If you are concerned that you may have noticed a sign of retinoblastoma we recommend you take your child to the general practitioner (GP), a local opticians/optometrist or a local ophthalmology department to have their eyes examined as soon as possible.
Please be aware that although all optometrists are trained to test children of all ages, some may choose not to test babies and younger children so you may have to try a few before finding one happy to check your child’s eyes for you. Some ophthalmology departments have a ‘walk in’ or A & E clinic; others will need a referral from your GP.
Retinoblastoma is a very rare condition, so you may need to explain to the medical professional you take your child to that you are concerned you have seen a sign of retinoblastoma in your child’s eye(s) or in a photo and that you would like your child to be fully tested in order to rule this out.
The GP, a local ophthalmic optician/optometrist or a local ophthalmology department are all able to refer on for further tests if they are in any doubt about ruling out retinoblastoma. If you feel you are being delayed at any stage during the process, either in seeing someone initially or when waiting for a referral or do not feel fully reassured that retinoblastoma has been ruled out then ask for a second opinion until you are satisfied or have received an urgent referral.
If you have any unusual photos of the eye/s, try to take these with you, along with a copy of the ‘I Spy’ awareness leaflet. You may also wish to download our ‘See Red’ poster which explains how a professional should check children’s eyes for retinoblastoma using a ‘red reflex test’.
At your appointment your health professional should carry out the ‘red reflex test’ in a darkened room using a medical torch (ophthalmoscope) to check the retina at the back of both eyes. If they have any concerns they should refer your child urgently (within 2 weeks) to the local ophthalmology (eye) department for further investigation.
If you would like to talk to someone about the signs & symptoms of retinoblastoma please ask to speak to one of our support workers on 020 7377 5578 or email firstname.lastname@example.org