- [fun run](https://chect.org.uk/tag/fun-run/)
- [family](https://chect.org.uk/tag/family/)
- [running events](https://chect.org.uk/tag/running-events/)
- [competition](https://chect.org.uk/tag/competition/)
- [teenagers](https://chect.org.uk/tag/teenagers/)
- [marathon](https://chect.org.uk/tag/marathon/)
- [running](https://chect.org.uk/tag/running/)
- [genetics](https://chect.org.uk/tag/genetics/)
- [research](https://chect.org.uk/tag/research/)
- [Retinoblastoma Awareness Week](https://chect.org.uk/tag/retinoblastoma-awareness-week/)
- [technology](https://chect.org.uk/tag/technology/)
- [white eye](https://chect.org.uk/tag/white-eye/)
- [Roubaix Challenge](https://chect.org.uk/tag/roubaix-challenge/)
- [cycling](https://chect.org.uk/tag/cycling/)
- [educational support](https://chect.org.uk/tag/educational-support/)
- [Great North Run](https://chect.org.uk/tag/great-north-run/)
- [Caroline Aherne](https://chect.org.uk/tag/caroline-aherne/)
- [CHECT Champions](https://chect.org.uk/tag/chect-champions/)
- [Members' Day](https://chect.org.uk/tag/members-day/)
- [Vision Express](https://chect.org.uk/tag/vision-express/)
- [Taunton](https://chect.org.uk/tag/taunton/)
- [Ambassadors](https://chect.org.uk/tag/ambassadors/)
- [Sahara Desert Trek](https://chect.org.uk/tag/sahara-desert-trek/)
- [Eye club](https://chect.org.uk/tag/eye-club/)
- [sponsored](https://chect.org.uk/tag/sponsored/)
- [Childhood Cancer Awareness Month](https://chect.org.uk/tag/childhood-cancer-awareness-month/)
- [Tea party](https://chect.org.uk/tag/tea-party/)
- [Cycling events](https://chect.org.uk/tag/cycling-events/)
- [Ride4Sight](https://chect.org.uk/tag/ride4sight/)
- [Global's Make Some Noise](https://chect.org.uk/tag/globals-make-some-noise/)
- [charity partnership](https://chect.org.uk/tag/charity-partnership/)
- [Rb week](https://chect.org.uk/tag/rb-week/)
- [Retinoblastma](https://chect.org.uk/tag/retinoblastma/)
- [LookSharp](https://chect.org.uk/tag/looksharp/)
- [LookSharpForRb](https://chect.org.uk/tag/looksharpforrb/)
- [London to Paris Bike Ride](https://chect.org.uk/tag/london-to-paris-bike-ride/)
- [bike ride](https://chect.org.uk/tag/bike-ride/)
- [Great Wall of China](https://chect.org.uk/tag/great-wall-of-china/)
- [trek](https://chect.org.uk/tag/trek/)
- [trekking](https://chect.org.uk/tag/trekking/)
- [overseas challenge](https://chect.org.uk/tag/overseas-challenge/)
- [challenge](https://chect.org.uk/tag/challenge/)
- [hospital](https://chect.org.uk/tag/hospital/)
- [advice](https://chect.org.uk/tag/advice/)
- [OrCam My Reader](https://chect.org.uk/tag/orcam-my-reader/)
- [white glow](https://chect.org.uk/tag/white-glow/)
- [GDPR](https://chect.org.uk/tag/gdpr/)
- [Crazy Glasses](https://chect.org.uk/tag/crazy-glasses/)
- [Sailing](https://chect.org.uk/tag/sailing/)
- [EMCT](https://chect.org.uk/tag/emct/)
- [History](https://chect.org.uk/tag/history/)
- [Beyond Rb](https://chect.org.uk/tag/beyond-rb/)
- [artificial eyes](https://chect.org.uk/tag/artificial-eyes/)
- [Reading](https://chect.org.uk/tag/reading/)
- [Support](https://chect.org.uk/tag/support/)
- [Visual Impairment](https://chect.org.uk/tag/visual-impairment/)
- [Video](https://chect.org.uk/tag/video/)
- [Haven](https://chect.org.uk/tag/haven/)
- [Holiday discount](https://chect.org.uk/tag/holiday-discount/)
- [Olivia Deane](https://chect.org.uk/tag/olivia-deane/)
- [My Story](https://chect.org.uk/tag/my-story/)
- [Father's Day](https://chect.org.uk/tag/fathers-day/)
- [Siblings](https://chect.org.uk/tag/siblings/)
- [Survey](https://chect.org.uk/tag/survey/)
- [Teens](https://chect.org.uk/tag/teens/)
- [Children's eye tests](https://chect.org.uk/tag/childrens-eye-tests/)
- [Guide to holidays](https://chect.org.uk/tag/guide-to-holidays/)
- [Leaflet](https://chect.org.uk/tag/leaflet/)
- [Information](https://chect.org.uk/tag/information/)
- [Financial Help](https://chect.org.uk/tag/financial-help/)
- [Cycle](https://chect.org.uk/tag/cycle/)
- [event](https://chect.org.uk/tag/event/)
- [events](https://chect.org.uk/tag/events/)
- [Uninvisible Friend](https://chect.org.uk/tag/uninvisible-friend/)
- [Alice and Dot](https://chect.org.uk/tag/alice-and-dot/)
- [Christmas](https://chect.org.uk/tag/christmas/)
- [Christmas card](https://chect.org.uk/tag/christmas-card/)
- [Christmas card competition](https://chect.org.uk/tag/christmas-card-competition/)
- [#YouMadeItHappen](https://chect.org.uk/tag/youmadeithappen/)
- [Childhood Eye Cancer Trust](https://chect.org.uk/tag/childhood-eye-cancer-trust/)
- [twins](https://chect.org.uk/tag/twins/)
- [squats](https://chect.org.uk/tag/squats/)
- [SAC](https://chect.org.uk/tag/sac/)
- [scientific](https://chect.org.uk/tag/scientific/)
- [advisory](https://chect.org.uk/tag/advisory/)
- [committee](https://chect.org.uk/tag/committee/)
- [volunteer](https://chect.org.uk/tag/volunteer/)
- [voluntary](https://chect.org.uk/tag/voluntary/)
- [will jubb](https://chect.org.uk/tag/will-jubb/)
- [rugby](https://chect.org.uk/tag/rugby/)
- [PhD](https://chect.org.uk/tag/phd/)
- [Hull](https://chect.org.uk/tag/hull/)
- [York](https://chect.org.uk/tag/york/)
- [York City Knights](https://chect.org.uk/tag/york-city-knights/)
- [help research into developing resources for adults affected by Rb](https://chect.org.uk/tag/help-research-into-developing-resources-for-adults-affected-by-rb/)
- [london marathon](https://chect.org.uk/tag/london-marathon/)
- [upcyling](https://chect.org.uk/tag/upcyling/)
- [amazon](https://chect.org.uk/tag/amazon/)
- [ebay for charity](https://chect.org.uk/tag/ebay-for-charity/)
- [give as you live](https://chect.org.uk/tag/give-as-you-live/)
- [Imogen Lloyd](https://chect.org.uk/tag/imogen-lloyd/)
- [InFocus](https://chect.org.uk/tag/infocus/)
- [Jack Gwyther](https://chect.org.uk/tag/jack-gwyther/)
- [John Hungerford](https://chect.org.uk/tag/john-hungerford/)
- [nicola o'donnell](https://chect.org.uk/tag/nicola-odonnell/)
- [World Book Day](https://chect.org.uk/tag/world-book-day/)
- [every bunny is a yoga bunny](https://chect.org.uk/tag/every-bunny-is-a-yoga-bunny/)
- [elijah byrne](https://chect.org.uk/tag/elijah-byrne/)
- [OCT](https://chect.org.uk/tag/oct/)
- [3D artificial eyes](https://chect.org.uk/tag/3d-artificial-eyes/)
- [Zain](https://chect.org.uk/tag/zain/)
- [judo](https://chect.org.uk/tag/judo/)
- [jacob wright](https://chect.org.uk/tag/jacob-wright/)
- [dan cope](https://chect.org.uk/tag/dan-cope/)
- [ffion miles](https://chect.org.uk/tag/ffion-miles/)
- [music bursary](https://chect.org.uk/tag/music-bursary/)
- [lesley](https://chect.org.uk/tag/lesley/)
- [support manager](https://chect.org.uk/tag/support-manager/)
- [Sister Maureen McCalla](https://chect.org.uk/tag/sister-maureen-mccalla/)
- [Birmingham Retinoblastoma Service](https://chect.org.uk/tag/birmingham-retinoblastoma-service/)
- [Birmingham Women's and Children's Hospital](https://chect.org.uk/tag/birmingham-womens-and-childrens-hospital/)
- [mohamed](https://chect.org.uk/tag/mohamed/)
- [pathways to diagnosis](https://chect.org.uk/tag/pathways-to-diagnosis/)
- [aj finney](https://chect.org.uk/tag/aj-finney/)
- [marvin the mole](https://chect.org.uk/tag/marvin-the-mole/)
- [white glow in eye](https://chect.org.uk/tag/white-glow-in-eye/)
- [harvey and finn](https://chect.org.uk/tag/harvey-and-finn/)
- [buddy dog](https://chect.org.uk/tag/buddy-dog/)
- [audrey allen](https://chect.org.uk/tag/audrey-allen/)
- [Infocus summer 2022](https://chect.org.uk/tag/infocus-summer-2022/)
- [infocus plain text](https://chect.org.uk/tag/infocus-plain-text/)
- [NIPD](https://chect.org.uk/tag/nipd/)
- [in pregnancy testing](https://chect.org.uk/tag/in-pregnancy-testing/)
- [Non-invasive prenatal diagnosis](https://chect.org.uk/tag/non-invasive-prenatal-diagnosis/)
- [planning a family](https://chect.org.uk/tag/planning-a-family/)
- [pregnancy](https://chect.org.uk/tag/pregnancy/)
- [genetics service](https://chect.org.uk/tag/genetics-service/)
- [Dr Trevor Cole](https://chect.org.uk/tag/dr-trevor-cole/)
- [Dr Elisabeth Rosser](https://chect.org.uk/tag/dr-elisabeth-rosser/)
- [Dr Alison Foster](https://chect.org.uk/tag/dr-alison-foster/)
- [Dr Eleanor Hay](https://chect.org.uk/tag/dr-eleanor-hay/)
- [John Pacey-Lowrie](https://chect.org.uk/tag/john-pacey-lowrie/)
- [The Ocularist](https://chect.org.uk/tag/the-ocularist/)
- [bruce horak](https://chect.org.uk/tag/bruce-horak/)
- [bruce horak star trek](https://chect.org.uk/tag/bruce-horak-star-trek/)
- [lavinia](https://chect.org.uk/tag/lavinia/)
- [simon hill](https://chect.org.uk/tag/simon-hill/)
- [darcey-rose](https://chect.org.uk/tag/darcey-rose/)
- [the queen](https://chect.org.uk/tag/the-queen/)
- [william](https://chect.org.uk/tag/william/)
- [jaxon](https://chect.org.uk/tag/jaxon/)
- [daisy](https://chect.org.uk/tag/daisy/)
- [prosthetic eye](https://chect.org.uk/tag/prosthetic-eye/)
- [london marathon 2022](https://chect.org.uk/tag/london-marathon-2022/)
- [dr bob](https://chect.org.uk/tag/dr-bob/)
- [craig](https://chect.org.uk/tag/craig/)
- [bonnie](https://chect.org.uk/tag/bonnie/)
- [lisa](https://chect.org.uk/tag/lisa/)
- [CHECT TYA](https://chect.org.uk/tag/chect-tya/)
- [young adults](https://chect.org.uk/tag/young-adults/)
- [infocus winter plain text](https://chect.org.uk/tag/infocus-winter-plain-text/)
- [Eliza](https://chect.org.uk/tag/eliza/)
- [piano](https://chect.org.uk/tag/piano/)
- [cost of living](https://chect.org.uk/tag/cost-of-living/)
- [finance](https://chect.org.uk/tag/finance/)
- [financial](https://chect.org.uk/tag/financial/)
- [steven](https://chect.org.uk/tag/steven/)
- [Professor Seigel](https://chect.org.uk/tag/professor-seigel/)
- [Dr A Rozanka](https://chect.org.uk/tag/dr-a-rozanka/)
- [professor jesse berry](https://chect.org.uk/tag/professor-jesse-berry/)
- [dr amy gerrish](https://chect.org.uk/tag/dr-amy-gerrish/)
- [natalie](https://chect.org.uk/tag/natalie/)
- [children](https://chect.org.uk/tag/children/)
- [penguin](https://chect.org.uk/tag/penguin/)
- [isla](https://chect.org.uk/tag/isla/)
- [emily ann davison](https://chect.org.uk/tag/emily-ann-davison/)
- [inclusive reading](https://chect.org.uk/tag/inclusive-reading/)
- [retinoblastoma research](https://chect.org.uk/tag/retinoblastoma-research/)
- [guide dog](https://chect.org.uk/tag/guide-dog/)
- [pupdate](https://chect.org.uk/tag/pupdate/)
- [ffion miles music bursary](https://chect.org.uk/tag/ffion-miles-music-bursary/)
- [retinoblastoma prosthetic eye](https://chect.org.uk/tag/retinoblastoma-prosthetic-eye/)
- [customised prosthetic eye](https://chect.org.uk/tag/customised-prosthetic-eye/)
- [London marathon runners](https://chect.org.uk/tag/london-marathon-runners/)
- [bilateral retinoblastoma](https://chect.org.uk/tag/bilateral-retinoblastoma/)
- [retinoblastoma drug](https://chect.org.uk/tag/retinoblastoma-drug/)
- [retinal organoid](https://chect.org.uk/tag/retinal-organoid/)
- [childhood cancer research](https://chect.org.uk/tag/childhood-cancer-research/)
- [Scientific Advisory Committee](https://chect.org.uk/tag/scientific-advisory-committee/)
- [Professor Ohnuma](https://chect.org.uk/tag/professor-ohnuma/)
- [blind](https://chect.org.uk/tag/blind/)
- [running challenge](https://chect.org.uk/tag/running-challenge/)
- [International Day of Women & Girls in Science](https://chect.org.uk/tag/international-day-of-women-girls-in-science/)
- [festus](https://chect.org.uk/tag/festus/)
- [olivia philips](https://chect.org.uk/tag/olivia-philips/)
- [retinoblastoma diagnosis](https://chect.org.uk/tag/retinoblastoma-diagnosis/)
- [squint in eye](https://chect.org.uk/tag/squint-in-eye/)
- [armanie](https://chect.org.uk/tag/armanie/)
- [ABDO](https://chect.org.uk/tag/abdo/)
- [children's glasses fit](https://chect.org.uk/tag/childrens-glasses-fit/)
- [young lives vs cancer](https://chect.org.uk/tag/young-lives-vs-cancer/)
- [World Retinoblastoma Awareness Week](https://chect.org.uk/tag/world-retinoblastoma-awareness-week/)
- [lizzies pupdate](https://chect.org.uk/tag/lizzies-pupdate/)
- [guide dogs for the blind](https://chect.org.uk/tag/guide-dogs-for-the-blind/)
- [harry styles](https://chect.org.uk/tag/harry-styles/)
- [free kicks foundation](https://chect.org.uk/tag/free-kicks-foundation/)
- [lawson](https://chect.org.uk/tag/lawson/)
- [james retinoblastoma story](https://chect.org.uk/tag/james-retinoblastoma-story/)
- [wembley](https://chect.org.uk/tag/wembley/)
- [world record](https://chect.org.uk/tag/world-record/)
- [world record in heels](https://chect.org.uk/tag/world-record-in-heels/)
- [james utting](https://chect.org.uk/tag/james-utting/)
- [amelia](https://chect.org.uk/tag/amelia/)
- [secondary cancer](https://chect.org.uk/tag/secondary-cancer/)
- [evie](https://chect.org.uk/tag/evie/)
- [danielle](https://chect.org.uk/tag/danielle/)
- [cian smith](https://chect.org.uk/tag/cian-smith/)
- [stafford](https://chect.org.uk/tag/stafford/)
- [stafford family day](https://chect.org.uk/tag/stafford-family-day/)
- [halloween](https://chect.org.uk/tag/halloween/)
- [scotland](https://chect.org.uk/tag/scotland/)
- [support events](https://chect.org.uk/tag/support-events/)
- [glasgow](https://chect.org.uk/tag/glasgow/)
- [science centre](https://chect.org.uk/tag/science-centre/)
- [joseph onyeka](https://chect.org.uk/tag/joseph-onyeka/)
- [Munachiso Samuel-Onyeka](https://chect.org.uk/tag/munachiso-samuel-onyeka/)
- [music](https://chect.org.uk/tag/music/)
- [rosie](https://chect.org.uk/tag/rosie/)
- [sarah hedges](https://chect.org.uk/tag/sarah-hedges/)
- [thomas hedges](https://chect.org.uk/tag/thomas-hedges/)
- [retinoblastioma](https://chect.org.uk/tag/retinoblastioma/)
- [michael](https://chect.org.uk/tag/michael/)
- [prosthetic eyes](https://chect.org.uk/tag/prosthetic-eyes/)
- [is it a seed?](https://chect.org.uk/tag/is-it-a-seed/)
- [football](https://chect.org.uk/tag/football/)
- [Ffion Miles Bursary 2024](https://chect.org.uk/tag/ffion-miles-bursary-2024/)
- [frankie](https://chect.org.uk/tag/frankie/)
- [eye cancer week](https://chect.org.uk/tag/eye-cancer-week/)
- [childhood eye cancer](https://chect.org.uk/tag/childhood-eye-cancer/)
- [amazing maisy](https://chect.org.uk/tag/amazing-maisy/)
- [retinoblastoma book](https://chect.org.uk/tag/retinoblastoma-book/)
- [World Retinoblastoma Awareness Week 2024](https://chect.org.uk/tag/world-retinoblastoma-awareness-week-2024/)
- [kelham](https://chect.org.uk/tag/kelham/)
- [kelham island museum](https://chect.org.uk/tag/kelham-island-museum/)
- [Pathways to Diagnosis 2023](https://chect.org.uk/tag/pathways-to-diagnosis-2023/)
- [london marathon 2024](https://chect.org.uk/tag/london-marathon-2024/)
- [running for CHECT](https://chect.org.uk/tag/running-for-chect/)
- [london meet up](https://chect.org.uk/tag/london-meet-up/)
- [discover children's story centre](https://chect.org.uk/tag/discover-childrens-story-centre/)
- [cardiff event](https://chect.org.uk/tag/cardiff-event/)
- [cardiff](https://chect.org.uk/tag/cardiff/)
- [Techniquest science centre](https://chect.org.uk/tag/techniquest-science-centre/)
- [teens with retinoblastoma](https://chect.org.uk/tag/teens-with-retinoblastoma/)
- [podcasting day](https://chect.org.uk/tag/podcasting-day/)
- [junior banfield](https://chect.org.uk/tag/junior-banfield/)
- [samuel](https://chect.org.uk/tag/samuel/)
- [harry hanlon](https://chect.org.uk/tag/harry-hanlon/)
- [tommy hanlon](https://chect.org.uk/tag/tommy-hanlon/)
- [ethan](https://chect.org.uk/tag/ethan/)
- [hereditary](https://chect.org.uk/tag/hereditary/)
- [genetic retinoblastoma](https://chect.org.uk/tag/genetic-retinoblastoma/)
- [ellen macarthur trust](https://chect.org.uk/tag/ellen-macarthur-trust/)
- [laura shannon](https://chect.org.uk/tag/laura-shannon/)
- [infocus 2024 plain text](https://chect.org.uk/tag/infocus-2024-plain-text/)
- [ana perez](https://chect.org.uk/tag/ana-perez/)
- [your unique vision](https://chect.org.uk/tag/your-unique-vision/)
- [esmae](https://chect.org.uk/tag/esmae/)
- [sports goggles](https://chect.org.uk/tag/sports-goggles/)
- [harry](https://chect.org.uk/tag/harry/)
- [my beautiful socket](https://chect.org.uk/tag/my-beautiful-socket/)
- [livi deane](https://chect.org.uk/tag/livi-deane/)
- [my new normal](https://chect.org.uk/tag/my-new-normal/)
- [katie piper](https://chect.org.uk/tag/katie-piper/)
- [rachel mcgovern](https://chect.org.uk/tag/rachel-mcgovern/)
- [kitty](https://chect.org.uk/tag/kitty/)
- [kittyvisionuk](https://chect.org.uk/tag/kittyvisionuk/)
- [ffion miles bursary](https://chect.org.uk/tag/ffion-miles-bursary/)
- [stephen clegg](https://chect.org.uk/tag/stephen-clegg/)
- [paralympian](https://chect.org.uk/tag/paralympian/)
- [paralympics](https://chect.org.uk/tag/paralympics/)
- [thomas cooper](https://chect.org.uk/tag/thomas-cooper/)
- [children's eye cancer](https://chect.org.uk/tag/childrens-eye-cancer/)
- [kriti](https://chect.org.uk/tag/kriti/)
- [aazmeen](https://chect.org.uk/tag/aazmeen/)
- [children in need](https://chect.org.uk/tag/children-in-need/)
- [bbc](https://chect.org.uk/tag/bbc/)
- [CIN](https://chect.org.uk/tag/cin/)
- [nadine coyle](https://chect.org.uk/tag/nadine-coyle/)
- [kimberely walsh](https://chect.org.uk/tag/kimberely-walsh/)
- [girls aloud](https://chect.org.uk/tag/girls-aloud/)
- [reetinoblastoma research](https://chect.org.uk/tag/reetinoblastoma-research/)
- [The impact of a child’s Retinoblastoma diagnosis on their parents’ psychosocial functioning in the longer term.](https://chect.org.uk/tag/the-impact-of-a-childs-retinoblastoma-diagnosis-on-their-parents-psychosocial-functioning-in-the-longer-term/)
- [infocus winter 2024 plain text](https://chect.org.uk/tag/infocus-winter-2024-plain-text/)
- [lucy the pianist](https://chect.org.uk/tag/lucy-the-pianist/)
- [lucy the piano](https://chect.org.uk/tag/lucy-the-piano/)
- [lucy eye cancer](https://chect.org.uk/tag/lucy-eye-cancer/)
- [lucy retinoblastoma](https://chect.org.uk/tag/lucy-retinoblastoma/)
- [janet allen](https://chect.org.uk/tag/janet-allen/)
- [pelham allen](https://chect.org.uk/tag/pelham-allen/)
- [The David Allen Retinoblastoma Appeal](https://chect.org.uk/tag/the-david-allen-retinoblastoma-appeal/)
- [national space centre](https://chect.org.uk/tag/national-space-centre/)
- [retinoblastoma events](https://chect.org.uk/tag/retinoblastoma-events/)
- [christmas events](https://chect.org.uk/tag/christmas-events/)
- [ffion miles bursary 2025](https://chect.org.uk/tag/ffion-miles-bursary-2025/)
- [livi the traitors](https://chect.org.uk/tag/livi-the-traitors/)
- [livi deane the traitors](https://chect.org.uk/tag/livi-deane-the-traitors/)
- [livi's eye the traitors](https://chect.org.uk/tag/livis-eye-the-traitors/)
- [livi retinoblastoma](https://chect.org.uk/tag/livi-retinoblastoma/)
- [retinoblastoma and me](https://chect.org.uk/tag/retinoblastoma-and-me/)
- [courtney banfield](https://chect.org.uk/tag/courtney-banfield/)
- [adam lione](https://chect.org.uk/tag/adam-lione/)
- [partially sighted football](https://chect.org.uk/tag/partially-sighted-football/)
- [faiz](https://chect.org.uk/tag/faiz/)
- [shuhd](https://chect.org.uk/tag/shuhd/)
- [the last bear](https://chect.org.uk/tag/the-last-bear/)
- [Mosaicism](https://chect.org.uk/tag/mosaicism/)
- [Mosaicism and retinoblastoma](https://chect.org.uk/tag/mosaicism-and-retinoblastoma/)
- [history of CHECT](https://chect.org.uk/tag/history-of-chect/)
- [Monocular vision](https://chect.org.uk/tag/monocular-vision/)
- [protective eyewear](https://chect.org.uk/tag/protective-eyewear/)
- [low vision and sport](https://chect.org.uk/tag/low-vision-and-sport/)
- [london marathon 2025](https://chect.org.uk/tag/london-marathon-2025/)
- [darren harris](https://chect.org.uk/tag/darren-harris/)
- [chect's patron](https://chect.org.uk/tag/chects-patron/)
- [pathways to diagnosis 2024](https://chect.org.uk/tag/pathways-to-diagnosis-2024/)
- [2024 CHECT Members' Survey Feedback](https://chect.org.uk/tag/2024-chect-members-survey-feedback/)
- [cat eye](https://chect.org.uk/tag/cat-eye/)
- [white in eye](https://chect.org.uk/tag/white-in-eye/)
- [glow in eye](https://chect.org.uk/tag/glow-in-eye/)
- [beale park](https://chect.org.uk/tag/beale-park/)
- [meet up](https://chect.org.uk/tag/meet-up/)
- [junior](https://chect.org.uk/tag/junior/)
- [infocus 2025 summer plain text](https://chect.org.uk/tag/infocus-2025-summer-plain-text/)
- [jessy](https://chect.org.uk/tag/jessy/)
- [theo](https://chect.org.uk/tag/theo/)
- [kirsteen](https://chect.org.uk/tag/kirsteen/)
- [lila](https://chect.org.uk/tag/lila/)
- [christmas cards](https://chect.org.uk/tag/christmas-cards/)
- [raye](https://chect.org.uk/tag/raye/)
- [manchester event](https://chect.org.uk/tag/manchester-event/)
- [Western North End FC](https://chect.org.uk/tag/western-north-end-fc/)
- [charity football sponsors](https://chect.org.uk/tag/charity-football-sponsors/)
- [weatherman walking](https://chect.org.uk/tag/weatherman-walking/)
- [cancer charity weatherman walking](https://chect.org.uk/tag/cancer-charity-weatherman-walking/)
- [cancer charity](https://chect.org.uk/tag/cancer-charity/)
- [ten to the top](https://chect.org.uk/tag/ten-to-the-top/)
- [vernon kay](https://chect.org.uk/tag/vernon-kay/)
- [the repair shop](https://chect.org.uk/tag/the-repair-shop/)
- [guide dogs](https://chect.org.uk/tag/guide-dogs/)
- [hollie and ted](https://chect.org.uk/tag/hollie-and-ted/)
- [London](https://chect.org.uk/tag/london/)
- [Boat ride](https://chect.org.uk/tag/boat-ride/)
- [All Bar One](https://chect.org.uk/tag/all-bar-one/)
- [In memory](https://chect.org.uk/tag/in-memory/)
- [Robin Williams](https://chect.org.uk/tag/robin-williams/)
- [Tribute](https://chect.org.uk/tag/tribute/)
- [CHECT Scientific Advisory Committee](https://chect.org.uk/tag/chect-scientific-advisory-committee/)
- [christmas party](https://chect.org.uk/tag/christmas-party/)
- [world cancer day](https://chect.org.uk/tag/world-cancer-day/)
- [Noah’s Ark Children’s Hospital](https://chect.org.uk/tag/noahs-ark-childrens-hospital/)
- [The Royal London Hospital](https://chect.org.uk/tag/the-royal-london-hospital/)
- [retinoblastoma screening](https://chect.org.uk/tag/retinoblastoma-screening/)
- [reggie](https://chect.org.uk/tag/reggie/)
- [brody](https://chect.org.uk/tag/brody/)
- [accessible reading](https://chect.org.uk/tag/accessible-reading/)
- [childrens cancer](https://chect.org.uk/tag/childrens-cancer/)
- [nancy](https://chect.org.uk/tag/nancy/)
- [sports](https://chect.org.uk/tag/sports/)
- [cricket](https://chect.org.uk/tag/cricket/)
- [london marathon 2026](https://chect.org.uk/tag/london-marathon-2026/)
- [Global Retinoblastoma Research Collaboration](https://chect.org.uk/tag/global-retinoblastoma-research-collaboration/)
- [pathways to diagnosis 2025](https://chect.org.uk/tag/pathways-to-diagnosis-2025/)
- [isaac](https://chect.org.uk/tag/isaac/)
- [orcam](https://chect.org.uk/tag/orcam/)
- [bespoke eyes](https://chect.org.uk/tag/bespoke-eyes/)
- [chester zoo](https://chect.org.uk/tag/chester-zoo/)

## Stats Types

- [view](https://chect.org.uk/wpa-stats-type/view/)
- [Safari](https://chect.org.uk/wpa-stats-type/safari/)
- [iPad](https://chect.org.uk/wpa-stats-type/ipad/)
- [event](https://chect.org.uk/wpa-stats-type/event/)
- [iPhone](https://chect.org.uk/wpa-stats-type/iphone/)
- [Chrome](https://chect.org.uk/wpa-stats-type/chrome/)
- [Android](https://chect.org.uk/wpa-stats-type/android/)
- [Macintosh](https://chect.org.uk/wpa-stats-type/macintosh/)
- [Windows](https://chect.org.uk/wpa-stats-type/windows/)
- [unknown](https://chect.org.uk/wpa-stats-type/unknown/)
- [Samsung Browser](https://chect.org.uk/wpa-stats-type/samsung-browser/)
- [Linux](https://chect.org.uk/wpa-stats-type/linux/)
- [Android Browser](https://chect.org.uk/wpa-stats-type/android-browser/)
- [Firefox](https://chect.org.uk/wpa-stats-type/firefox/)
- [Opera](https://chect.org.uk/wpa-stats-type/opera/)

## Product categories

- [General](https://chect.org.uk/product-category/general/)